1st Neuro Dev Ped Appt-HATED IT!!

[Guest guest]

I am fairly new to the board. Our son, 2.4, has

been " dx " by an SLP as having Oral & Verbal Apraxia,

possible limb. I believe that this is what he has. So

we embarked on the journey to " fix the problem " .

Our regular ped referred us to the neuro dev ped.

We hated her. Both my husband & I got the same vibes

from her. She wasn't as thorough with her evaluation

as the SLP was. She told us that since he wasn't

verbal with her then she couldn't dx him as apraxic.

I wanted to tell her " No he's not verbal, that's

why we are here " . She said to bring him back in about

6-12 months when he was more verbal. Not gonna happen.

What I was looking for was a dx from a doctor so that

we could get private speech therapy-insurance has to

have a dx from a dr in order for them to pay-if they

will. Go figure!!!

has been seeing an SLP and an infant/toddler

instructor throught the school system. His SLP

suggests that he have therapy 3x's a week. She has to

see him once and if she has any cancellations then she

could see him then. She is very busy. She suggests

that we have him tested through the local hospital

speech therapy center, and then they can see him when

she can't.

Here is my question to everyone. is only going

to be in the program he is currently in now until he

is three-which he will turn 3 in July, then he goes to

regular school therapy 3x's a week.

Should I try to seek private therapy and hope that

ins. will pay, or should I just hang on to his SLP he

already has now-that is free, and just get as much

help from her so that I can help him at home myself.

I already have started trying some signing-which is

NOT easy. And I also do some of the things that she

does with him. I am doing anything that I can to help

him. We both cry everyday. Him because of the

frustration of not being able to communicate, and me

because I want to take this away from him, what child

deserves to have any medical problems??? I went

through the same feelings when our older son was dx

woth cancer. It makes you feel helpless.

I could go on & on, but I won't.

Please give me any advice since most of you have been

through this already.

Thanks a million,

Brock