Re: constipation/Prayer request for -please

[Guest guest]

In a message dated 12/16/2003 5:19:05 PM Eastern Standard Time,

kiddietalk@... writes:

I just hope it's all a misdiagnosis -I pray is going to be fine!

Please pray for

Sending good thoughts to and .

Stay positive.

Dana

`s mom 4-ACC, SOD, HYDRO(SHUNTED), CHIARI(DECOMPRESSED),

SBO,GTUBE,SEIZURES,CDLS..and a VERY smart cookie!!!

ALSO, ALI 6, MIKE 15,JOHN 17, AND AMANDA 18

WIFE TO KEVIN-who is battling cancer

[Guest guest]

Hi everyone.

I have some very sad news and a prayer request for 's son

. She asked me to post this for him as this is a very hard

time and she is understandably devastated. She is taking for a second

opinion on Tuesday -however there are very few that are

knowledgeable about the condition is diagnosed with. In fact

the new testing procedure I posted about was developed by 's

doctor -and had that test which showed flat line for movement

in the gut. The test itself was just horrible.

is going to call the researcher I posted the information about

yesterday -and is appreciative for anyone that has any support or

advice for her and .

has read all the research -and there are quite a few children

that die from the diagnosis she was given for , and told me

she just can't research it like she did apraxia. She can't stop

crying....and that's not the scariest part. told me to let

everyone know that was tested for another condition which

they fear may have caused the one he was diagnosed with (she

doesn't want anyone sending her info on it just yet unless it's

positive because she can't even look at it) If tests come

back positive -it has no cure. It's a progressive disease of the

gut.

said to me either way it's bad -they are both grave diagnosis

but of course the second one we can't accept it will be. Either way

is going in for the surgery which will help prevent further

blockage -and she will need to inject a liquid into the plastic tube

in his stomach each day.

and Tanner went to preschool together -and Tanner still

remembers him. He's a cute little boy who is doing so well in

school.

I was crying as said to me " He's come so far and is doing so

well with the apraxia, sensory issues and all -and now this...it's

just not fair " It's not fair. They won't find out the results for

the second condition until sometime next week ...right before the

holidays.

I just hope it's all a misdiagnosis -I pray is going to be fine!

Please pray for .

=====

[Guest guest]

They definitely have our prayers. It is also good that she has you, for

tremendous support. Thank you. Carolyn

[Guest guest]

Poor . Prayers being sent his way.