Guest guest Posted August 27, 2001 Report Share Posted August 27, 2001 Dear Bob, You are certainly in my prayers tonight. Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2001 Report Share Posted August 27, 2001 my gawd is right Bob. Thats not pretty news, but talk to your dr, its amzing you have no symptoms you not a walking dead man if your still here. scary, very. Terrifying just to read, but seewht dr says, let us know. you work full you say? you must have a lot energy! Bob wrote: Today I had an MRI….The technician pulled me into the room and made sure I had an appointment to see a Dr.she showed me a bunch of back scans.I have at least 4 lemon sized tumors on the spine. 3 of them are at the base of my skull, there are also 100 smaller ones.I'm a walking dead man….She told me the only reason she didn’t admit me is because I’m showing no bad symptoms yet. Bob the Wholeone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2001 Report Share Posted August 27, 2001 Oh Bob...I am so sorry. I am saying a prayer for you and please attempt to keep that positive attitude of yours. And concentrate on your healing... Hugs, Carol Bob wrote: ..I have at least 4 lemon sized tumors on the spine. 3 of them are at the base of my skull, there are also 100 smaller ones. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2001 Report Share Posted August 27, 2001 I'm sorry to read this too, Bob, it is everyone's nightmare. perhaps it is that healing energy that keeps it all at bay. prayers for you. Rosemary on 28/8/01 11:50 AM, Henrion at cinnyd@... wrote: > my gawd is right Bob. Thats not pretty news, but talk to your dr, its > amzing you have no symptoms you not a walking dead man if your still > here. scary, very. Terrifying just to read, but seewht dr says, let us > know. you work full you say? you must have a lot energy! > > Bob wrote: > >> Today I had an MRI….The technician pulled me into the room and made >> sure I had an appointment to see a Dr.she showed me a bunch of back >> scans.I have at least 4 lemon sized tumors on the spine. 3 of them are >> at the base of my skull, there are also 100 smaller ones.I'm a walking >> dead man….She told me the only reason she didn’t admit me is because >> I’m showing no bad symptoms yet. >> >> Bob the Wholeone >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 I think I posted this here before. I survived My very first tumor, it was a monster A.N. It was the size of a large Florida grapefruit. Took up 1/3rd of my brain cavity. After two surgeries and 23 total hours of surgery, meningitis and staff infection. That was 18 years ago… I think I'm going to go back to the hospital I was at to see if I can get a hold of my CT’s. could be very interesting.. I do have to say talking to this group about my problems has been helpful. I’m glad you guys are around… Bob the Wholeone Take care Bob Dont be frightenewd because fear blocks the energy. Without a doubt:) thats whats keeping you here:) Same with me, my MRIs are unreal. To see them you would think i was a corpse:) I have used that phrase myself " the walking dead woman " tho. I really relate to waiting for the shoe to drop feeling:( and if this symtom is the start of the end:(. BUTTTTT!!!! We are still breathing!! Like Fluffy says:) we are still here:) I dont think we are going anywhere for a very long time. Please take care~~Lowi:) ----- Original Message ----- From: Bob To: NF2_Crewyahoogroups (DOT) Com ; Campfire_religion ; Sharon Plett Sent: Monday, August 27, 2001 8:04 PM Subject: Oh My Gawd Today I had an MRI…. The technician pulled me into the room and made sure I had an appointment to see a Dr. she showed me a bunch of back scans. I have at least 4 lemon sized tumors on the spine. 3 of them are at the base of my skull, there are also 100 smaller ones. I'm a walking dead man…. She told me the only reason she didn’t admit me is because I’m showing no bad symptoms yet. Bob the Wholeone Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 You had better be still breathing - WE have a date next year!!!!! Bri Lori Said BUTTTTT!!!! We are still breathing!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 Dear Bob, I know how frightening that MRI must have been. The technician was reckless to share this with you in this way. Having no symptoms is a good sign. I remember a neuro once saying an MRI of a patient lit up like an xmas tree, and it killed him to only remove one tumor during surgery, but he wasn't going to touch the others, even though he could see them clear as day if the patient was symptomless. Make sure you're seen by someone with extensive experience and the more NF2 the better, because those neurosurgeons don't rush to operate, knowing the history of the disease. I would suggest you contact Fred Epstein at Beth Israel NYC as he is one of if not the top spinal surgeon in the world. I'm not near my address book - anyone got his email for Bob? Barbara lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 demanding man:) Breathing now?? You have a list of requirements Bri?? I cant wait to get there, it will be a blast to meet you~~Lowi:) Re: Oh My Gawd You had better be still breathing - WE have a date next year!!!!! Bri Lori Said BUTTTTT!!!! We are still breathing!! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.