Re: neocutis creme product for vestibulitis

[Guest guest]

HI Tara,

I don't know that much about the Neocutis or if it's available in the USA (I think it was developed in Switzerland) but it does sound interesting, they apparently use cultured fetal skin cells: (wonder how they grow 'that'? ummmmm )

"Neocutis’ proprietary technology uses cultured skin cells to obtain an optimal, naturally balanced mixture of skin nutrients including cytokines, growth factors and antioxidants. This mixture is called PSP™, which stands for ‘Processed Skin Cell Proteins".

The price I saw was $130 and they don't say how much was in the tube.

For those not aware of it try this link where they're doing a study with it for V.Vestibulitis. http://www.neocutis.com/article.php?sid=69

These are the current results so far.

Results:10 patients applied the treatment (Neocutis) for more than 4 months and were still on treatment (between 4 to 22 months). 5 patients were just included in the study and used the cream since 1 and 2 months. From these 10 patients, a twice-daily application for 4 - 5 weeks was significantly associated with an improvement of complaints, with less chronic pain and less itching.

Steady-state was reached after 6 to 8 weeks of treatment with almost complete relief of symptoms and absence of vestibular redness.

Most patients reported a major increased quality of their sexual life. The patients used the cream for long term without any reported adverse effects and without any change of the vaginal flora.

Tara you said you had some? Did you order it in the USA or was it a sample? I'd be like you & give it a try, you never know, and sure wish you the best with it. Be sure to report back to us on how it goes. Thanks.

Dee~

[Guest guest]

Hi Tara,

Do you live in the US? I had a friend call about it from the US and I thought she said it was difficult to get. Please share how you got it.

THANKS

Sandi

Discover Yahoo! Get on-the-go sports scores, stock quotes, news more. Check it out!

[Guest guest]

Tara,

I heard about this cream but was wondering what the ingredients are???

I have so many allergies that I am limited on what I can use so am

cautious about trying anything new, especially when it is so costly.

The website does not mention the ingredients. Does the container?

Any information you can provide would be great.

Thanks,

[Guest guest]

HI Cuby ()

Me too wondering about the 'exact' ingredients in the Neocutis.. all I could find was what I posted.

''Neocutis’ proprietary technology uses cultured skin cells to obtain an optimal, naturally balanced mixture of skin nutrients including cytokines, growth factors and antioxidants. This mixture is called PSP™, which stands for ‘Processed Skin Cell Proteins".

See that word 'proprietary', that means it's their formula & secret alone and they don't have to share it, I did read the skin cells are cultured fetal skin cells. I hope Tara's tube does have the list of ingredients.

Dee~

[Guest guest]

I talked to Mark Lemco, their rep from San Francisco. He is going to email me

the list of ingredients but he is on the road in Michigan at the present time so

I may not get the list until later on today. I will post it as soon as it is

received.

Ora

>HI Cuby ()

>

>Me too wondering about the 'exact' ingredients in the Neocutis.. all I could

find was what I posted.

>

> ''Neocutis' proprietary technology uses cultured skin cells to obtain an

optimal, naturally balanced mixture of skin nutrients including cytokines,

growth factors and antioxidants. This mixture is called PSPT, which stands for

'Processed Skin Cell Proteins " .

>

>See that word 'proprietary', that means it's their formula & secret alone and

they don't have to share it, I did read the skin cells are cultured fetal skin

cells. I hope Tara's tube does have the list of ingredients.

>

>Dee~

[Guest guest]

Hi Guys,

If you go check out the other Vulvodynia yahoo group " Vulvodynia-

Support " , Dr. Glazer sent an email to that group telling

people Neocutis did some preliminary research on this drug and it

has helped the women it was tested on, but it sounds like it was a

small sampling... anyway they are going to conduct enough research

to get FDA approval of the product. Right now I think it being used

to treat wounds and other problems, but they are doing clinical

studies for its effects on Vestibulitis. It is listed as

a " cosmaceutical " and not as a prescription drug. If you would like

to get it Dr. Glazer gave his information with his email address

that you can contact. You will get a q're also that you and your

doctor should fill out and instructions on how to use it. It is 125

bucks for the tube and should last two months and then 15 for

shipping... but it is worth if it it helps.

Also I think he said the spring newsletter for NVA might have more

info on this.

This is the actual company's website:

http://www.neocutis.com/categories.php?catid=2

[Guest guest]

This sounds interesting... would you be able to post a link to the

other site? I can't seem to find it. Thanks! $125 is hard to come by

but after all I've spent... I'd give it a shot. Thanks,

> Hi Guys,

>

> If you go check out the other Vulvodynia yahoo group " Vulvodynia-

> Support " , Dr. Glazer sent an email to that group telling

> people Neocutis did some preliminary research on this drug and it

> has

[Guest guest]

Hi ,

If the hysterectomy or potential bladder surgery doesn't cure me perhaps we can split the cost. How many tubes of cream do we have that didn't work! We live close enough that we could split the cost and the tube. This sounds like the most promising thing I have seen in years!!! The website said it helps vvs but doesn't say anything about constant pain. But then again I believe that constant vestibular pain is just a more severe form of vvs, kind of like the sniffles vs. pneumonia.

BTW, my labia is burning so much and I am soooo discouraged!

Sandi__________________________________________________

[Guest guest]

You can call up the 800 number abd it gets shipped from california---i have

not bought it yet but I am going to ask Spalt about it next Thursday.

> Hi Tara,

>

> Do you live in the US? I had a friend call about it from the US and I thought

she said it was difficult to get. Please share how you got it.

>

> THANKS

> Sandi

>

>

>

>

> ---------------------------------

> Discover Yahoo!

> Get on-the-go sports scores, stock quotes, news & more. Check it out!

[Guest guest]

Oh totally we could share the tube! Good idea! I went to the website

to check it out but am so distracted and depressed I can't even think

straight! My doc now says the MRI shows that I either broke or severely

dislocated my tailbone (though I have no memory of such an injury) but

that it probably is not causing the vulvar pain (just the tailbone

pain, sciatica) and there's not much he can do. Next week I go for a

lidocaine injection in the herniated disc area as a desperate shot in

the dark.. Good Grief.

Sorry you are burning so much Sandi. Ugh, this problem is beyond

belief. I've been taking my ox absorb and my pain is a tad bit less

than yesterday (then again the days after my period ends are always the

best) so i'm gonna stick with the low ox diet and ox absorb for now and

hope for the best.

Hope you feel better soon Sandi. Hope we all do. Oh and the topical

Neurontin is still something to try.

> Hi ,

>

> If the hysterectomy or potential bladder surgery doesn't cure me

perhaps we can split the cost. How many tubes of cream do we have that

didn't work! We live close enough that we could split the cost and the

tube. This>

> BTW, my labia is burning so much and I am soooo discouraged!

> Sandi

>

>

>

[Guest guest]

I received the list of ingredients for neocutis creme product. Here is the

email I received from Dreher.

To:

Subject: RE: Neocutis cream for vulvar vestibulitis

Date: Sat, 18 Jun 2005 11:25:01 -0700

Dear Ora,

The ingredients are (in decreasing order of predominance):

AQUA (WATER)

OCTYLDODECANOL

GLYCERYL STEARATE

DECYL OLEATE

GLYCERIN

PROPYLENE GLYCOL

TRITICUM VULGARE (WHEAT GERM OIL)

STEARIC ACID

CETYL ALCOHOL

CETEARETH 20

MYRETH-3 MYRISTATE

CETEARETH 12

CETEARYL ALCOHOL

CETYL PALMITATE

TOCOPHERYL ACETATE

DIMETHICONE

BORAGO OFFICINALIS (BORAGE SEED OIL)

CARBOMER

TRIETHANOLAMINE

METHYLPARABEN

PROPYLPARABEN

(active ingredient) PROCESSED SKIN CELL PROTEINS

GLYCOSPHINGOLIPIDS

PHENOXYETHANOL

DISODIUM EDTA

BHT

ETHYLPARABEN

BUTYLPARABEN

METHYLISOTHIAZOLINONE

METHYLCHLOROISOTHIAZOLINONE

Please do hesitate to contact me if you need further information.

Sincerely,

Dreher

_________________________________________

Dreher, Ph.D.

NEOCUTIS Inc. - Senior Project Manager

3053 Fillmore Street #140, San Franciscio CA 94123

Phone 415 227-4720, Cell 415 377-7731, Fax 415 227-4730

www.NEOCUTIS.com

>I talked to Mark Lemco, their rep from San Francisco. He is going to email me

>the list of ingredients but he is on the road in Michigan at the present time

so

>I may not get the list until later on today. I will post it as soon as it is

>received.

>

>Ora

>

>

>

>

>

>>HI Cuby ()

>>

>>Me too wondering about the 'exact' ingredients in the Neocutis.. all I could

find was what I posted.

>>

>> ''Neocutis' proprietary technology uses cultured skin cells to obtain an

optimal, naturally balanced mixture of skin nutrients including cytokines,

growth factors and antioxidants. This mixture is called PSPT, which stands for

'Processed Skin Cell Proteins " .

>>

>>See that word 'proprietary', that means it's their formula & secret alone and

they don't have to share it, I did read the skin cells are cultured fetal skin

cells. I hope Tara's tube does have the list of ingredients.

>>

>>Dee~

>

>

>

>

>*****END OF MESSAGE/REMOVE WHEN REPLYING*****

>http://groups.yahoo.com/group/VulvarDisorders

>to search our archive or view our files.

>

>***

[Guest guest]

The ingredients are identified with their uses at:

http://www.csmt.ewu.edu/csmt/chem/jcorkill/soapcont.html

Ora

>I received the list of ingredients for neocutis creme product. Here is the

>email I received from Dreher.

>

>To:

>Subject: RE: Neocutis cream for vulvar vestibulitis

>

>Date: Sat, 18 Jun 2005 11:25:01 -0700

>

>Dear Ora,

>

>The ingredients are (in decreasing order of predominance):

>

> AQUA (WATER)

> OCTYLDODECANOL

> GLYCERYL STEARATE

> DECYL OLEATE

> GLYCERIN

> PROPYLENE GLYCOL

> TRITICUM VULGARE (WHEAT GERM OIL)

> STEARIC ACID

> CETYL ALCOHOL

> CETEARETH 20

> MYRETH-3 MYRISTATE

> CETEARETH 12

> CETEARYL ALCOHOL

> CETYL PALMITATE

> TOCOPHERYL ACETATE Vitamin E used as a preservative.

> DIMETHICONE

> BORAGO OFFICINALIS (BORAGE SEED OIL)

> CARBOMER

> TRIETHANOLAMINE

> METHYLPARABEN

> PROPYLPARABEN

>(active ingredient) PROCESSED SKIN CELL PROTEINS

> GLYCOSPHINGOLIPIDS

> PHENOXYETHANOL

> DISODIUM EDTA

> BHT

> ETHYLPARABEN

> BUTYLPARABEN

> METHYLISOTHIAZOLINONE

> METHYLCHLOROISOTHIAZOLINONE

>

>Please do hesitate to contact me if you need further information.

>

>Sincerely,

>

> Dreher

>_________________________________________

> Dreher, Ph.D.

>NEOCUTIS Inc. - Senior Project Manager

>3053 Fillmore Street #140, San Franciscio CA 94123

>Phone 415 227-4720, Cell 415 377-7731, Fax 415 227-4730

>www.NEOCUTIS.com

>

>

>

>

>

>

>

>

>

>>I talked to Mark Lemco, their rep from San Francisco. He is going to email me

>>the list of ingredients but he is on the road in Michigan at the present time

so

>>I may not get the list until later on today. I will post it as soon as it is

>>received.

>>

>>Ora

>>

>>

>>

>>

>>

>>>HI Cuby ()

>>>

>>>Me too wondering about the 'exact' ingredients in the Neocutis.. all I could

find was what I posted.

>>>

>>> ''Neocutis' proprietary technology uses cultured skin cells to obtain an

optimal, naturally balanced mixture of skin nutrients including cytokines,

growth factors and antioxidants. This mixture is called PSPT, which stands for

'Processed Skin Cell Proteins " .

>>>

>>>See that word 'proprietary', that means it's their formula & secret alone and

they don't have to share it, I did read the skin cells are cultured fetal skin

cells. I hope Tara's tube does have the list of ingredients.

>>>

>>>Dee~

>>

>>

>>

>>

>>*****END OF MESSAGE/REMOVE WHEN REPLYING*****

>>http://groups.yahoo.com/group/VulvarDisorders

>>to search our archive or view our files.

>>

>>***

[Guest guest]

Thanks Ora for that list as well for the Neocutis cream. I had to laugh at his closing line.. Do you think that was a freudian slip? LOL .

<Please do hesitate to contact me if you need further information.

Sincerely, Dreher>

Dee

[Guest guest]

>Thanks Ora for that list as well for the Neocutis cream. I had to laugh at his

closing line.. Do you think that was a freudian slip? LOL .

>

><Please do hesitate to contact me if you need further information.

>Sincerely, Dreher>

>

>Dee

You could be right. But I noticed that recently people are too lazy to finish

their sentences. Example: I couldn't care less has become I could care less

which means exactly the opposite.

As a matter of fact though, maybe he was a bit pissed because I talked to

another man from the company and then he passed the buck to

Dreher. I am sure that Dreher had to look up the ingredients and then

type them out. Maybe he didn't really want to and didn't really want to hear

any more about it and inadvertently said so.

Ora

[Guest guest]

LOL ..... maybe you're right Ora about that guy who wrote back, probably what he was thinking but wonder he did it consciously, *grin* maybe.

Thanks so much for filling in those missing ingredients too.... I love how your mind works, *smile* I think it's the dectective in us. You're right that ingredient

methylisothiazolinone doesn't sound like something I'd want either, but I did see it listed as last so hopefully there's very little of it in the Neocutis creme. It does make you wonder why it's there since it is such an irritant. I see it's a preservative so I guess that's the reason. *sigh*

Speaking of preservatives, I swear I've never seen Milk or Bread last SO long here at home.. it's getting a bit scary to me. ;(

About words misused? I know even I myself sometimes leave off pronouns or words... always in too much of a hurry. But that 'could care less' or using 'your for you're' gets to me too, and so does reading the newspaper and obvious spelling errors, I want to write to the editor but don't have the time. LOL

I'm not perfect by any means (not at all, Lordy no!) esp. with email and goof up myself typing so fast and then cringe when I see it back, LOL, but *Jeesh* you'd think a newspaper, magazine or something professional would be more careful.

Oh well, not griping just that when I see it, it stands out so obviously. I must be getting old. ha ha ha.... what am I laughing about? I am.

Hugs

Dee ~