Guest guest Posted November 23, 2003 Report Share Posted November 23, 2003 Okay this is part reply and seing if I can reply by having just a sentence or two left on here to make sense.....So think replied but I know Russ can see I am in pain and sometimes tell him just in general last thing I want to do is act or talk about my physical problems as they are so many. Thanks so much for caring, really mean that. And also hope did this right in replying....ya'll tell me if I scewed up. s Momma JoAnn > ' Please let Russ know how you're feeling, You have to remember this is only going to make your pain levels worse JoAnn, it can be worse to hide this from him. > Hi JoAnn, Deb is so right. YOu should never hide your pain from anyone. Take care and have a good night. > > Hugs, > babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Thank you Sharon for the information but my mind must be filled with all sorts of mothballs as still not sure what purpose is for you going to the hospital, is it to get you OFF pain meds, or to get you ON pain meds? Hate to show my ignorance but can't help it in this case. Just hope whatever you are hoping to accomplish from this happens for you. kellys momma JoAnn JoAnn Because I have had all the blocks that are available over the years, I am going on a in patient residential pain management programme, which lasts for a month. http://www.inputpainunit.org/ We are literally opposite the houses of parliament. http://www.explore-london.co.uk/wesbw.html ITake care Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Hey, I wanna be a couch or a bed!!! lmao.....If we are going to start calling ourselves pieces of furniture cause we've been here forever, we should at least get to pick what kind we want to be!!! hehehehe JoAnn, Some of us "oldies" as in long time group members, have actually met here and there in other groups.....and, Sharon, Deb, Jo, Me, and a couple of others just have this lovely luck of knowing the B*tc* from H*ll that somewhat helped end another group that another good friend of ours also used to have. Since I can't say names or nothing.......and I have to be nice.......I'll just say this: This certain person, I'd love to have Satan's Fork to poke her with nonstop for the rest of my life! She caused WAY too much trouble for WAY too many people.......including me. But, luckily, Deb, Jo and Felice was kind enough to invite all of the members from that group into their group here and make this group a bigger and happier family....the way it is today. Sharon has files upon files of information on RSD and just about any kind of other diseases that goes along with RSD......if you need info, she's the one you ask! lol, if she ain't got it.....it hasn't been discovered yet! She is also lucky enough to live near London.....and, if I remember right, their Healthcare is totally different than ours. They don't have to pay for their HealthCare like we do either......(darn CRS, I can't remember exactly how it works again either!) brb. gotta get Crystal off the bus.... I say lucky enough to live near London because that would be a place that I'd LOVE to visit if I ever got the chance!!! lol I am a HUGE History fanatic....and some of the places in London I would die to see!!! Ok....better get....BOTH kids have homework up the butt. ugh. Crystal has been asleep since 11 am.....lol. She pretty much fell asleep in her lunch at school according to the teacher!! not bad...she's still asleep. I got her off the bus, carried her into the house, laid her down on the couch and she hasn't moved an inch. Boy, I love this medicine that she's got for Migraines!!!! Next dose....BEDTIME! Tonia -------Original Message------- Hi JoAnn I guess the best place for me to start is the beginning. I got RSD from Carpel tunnel operation, and have had all the various blocks. I've had RSD now for 8 years or so. The last what must be getting on 2 1/2 - 3 years it started spread to my legs. I also have been having bladder problems/ low bp - to the degree that I can black out after being up right for 40 mins or more. Last November I did HBO ( hyper baric oxygen) it was fantastic - and I would highly recommend it to anyone. I had no pain, my limbs were warm, I was running up an down hills, I was feeling great!. Couple of months again I had a nasty fall and things took a turn for the worse. RSD came back with vengeance. I now have two wheelchairs, one which has to be pushed by someone as it has small wheels,and the other is self propelled ( has two big wheels ), but as I have rsd in my hands I have no grip or strength to push myself, hence needing an electric one. Because I have had all the blocks that are available over the years, I am going on a in patient residential pain management programme, which lasts for a month. It is basically from 9-5, intense course every day, and people from all over the UK go there,and apparently well known around the world. It is at St Hospital, better known as Tommy's ( Guys & St 's). The website for INPUT is: http://www.inputpainunit.org/ Which tells you all about the course. I have no idea whether it will work, but I have nothing to lose, and will gain some peace from the kids..lol They have one staff on call at night, but as it is basically a course ( although we are technically patients as we are in hospital), we are free to come and go as we please in the evenings. so if we want to go to the pub, to a show we can. we stay in a flat and there are 20 people per course (per month) and in our flat we get a bedroom, bathroom/shower room, kitchen and a lounge. Some are smoking flats and some are non smoking, I hope I get a smoking one - well technically speaking by then I should have a non smoking cos I am suppose to be giving up..lol but we will see :-) We are literally opposite the houses of parliament. http://www.explore-london.co.uk/wesbw.html The smaller building on the left ( light/white) is INPUT and the main part of St is the large building next to it. Over the river is houses of Parliament and big Ben. As for knowing several of the members, yes I have been around for yonks and yonks, guess I am bit like a piece of furniture or wallpaper, I am always here but you may only notice me every so often..lol. I use to post RSD stuff etc, but rsd hasn't made it possible for me to do things lately like I use to do. hopefully, things will improve soon. They normally do, it is a case of working things out and knowing what to do..lol Well I had better go and finish sorting some things out for tomorrow. Take care Sharon ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Oh, BTW.....you mentioned 5th hernia.... has your doctor mentioned to you yet to stop eating chocolate? Cause, if he hasn't....he should, because the chocolate could be part of the reason you keep getting them! <ducking the big heavy spoon she uses to stir that chocolate stuff she constantly makes!!!> Tonia -------Original Message------- Okay went to all the trouble of cutting this down then sent it without writing anything that is why you are the smart one and I am in la-lal land...can be fun it you ever want to join me, lots of chocolate. Anyway what happened to your daughter, have not read about her falling and also the reply about having kids and being able to block out things.......you know think you just have to stop being so funny as you make me laugh and with this 5th hernia it hurts , now just try and be a little less humorous, okay???? Like pretend your talking to your toes, usually they don't have alot of humor!! s Momma JoAnn ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
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