Jump to content
RemedySpot.com

Let me introduce myself....

Rate this topic


Guest guest

Recommended Posts

Mitzi,

Hello, My name is Kate and I am 22 also have CMT and was diagnosed as an

infant. I am in Rochester MN currently. Do you see anyone at Mayo? My

email is Liligirl20@... if you would like to email me privately, since we

are so close...it might be kinda fun to meet! I have never met anyone (in

person) with CMT that wasn't a family member. Might be neat to share

experiences etc. And I agree, this site is awesome!

Kate

Link to comment
Share on other sites

Hello everyone out there in CMT world..... Waaazahhhh!

My name is Mitzi, I am 22 and live in Minneapolis, MN. I was diagnosed

with CMT when I was about 5 years old. I have a relatively mild case of

CMT compared to the stories I have read etc on the website. My mother's

is much worse than mine. One of her 3 brothers has it, her mother and

another cousin. There is more I suspect but we don't know.

I just want to say that I am so amazed that there is this kind of thing

out there. This group, the website w/ the discussion forum and

everything. It's so great knowing that there are people out there that

have this same problem and that I am not the only one. I find myself

looking on the site every few hours lately (when I'm home) just to see

what everyone is talking about.

Does anyone know how many people visit the website currently? (CMTA that

is).

And, how many people are on this distribution list approx?

Thanks again! This is so awesome!! I'm looking forward to talking with

you all! :) Thanks for being out there and have a great New Years Day!

Mitzi

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...