Re: Getting confirmation of diagnosis

[Guest guest]

Dennis and Mitzi;

The disease is " slowly progressive " I suppose they(

DOCS) think that is how to diagnose it! <progressing

slowly> LOL

First of all WELCOME Mitzi. . . I believe there is a

reason for everything and there is a reason you found

this site. . . we're glad you are here and love an

opportuntiy to share information about CMT to make

others AWARE!

Whether you are confirmed to have CMT or not your

symptoms evidently are similar and that is what we all

share here. Understanding for what we deal with daily

in coping with those symptoms whatever the cause,

sharing is our biggest asset. I believe MS,

fibromyalgia, chronic fatigue and some of the other

chronic illnesses can also relate ,for they too, deal

with a life long illness. And a daily battle of making

adjustments.

However, for me the point of acceptance and journey

out of denial. . . came at the point I had a name to

put with my collective group of symptoms! It is easier

to fight something if you know what it is. . .

emotionally and metally fight of course! LOL So, the

" Healing " can begin when you know the source or root

of the problem. At least you can tell people what is

wrong. . .though to most the " phantom disease " isn't

visible or understood! (Funny thing is my husband told

the doctors from the beginning what it was after a

chiropractor made comment he thought I had something

Neuromuscular and progressive (just by reading in a

Physicians Reference, and MERK Manual of description

of CMT). . .and after $11,000 plus in tests etc. to

find out what it WASN'T. . . they tell him, " you were

right, she's got CMT " ) Confirmed after 3 years with

DNA test to have CMT 1X.

Hang in there and we are all here for you. . .

And Dennis the confirmation will come. . . but the

best way to cope is to learn as much as you can. . .

pay attention to your body, be kind to it and be among

friends and like minded people. HERE YOU ARE!

Lots of Love,Hugs Libby /\/\

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" I THANK GOD FOR MY HANDICAPS, FOR, THROUGH THEM, I HAVE FOUND MYSELF, MY WORK,

AND MY GOD. " - Helen Keller

" TO MAKE A FRIEND TAKES BUT A MOMENT. . . TO BE A FRIEND TAKES A LIFETIME "

" FRIENDS ARE LIKE PILLARS; SOMETMES THEY LEAN ON YOU; SOMETIMES THEY HOLD YOU

UP! "

LIBBY'S HOMEPAGE www.geocities.com/charcot_marie_tooth

(^-*) (CM)LIBBY IN ARKANSAS

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