Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 Mitzi, Hello, My name is Kate and I am 22 also have CMT and was diagnosed as an infant. I am in Rochester MN currently. Do you see anyone at Mayo? My email is Liligirl20@... if you would like to email me privately, since we are so close...it might be kinda fun to meet! I have never met anyone (in person) with CMT that wasn't a family member. Might be neat to share experiences etc. And I agree, this site is awesome! Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 Hello everyone out there in CMT world..... Waaazahhhh! My name is Mitzi, I am 22 and live in Minneapolis, MN. I was diagnosed with CMT when I was about 5 years old. I have a relatively mild case of CMT compared to the stories I have read etc on the website. My mother's is much worse than mine. One of her 3 brothers has it, her mother and another cousin. There is more I suspect but we don't know. I just want to say that I am so amazed that there is this kind of thing out there. This group, the website w/ the discussion forum and everything. It's so great knowing that there are people out there that have this same problem and that I am not the only one. I find myself looking on the site every few hours lately (when I'm home) just to see what everyone is talking about. Does anyone know how many people visit the website currently? (CMTA that is). And, how many people are on this distribution list approx? Thanks again! This is so awesome!! I'm looking forward to talking with you all! Thanks for being out there and have a great New Years Day! Mitzi Quote Link to comment Share on other sites More sharing options...
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