Re: Please follow your children's progress! (JJ's story...

[Guest guest]

propanegirl@... writes:

JJ has Arnold Chiari Malformation. He began having severe headaches and they

planned a brain decompression surgery for February of 2003. They

has Arnold Chairi Malformation also.

Does JJ have any of the other " syndromes " that often go hand in hand with

the Chairi? She was decompressed. Speeech and eating were and continue to be a

big problem for her.

Dana

`s mom 4-ACC, SOD, HYDRO(SHUNTED), CHIARI(DECOMPRESSED),

SBO,GTUBE,SEIZURES,CDLS..and a VERY smart cookie!!!

ALSO, ALI 6, MIKE 15,JOHN 17, AND AMANDA 18

WIFE TO KEVIN-who is battling cancer

[Guest guest]

Hi Dana,

He quit eating and talking at the same time. He

didn't eat solid food for four months. We put him on

Pediasure. He still hasn't regained all of his motor

skills that he lost prior to decompression and of

course, his speech is still behind but he is now

talking alot more than he used to.

May you have a blessed holiday,

Kim - JJ's mom

--- DC831962@... wrote:

> propanegirl@... writes:

> JJ has Arnold Chiari Malformation. He began having

> severe headaches and they

> planned a brain decompression surgery for February

> of 2003. They

>

> has Arnold Chairi Malformation also.

> Does JJ have any of the other " syndromes " that

> often go hand in hand with

> the Chairi? She was decompressed. Speeech and eating

> were and continue to be a big problem for her.

> Dana

>

>

> `s mom 4-ACC, SOD, HYDRO(SHUNTED),

> CHIARI(DECOMPRESSED),

> SBO,GTUBE,SEIZURES,CDLS..and a VERY smart cookie!!!

> ALSO, ALI 6, MIKE 15,JOHN 17, AND AMANDA 18

> WIFE TO KEVIN-who is battling cancer