Re: Happy Holidays - Special Families Guide Newsletter

December 24, 2003

I couldn't watch the videos because I have a Mac, however thanks for

posting this. This evening we made an attempt to take Benny to

church--the 5 pm children's service. Although it was much shorter than

the usual service, it was extremely difficult for him and for us.

Benny gets very upset usually when we sing at home, although he has

shown some signs the past six weeks of tolerating it more. However,

everybody singing at church was just too much. With one exception:

when everybody sang the long " Gloooooooooria " in " Angels We have heard

on High, " he actually sang along with it wordlessly, with his mouth

wide open in an " Ahhhhh " . Which confirms the idea that what really

bothers him is that everybody else can sing with the music, with words,

and he can't. He has, however, been doing some humming this week.

Our Rector was very good with him, he held him on his lap, sitting on

the floor, while the other kids presented the Christmas skit. And

intervened several other times. Our congregation is very accepting of

hyper kids...however we still had to go in and out and the candlelit

Silent Night was too much...I had to take a candle to Benny in the

other room because everybody was singing again. He did like the

candle, though.

He has made so much progress but there is still a long way to go. And

it was very tough on his father, who always wanted to be invisible as a

child in church because of being a PK--and then is very visible trying

to take care of a very visible and audible kid. It really is hard

sometimes. My son agreed to come with me tonight because I was going

to try to take Benny myself but have been having too many chest pains

and palpitations, and wasn't sure I could do it.

Peace,

Kathy E. aka grandma

On Dec 24, 2003, at 11:55 AM, M. wrote:

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