Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 Hi, hope this helps. Our daughter had the same problems beginning at one months old, she is now 21 months. She tood Propulsid (which cut down on the vomiting) and zantac. The ONLY formula that worked for her was Alimentum and/or Nutrmaigen. She uses the enzyme Creon 10, but getting enzymes in her at your childs age was the most difficult thing of all. Not until she could eat baby food did the enzymes go right down the hatch unnoticed by her. At any rate, zantac and propulsid have worked wonders for her. She has mostly only GI and sinus problems. Has been hospitalized 14 times, but none recently. Diane (mother of Danny 10yobncf and 21 months wposcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 Hi My name is and my daughter Kiersten was dx at 3 weeks.She was born with intestional blockages.Had surgry and now she is doing well.She just turned 13 months.She is very small for her age veryclose to the 5th percentile. She was on pergestimil for almost 10 months then her cf dr changed her to pedisure ..Its much better . She gets more calories out of it , Where do you live ? How old is your son? Well I have to go now Kiersten is getting into everything ,I hope everything is going well.Feel free to email me anytime mom to Kiersten 13 months with cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 Hi ! My son, Levi is 13 months old. He was also born with intestinal blockage, but didn't require surgery. We live in Ohio. Do you have other children? We have R.C., who is five, and Cheyenne, who is three. Levi is the only one with cf. I know what you mean about the little ones getting into stuff! It gets pretty crazy around here! I plan to homeschool R.C. next year, so it will be all the more hectic! It's great to have you on the list! _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 1999 Report Share Posted March 20, 1999 Hello.to everyone.My name is Tom I have two boys wcf Dean 8 and 5.There both doing pretty well today,but we have had our ups and downs over the last few years.I hope to meet some of you.We live in Philadelphia God bless.Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 1999 Report Share Posted March 21, 1999 hey, i have a similar problem... we live in houston and it is just stifling from about march until november! i have two boys, as well, a 5 year old (grayson) who has cf and a 2 year old (bailey) who does not. anyway, to keep grayson hydrated, i go heavy on water and the sports drinks. he has his own water bottle in the fridge that i keep filled with juice, water, gatorade...whatever. he thinks he is pretty cool with his own " grown- up " bottle, so he hits it pretty hard. also, i make sure the teachers at school let him drink whenever he wants, and even when he doesn't! the best trick is to keep plenty of popscicles around. i freeze any tasty liquid and allow free access to the freezer. **just as important is to replenish the SALT....not just the liquid. i make it a habit to put salt in and on everything (including his milk). take care! deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 1999 Report Share Posted March 21, 1999 Hello Tom and Welcome! My name is and I also have two boys with cf; who will be 6 next Thursday and Cody who is 3. They are both doing excellent - but too had extreme trouble in the past. We live in Phx, AZ (HOT HOT HOT) and starting to have the problems of not getting enough fluids in them again. If you or anyone out there have any good ideas of how to keep these two from getting dehydrated, please let me know. The sports drinks work ok, but I tend to just keep the kids inside when it starts to get hot like this because it seems like I can never keep enough fluids in them. Again, Tom, Welcome to the list! Take care, http://www.mannapages.com/mannakids TJD127@... wrote: > From: TJD127@... > > Hello.to everyone.My name is Tom I have two boys wcf Dean 8 and 5.There > both doing pretty well today,but we have had our ups and downs over the last > few years.I hope to meet some of you.We live in Philadelphia God bless.Thanks > > ------------------------------------------------------------------------ > If you like orange and blue, then you will love our new web site! > http://www.onelist.com > Onelist: ing connections and information exchange > ------------------------------------------------------------------------ > The opinions and information exchanged on this list should in no way be construed as medical advise. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Now kim! what is a long time? 2-3 months? > I have been trying to get pg for what seems to be a long time :-) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Kim congrats was it planned .. either way .. lol. Good luck and all the best. You've been a great inspiration to me in the weight loss field and now in the pregnancy dept! Lyssa post op 6/22/99 Re: Hello! Hello, Welcome to the group !!! My name is Kim D. I had surgery in June of 99. I have been trying to get pg for what seems to be a long time :-) I am going on about 6 weeks. I am following the Atkins plan, which I have been on for about 4 months, I am adding more fruit, veggies and some milk. Good luck!! Kim D. 286/184/pg Quote Link to comment Share on other sites More sharing options...
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