Re: Newbie and help with neuropathy

[Guest guest]

Topamax helps me - The neurologist didn't suggest that? I have a lot of left

sided neuropathy too.

Kay

Newbie and help with neuropathy

Hi All,

I am desperately seeking help for my husband who suffers with Type II

Diabetes. He was diagnosed at the end of last year with 'Diabetic

Amyotrophy'. I believe it is the femoral type. The pain begins in the

hip area, travels down the left side of his left leg, through the

knee and into the foot. He lost about 70% of the strength in his left

leg, although some strength has returned, he still is subject to

falls if he doesn't walk stiff legged. This is turn causes pain in

his knee. Strangely enough this all seemed to start when I was

giving him a foot massage and pressed on the metatarsal area (I

think) of the foot. After that he walked on crutches for two weeks

before he could put any pressure on his foot and it was all downhill

from there.

The pain in his skin - the burning, 'zingers' as he calls them and

overall soreness of the skin is tremendous. We have tried everything

I can find. He has been to a neurologist, a sports bone doctor, had

a series of VAX-D Spine treatments for a slightly bulging disk,

internists, acupuncture and is going to a endocrinologist. He has

had MRI's, leg and full body to rule out any type of cancer.

So now we are truly desparately seeking a way to manage, treat and

hopefully get rid of this pain. He is now taking Vicodin and as with

most things like that, as his resistance to that builds, he wants to

take more than hte prescribed does which concerns me. Celebrex was

tried but did no good.

Sorry for the length of this but I am hopeful that someone out there

can make some suggestions. He has a doctor's appt. tomorrow, so if

someone has a suggestion for medication, therapy etc. to mention, we

will be most grateful.

Thanks in advance,

Kay Forshag

Texas

[Guest guest]

Hi Kay,

I also have Peripheral Neuropathy, and i have the soreness and the

burning and it stings too, like being stung by a bee. Sometimes on the bottoms

of

my feet they burn so bad, i have to look down to make sure that i haven't

stepped on a lit cigarette, cause that is what it feels like! Unbearable. If his

pain isn't that bad yet, i'm afraid it will eventually get that way. If he

doesn't do something soon, use me as an example. If the doctors could have told

me earlier about having it, maybe i wouldn't have had so much damage! If i can

prevent somebody else from having that kind of pain, like i have, then i will,

every chance i get! It is no fun whatsoever! Tell your husband that he has my

sympathy! I was diagnosed in June of this year with diabetes and then they

discovered the Peripheral Neuropathy (duh, i knew it along time ago, before they

did) and they put me on Neurontin, which made me nauseauos and so they put me

on Topamax and it didn't seem to help at first, so they increased it to 25mg

2x a day, and it seems to be helping alittle bit now. Thank God! I still have

the pain, but nothing like it was before. So maybe they can try him on that. I

know everybody is different but maybe it will help him also. I hope so. Have

a great day!

*Barb*

[Guest guest]

Hi Kay, sorry about hubby's troubles. What kind of diet has he started

on? Low carb (we hope)? Low fat? Is he taking meds or insulin for the

bg? These questions are in addition to Vicki's. Does he take any

nutritional supplements?

CarolR

kay_forshag wrote:

> Hi All,

> I am desperately seeking help for my husband who suffers with Type II

> Diabetes. He was diagnosed at the end of last year with 'Diabetic

> Amyotrophy'.

[Guest guest]

kay_forshag wrote:

> Hi All,

> I am desperately seeking help for my husband who suffers with Type II

> Diabetes. He was diagnosed at the end of last year with 'Diabetic

> Amyotrophy'.

I'm not really familiar with diabetic amyotrophy. Sorry.

> The pain in his skin - the burning, 'zingers' as he calls them and

> overall soreness of the skin is tremendous.

Sounds like peripheral neuropathy.

Can you tell us what treatment your husband is getting?

medications? exercise? What type of diet is he following? And most

important, what are his blood glucose readings running? Fasting?

after meals?

Edd

[Guest guest]

Oh cr@p! Another thing to look forward to! Oh, well--I might get struck by

lightning first!

Re: Newbie and help with neuropathy

Hi Kay,

I also have Peripheral Neuropathy, and i have the soreness and the

burning and it stings too, like being stung by a bee. Sometimes on the

bottoms of

my feet they burn so bad, i have to look down to make sure that i haven't

stepped on a lit cigarette, cause that is what it feels like!

[Guest guest]

So that is why my feet late in the day burn so bad...feel like l have an

heatingpad on them all the time.. l stick them in ice cold water to cool them

off...but that do not help much either...and ich out of this world.. thought

maybe l was just imagen it.. but sure make feel not so alone here..

Rita

Re: Newbie and help with neuropathy

Hi Kay,

I also have Peripheral Neuropathy, and i have the soreness and the

burning and it stings too, like being stung by a bee. Sometimes on the

bottoms of

my feet they burn so bad, i have to look down to make sure that i haven't

stepped on a lit cigarette, cause that is what it feels like!

[Guest guest]

Read this for some good information:

http://www.lef.org/protocols/prtcl-082.shtml

--

el (andrea at oro dot net)

" wake now! Discover that YOU are the song that the morning brings... "

[Guest guest]

Thanks for page...realy good information.. saved it on my fav... Rita

Re: Newbie and help with neuropathy

Read this for some good information:

http://www.lef.org/protocols/prtcl-082.shtml

el (andrea at oro dot net)

[Guest guest]

> I am desperately seeking help for my husband who suffers with Type

> II Diabetes. He was diagnosed at the end of last year with

> 'Diabetic Amyotrophy'.

> Sorry for the length of this but I am hopeful that someone out there

> can make some suggestions. He has a doctor's appt. tomorrow, so if

> someone has a suggestion for medication, therapy etc. to mention, we

> will be most grateful.

You and the doctor are going to love this then because it has a lot

of scientific background. First, here's some research:

" We conclude that vasoreactivity is disturbed in experimental

diabetic neuropathy, and is due to a combination of an impairment

of nitric oxide synthase activity with reduced nitric oxide and

increased endothelin effect (normal receptor sensitivity and

increased plasma values) in experimental diabetic neuropathy.

Hyperglycemia is likely to be the mechanism of nitric oxide

synthase inhibition since insulin treatment reversed this

abnormality. " PMID: 7540553 [PubMed - indexed for MEDLINE]

" We conclude that the endothelium-dependent and endothelium-

independent vasodilations are impaired in diabetic patients

predisposed to foot ulceration and that neuropathy is the main

factor associated with this abnormality. Reduced expression of

ecNOS may be a major contributing factor for endothelial

dysfunction. These data provide support for a close association of

neuropathy and microcirculation in the pathogenesis of foot

ulceration. " PMID: 9519754 [PubMed - indexed for MEDLINE]

The research above tells us that vasodilation problems may be at

the root of this issue and highlights the mechanism by which

diabetics get positive results when they simply increase nitric

oxide. Incidentally this also works for hearts (angina), lungs

(asthma) and inflammation.

The celebrated drug Viagra works by increasing nitric oxide, and

NONI does as well. Flavoured Noni juice however is a weak producer;

there is a now a whole-plant Noni extract that is 50 times more

effective at raising nitric oxide levels than the juice.

More information is available if you write me for it.

See also this short paper, Nitric Oxide(NO) and diabetic peripheral

neuropathy (DPN):

http://www.diabetesincontrol.com/burkearchive/Document8.pdf

Second, there's a lot of scientific bacground and decades of

practice using ozone therepy, usually given as limb bagging but

occasionally IV too. The ozone not only kills drug-resistant

ulcers, but it hyperoxygenates and is used to treat neuropathy and

post-herpetic neuralgia.

In fact, I use both ozone steam saunas and ozone limb bagging in my

clinic, and I've saved three diabetic legs in the last two years.

The best way for your doctor to apprise himself of ozone therapy is

to obtain the doctor's training manual " The Use Of Ozone in

Medicine " By Veibahn. Unfortunately most of that text is devoted

to IV therapies. A class in ozone therapy is the offered to doctors

in the USA by Dr. Shallenberger

Duncan Crow

[Guest guest]

How can I learn more about the Nitric Oxide therapy? I have Type II

diabetes...I have diabetic neuropathy. My feet are almost like a

barometer...if I get inflammation in my body they burn and sting

more, when I take antibiotics...ususally amoxicillin is the best...it

clears up for a while until it comes back. When my glucose is

elevated, they burn more.

Eleanor

>

> > I am desperately seeking help for my husband who suffers with Type

> > II Diabetes. He was diagnosed at the end of last year with

> > 'Diabetic Amyotrophy'.

> > Sorry for the length of this but I am hopeful that someone out

there

> > can make some suggestions. He has a doctor's appt. tomorrow, so

if

> > someone has a suggestion for medication, therapy etc. to mention,

we

> > will be most grateful.

>

> You and the doctor are going to love this then because it has a lot

> of scientific background. First, here's some research:

>

> " We conclude that vasoreactivity is disturbed in experimental

> diabetic neuropathy, and is due to a combination of an impairment

> of nitric oxide synthase activity with reduced nitric oxide and

> increased endothelin effect (normal receptor sensitivity and

> increased plasma values) in experimental diabetic neuropathy.

> Hyperglycemia is likely to be the mechanism of nitric oxide

> synthase inhibition since insulin treatment reversed this

> abnormality. " PMID: 7540553 [PubMed - indexed for MEDLINE]

>

> " We conclude that the endothelium-dependent and endothelium-

> independent vasodilations are impaired in diabetic patients

> predisposed to foot ulceration and that neuropathy is the main

> factor associated with this abnormality. Reduced expression of

> ecNOS may be a major contributing factor for endothelial

> dysfunction. These data provide support for a close association of

> neuropathy and microcirculation in the pathogenesis of foot

> ulceration. " PMID: 9519754 [PubMed - indexed for MEDLINE]

>

> The research above tells us that vasodilation problems may be at

> the root of this issue and highlights the mechanism by which

> diabetics get positive results when they simply increase nitric

> oxide. Incidentally this also works for hearts (angina), lungs

> (asthma) and inflammation.

>

> The celebrated drug Viagra works by increasing nitric oxide, and

> NONI does as well. Flavoured Noni juice however is a weak producer;

> there is a now a whole-plant Noni extract that is 50 times more

> effective at raising nitric oxide levels than the juice.

>

> More information is available if you write me for it.

>

> See also this short paper, Nitric Oxide(NO) and diabetic peripheral

> neuropathy (DPN):

> http://www.diabetesincontrol.com/burkearchive/Document8.pdf

>

> Second, there's a lot of scientific bacground and decades of

> practice using ozone therepy, usually given as limb bagging but

> occasionally IV too. The ozone not only kills drug-resistant

> ulcers, but it hyperoxygenates and is used to treat neuropathy and

> post-herpetic neuralgia.

>

> In fact, I use both ozone steam saunas and ozone limb bagging in my

> clinic, and I've saved three diabetic legs in the last two years.

>

> The best way for your doctor to apprise himself of ozone therapy is

> to obtain the doctor's training manual " The Use Of Ozone in

> Medicine " By Veibahn. Unfortunately most of that text is devoted

> to IV therapies. A class in ozone therapy is the offered to doctors

> in the USA by Dr. Shallenberger

>

> Duncan Crow

[Guest guest]

Practically all the nitric oxide information is on this page:

http://members.shaw.ca/duncancrow/enliven_noni.html

>

> How can I learn more about the Nitric Oxide therapy? I have Type II

> diabetes...I have diabetic neuropathy. My feet are almost like a

> barometer...if I get inflammation in my body they burn and sting

> more, when I take antibiotics...ususally amoxicillin is the

> best...it clears up for a while until it comes back. When my

> glucose is elevated, they burn more.

>

> Eleanor