Guest guest Posted May 18, 1999 Report Share Posted May 18, 1999 Tootie, Sometimes I just have bacon w/cheese. I happen to like omelettes and scrambled eggs, but keep in mind, you do not have to eat breakfast food. You can have chicken, steak, sugar free jello, Atkins shake or bar... be creative. I do tend to tire of eggs after a while, but it soon goes away. To me, you cannot beat havings eggs scrambled with heavy cream and cheese, with some country ham or sausage, mmmmmm!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 1999 Report Share Posted October 18, 1999 In a message dated 10/18/99 8:40:00 PM Central Daylight Time, Rlr1999@... writes: << << you will be missed.... Lu >> You already missed her. That letter was telling us she was leaving the group. You are almost as bad as I am. I stopped someones mail then told them I had done it. : ) I am glad I am in good company. >> Kiss it Roy {where the sun don't shine } LOL I figured she would still read her mail for a little while. Some husband you get to feeling better and he makes you leave all your friends... Okay tell me to shut up now... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 1999 Report Share Posted November 8, 1999 In a message dated 11/08/1999 11:08:18 PM Eastern Standard Time, Rlr1999@... writes: << the martha stewart dear santa letter >> I accidently deleted mine can someone re send it to me please Love and Gentle Hugs, Angie http://www.onelist.com/subscribe/SantaLetters http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://members.tripod.com/~autoimmune Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 hazel, how old is your dtr? how did they rule out a physiologic sz disorder? did she have a sleep EEG? at what age did she start having problems? does she have rages? when you wrote how your dtr blames you for everything-and about how she felt you didnt respond the way she wanted after passing out-well THAT rang a bell with me. my dtr , has somatisized since she was 5 or 6-when her symptomsa began(though she was not dx w/ BPD till 9 yo) she will b/c enraged because i didnt notice her " big toe " hurt and she was " limping " -i have no doubt at that moment she felt some kind of emotional pain, that she NEEDed my attention, and that she believed she was " injured " . but one of my many tasks with her, has been to teach her to KNOW what she is feeling and learn to express it in a way that she can get what she needs-and know what is resonable to expect. i KNOW-a huge undertaking. general to group: i found psych testing to be a life saver-i would not have probably stumbled onto my dtr's true dx-for years later-without it. and remember-a good neuropsych +/or psych test battery gives info about poss structural problems within the brain. one caution-it is all too easy, no matter how much we love them, to sometimes have a " hint " of a punitive motive for wanting them in tx or to have testing. i had to be REALLY honest with myself to see this. when my dtr rages, when she emotionally tears at my flesh, it is instinctive to want to defend oneself-BUT if therapy, going to ER, etc is ever(esp if it is consistently) " suggested " in response-or on " the heels " of a conflict-then it makes it so hard for the child to accept-kind of a " go to your room " . i find it much better to TRY to NEVER link therapy to an angry conflict we have. my dtr used to REFUSE to go to tx-we would have such ROWS! twice she turned the streering wheel of the car in front of ongoing traffic! i calmed myself down, then decided i was no longer going to walk her in to therapist's office, wait in waiting room and drive her home-by doing that she feels controlled, maybe even punished by going. now i drop her off-independently she has chosen the day and time and i pick her up after. NOW she is angry if she has to miss an appt. she not only feels grown up and " in charge " -it is at that time that she began to " own " her emotional illnes. ALSO this seeming small change allowed me to open up a dialogue about the fact that she is ill. now this is tricky and i would not recc. it w/o a great deal of thought. i believe it is only b/c she is so young(10) that maybe i have been able to do this-and it was AGAINST the advice of her tx. but it has made the biggest change. she KNOWS that her " mind " plays tricks on her, and she is young enough to consider that my way of seeing things may work out better-if she was truly adolescent i dont think i could do this. I would be the very LAST person she would trust or listen to. some psych say that BPD is like the worst teenager years x 100 that never stop... i dont think this need be true, but i can see how incredibly different my situation in all likelihood will be when my dtr reaches puberty. to me it is like the bond i formed with my father-BEFORE he had become too senile for me to teach or alter what he does/how he feels- he lives with us and will be 98 this summer. with my dtr, BEFORE she become pubescent, i am trying to lay down some groundwork-our moral philosophy, our house rules, very specifics about what we expect from her in the different areas of her life-with the hope, just the HOPE that maybe once she is in the throws of puberty and her illness likely becomes much worse that MAYBE she will remember some of it- maybe she will even think some of it was HER idea and therefore NOT reject it. i hope. i have to-it is such hard work-with such uncertain an outcome-but what else can i do for her-otherwise i think i just couldnt bear the sadness in her eyes, the uncertainty she feels approaching each new situation. i dont think i knew sadness so well, until a couple of weeks ago-my dtr knew she would be starting a camp with new kids. she went into her room and closed the door-she NEVER does this if she is alone-she is terrified of being alone-so i listened at the door-she was practicing meeting people. she is sensitive about being so tiny (4'5 " and 52 lbs-she has growth delay syndrome)-so she was practicing how she would introduce herself, what Q she might ask the other girl(s) to get to know them, and being very hard on herself, calling herself " stupid " when she said something " wrong " . every fiber of her being, all her energy was invested in " getting it right " as if that would give her ANY assurance of not feeling rejected. down deep i know, she knows that her feeling rejected comes from the inside-BUT what can she do-how can she make her life better? but HOW she tries, how she tries. love, rivka Quote Link to comment Share on other sites More sharing options...
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