Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 Thanks Traci Im new to this site and am not familar with all the jargon yet! please forgive my ignorance, but what is 'hypotonia'? Thanks Jane. [ ] Re: stimulation > " > Hello. Can anyone help with this question? I have noticed my 5 > year old daughter who has dyspraxia needs so much more stimulation > than my other children, this can be physical,swimming,park ect. Or > verbal, reading ,non stop talking (ME) It seems that if she does not > use all her sense's much more intensly she becomes much quieter and > withdrawn. " > > My daughter is like this also. I think it is part of sensory > integration dysfunction (DSI). My daughter is hyposensitive. She > needs much more input to function better. She also has hypotonia and > apraxia. Not at all out of the ordinary to see a child with apraxia > (dyspraxia), hypotonia and DSI. > > Traci, Hawaii Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 >>>>>>>Im new to this site and am not familar with all the jargon yet! please forgive my ignorance, but what is 'hypotonia'? Thanks Jane.<<<<<< Decreased muscle tone. The child will feel floppy - like a rag doll. She may prefer to sit in a " w " position to stabalize herself. She may slouch while sitting. She may tire easily and need to be carried or in a stroller longer than other children. May not be able to play as hard or as long as other children her age. May look uncoordinated or off balance while walking due to the low tone. My daughter also has hyperextended joints and was a late walker due her mild hypotonia. Traci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 Traci, thanks again for more info,this time on hypotonia. This info could be a mirror image of my daughter! It makes me so angry that for 2 years i had to make " excuses " for my daughters tiredness ect.It so annoying that so called professionals in the UK have never mentioned this to me,thank goodness for a mothers instinct and the fact ive never believed she is just being lazy or i am spoiling her ect. Thanks once again Jane. RE: [ ] Re: stimulation > >>>>>>>Im new to this site and am not familar with all the jargon > yet! please forgive my ignorance, but what is 'hypotonia'? Thanks > Jane.<<<<<< > > Decreased muscle tone. The child will feel floppy - like a rag doll. She may > prefer to sit in a " w " position to stabalize herself. She may slouch while > sitting. She may tire easily and need to be carried or in a stroller longer > than other children. May not be able to play as hard or as long as other > children her age. May look uncoordinated or off balance while walking due to > the low tone. My daughter also has hyperextended joints and was a late > walker due her mild hypotonia. > > Traci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 , may I ask how long you were deaf. You sound like you have two implants is that correct. I was implanted in Feb and activated March 27,2006, this week will be my 3 month when I go in this week they are going to start me on sentences for my booth test, this is the first time they have done that, I've been on words since my second week after activated. I go each week for mapping, I've done better than they expected, but for some reason this past week at home, I don't seem to be picking up the words well enough to understand them. I don't know what is causing this, I don't know if it's the different words she has me on this week or if there is something wrong with the settings. It is very frustrating but I keep at it even when I want to just throw everything and cry I don't. I have a very patience boy friend who helps me with this, if he weren't so patience I don't know what I'd do. I think I forgot to mention that I was deaf for 43 years before this implant. Thank you Patsy Freedom Implanted Feb 24, 2006 Activated March 27, 2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Thank you , I'll be sure to do that.................................. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 While I agree a number of factors play into how a person benefits from a CI, do we need to be careful in talking about this factor, that being the effort a person puts into learning to use the CI? My 3G sentence discrimination after 6 years is in the low 70% whereas the Freedom's is in the high 90s after months of its use. When one talks about the effort a person puts into learning to use the CI as a factor in CI outcome, it makes me feel as if I am a failure with the 3G. As a matter of fact, I have had to put less effort into the Freedom compared to the 3G and yet I am doing better with the Freedom. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Patsy, My hearing loss was suspected when I was slow to talk and diagnosed at age 8. Grew up speech reading. Ten years later I received my first set of hearing aids and could discriminate speech. Yes, I have 2 CIs. Sometimes we are fitted with a MAPping that does not work for us or takes longer for us to adapt, so when you return, be sure to tell your audie your frustrating experience. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 , Effort is only one factor. There are so many others which also come into play. While it is true that a person who works harder at something may do better under the same circumstances as someone who is lazy, if the lazy person has more positive things going for them to begin with, they could conceivably do better. i.e. I had 2 best friends in HS who always got great grades...... basically the same. One worked so very hard and the other didn't. The one who worked harder had average intelligence while the other was of genius caliber. They both excelled however. If one person has a ci and has many factors against their doing well but works hard at it, they could conceiveably do better than the person who has everything going for them but doesn't practice. Also, sometimes, the factors are such that no matter how hard a person tries, they may never be able to achieve what they would like to. We all must be realistic when it comes to those kinds of challenges. You know yourself best and perhaps your 3G ear had more challenges (which were not of your making) and that is why you could achieve more from the Freedom ear. If you had the 3G in each ear, there is a good chance that you would have had the same outcome with your ability to understand, as you do now. As I have said before, measure you achievements against yourself and your own challenges in order to achieve satisfaction. Happy Hearing! Carol Boca Raton, FL N24C 3G left ear -12/11/01 N Freedom- right ear- implanted 3/01/06 activated 4/6/06 Re: Re: stimulation While I agree a number of factors play into how a person benefits from a CI, do we need to be careful in talking about this factor, that being the effort a person puts into learning to use the CI? My 3G sentence discrimination after 6 years is in the low 70% whereas the Freedom's is in the high 90s after months of its use. When one talks about the effort a person puts into learning to use the CI as a factor in CI outcome, it makes me feel as if I am a failure with the 3G. As a matter of fact, I have had to put less effort into the Freedom compared to the 3G and yet I am doing better with the Freedom. Quote Link to comment Share on other sites More sharing options...
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