Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 In a message dated 11/4/1999 1:55:31 PM Pacific Standard Time, smacaluso@... writes: << Dr. (an opthamologist that specializes in auto-immune diseases at the infamous " Eye and Ear Infirmary " ) >> Shanin, Dr is really great. He is s favorite Dr. Be prepared to wait awhile. Did you read about his clinic on the web site? It is a teaching clinic so you will be examined by several other drs who are studying under Dr F. It is quite an experience. While you are there check out the Freedom trail. Or catch the subway over to harvard. It is a lot of fun and only minutes away. One more thing. WOuld you bring up and the Vegan Diet to Dr Trentham? I was going to Email him but if you are seeing him in person that would work. Perhaps Jeff could forward Dr Bluestones Phone number to you to give to Dr Trenthan. That would cut down on the time until we hear something. Have a good trip Shanin, hope they can help you. Roy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 In a message dated 11/4/1999 1:55:31 PM Pacific Standard Time, smacaluso@... writes: << My sister, Jami, >> I see her on line but I have not talked to her in a long time. How is she doing? Before you were able to get mail from the group we all really enjoyed Jami talking with us. Please tell her hello for me. Roy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 In a message dated 11/4/1999 1:55:31 PM Pacific Standard Time, smacaluso@... writes: << ROY -- COULD YOU PLEASE TAKE ME OFF OF THE LIST UNTIL FURTHER NOTICE? >> No,,, but I will stop your mail. : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 In a message dated 11/4/1999 1:55:31 PM Pacific Standard Time, smacaluso@... writes: << two-week stay in Boston, >> Oh, I am really jealous now!!! Well, not of the reason you are going. I could write a whole bunch of things you need to do. One thing, Maine is only 30 minutes away. Get up there and have lobster! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 Shannin Good luck Love and Gentle Hugs, Angie http://www.onelist.com/subscribe/SantaLetters http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://members.tripod.com/~autoimmune Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 Dear Shanin-Have a safe and productive trip(enjoy it too while you are at it!!) Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 Rlr1999@... wrote: > > One more thing. WOuld you bring up and the Vegan Diet to Dr Trentham? > I was going to Email him but if you are seeing him in person that would > work. Perhaps Jeff could forward Dr Bluestones Phone number to you to give > to Dr Trenthan. That would cut down on the time until we hear something. Hi, Roy: I'd be happy to give our phone number to whomever is going to see Dr. Trenthan so he could first speak with (though I want to give our number in a private email and not on the list where it would find its way into the archive). I think he should hear what has to say, and if he's interested in speaking with Dr. Bluestone, we would then contact Bluestone and let him know to expect the call. I would rather do that than simply telling him to call Bluestone when hasn't seen Bluestone in over two years and the call would be out of the blue. We also don't want to call Dr. Bluestone and tell him to expect a call from Trenthan and why, if Trenthan decides not to call him for some reason. Alternatively, could draft a letter to go to Dr. Trenthan which the person going to see him could take, or which we could fax or you could forward. The thing I want to avoid is someone relating 's experiences to Dr. Trenthan second hand and possibly distorting those experiences unintentionally. If Dr. Trethan is interested to know about 's case, that should come directly from by phone or by letter, and any additional information he was interested in he could then get from Dr. Bluestone. Make sense? Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 > Hi ! Is your bag full of questions? If not, some suggestions: No No vits If I remember right Dr. T. has told, C, B6 and B12 vitamins are No No for people with AI diseases. Why? How? Thalidomide Does he have any opinion/experience of th.for RP? (I know a Finnish woman with Bechet´s disease (sp?), who thinks it´s her " enrbrel " .) Any advantage, if you send your list of questions to him beforehand? Have a rewarding trip! Arto > > >> P.S. My Enbrel has kicked back in, but ears seem not to be doing any > better, I leave on Thrusday for Boston, talk to all later. > Love, > > > --- Quote Link to comment Share on other sites More sharing options...
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