Guest guest Posted February 13, 2000 Report Share Posted February 13, 2000 Sheri, Could you explain what you mean about applying for Medigap programs and being turned down by Blue Cross and Blue Shield's HMO program? I am about to leave private insurance and move to Medicare (will have been on disability two years this April) and was planning to pick up a Medigap plan. What exactly was the problem you encountered in doing this yourself? best, Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2000 Report Share Posted February 16, 2000 Hi - I'm also thinking of going on Medicare - they have already sent me a card!! In Calif there are only two medigap policies available, the cheapest is through Blue Cross and is $270./month!! Considerably more expensive for those of us under 65 as they know we are disabled and expensive!! If you do the HMO option, medigap is around $70/month. I presently pay $140/month with a rather high deductible so don't know if Medicare is worth it! I'm also new to the list and really appreciate the Cheney 02 and Dr. See articles. I came in through the back door with a cellular respiratory defect (muscle bx showed defects in complexes I,II-III of the respiratory chain in the electron transport chain) and eventually from too much oxidative stress ( I was heavy into biking!!) my immune system went awry and I started having problems with infections and longer and longer recovery times until 1 and 1/2 years ago I had a yellow fever vaccination (was planning a trip to Peru!!) did a weekend ride in the mountains, and basically , haven't seen the light of day since!! Recently started ganciclovir (am pos for stealth virus), immunopro, take tons of coQ10, and other vits - and occ gamma glob. Anyway, plan to shortly get an order for 02 and try that rebreather mask (my blood is alkalotic!) - my very first symptoms 10 to 15 years ago happened after donating a unit of blood - I suddenly had to go home with this (now familiar!) total wipeout exhaustion. After that, occasionally, on rides, someone would have to come back for me in a car as I would just collapse - no power bars, bananas, goo, gatorade,etc would work - but, being in super denial and in love with my bike and the endorphins I kept pushing ( a bit like an alcoholic and blackouts! ) until there was nothing left to push!! I was convinced a year or so ago I had mycoplasma but Blood was neg at Nicholson's Lab but in the meantine had been on erythromicin for a month and it really helped for awhile. In fact any antibiotic or antiviral seems to help for awhile. Things that do not work::airplanes, alcohol, exercise, nitrous oxide (in dental offices - the last time I had it I called up the hygenist and practically accused her of putting poison in the gas!! - nitrous oxide is a known problem for the mitochondrial myopathy folks) Anyway, you can understand why I'm excited about the 02 stuff. Deb Re: Digest Number 682 > From: esp <esp@...> > > Sheri, > Could you explain what you mean about applying for Medigap programs and > being turned down by Blue Cross and Blue Shield's HMO program? I am > about to leave private insurance and move to Medicare (will have been on > disability two years this April) and was planning to pick up a Medigap > plan. What exactly was the problem you encountered in doing this > yourself? best, Beth > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2000 Report Share Posted February 17, 2000 Deb I am also a bike --lover & still hope to get back on it one day. Yes get on Medicare, you can keep it if you go make to work and it seem sure that a drug benefit will be added, if you get into an HMO type plan make sure there are CFS friendly docs in that HMO. steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2000 Report Share Posted February 17, 2000 Deb, I so appreciate your info here. I called the guy back who told me I probably wouldn't qualify for the " I " program (with pharmacy coverage) but he'd have his agent look into it. (After I read your post). I am so worn out with this insurance battle now after fighting three grievances with HMO's, that all the help I can get is wonderful. I thank you for this. I just called Blue Cross who said again I couldn't get medigap. Yes, more problems about being under 65. But I've learned that many in social security and medicare don't know what they're talking about, so to make the process even longer, I always have to verify the " facts " I get by talking to more than one person. I travel between departments in the SS and Medicare system because the front-line phone answering people just aren't experts and don't always take time to send you to the right department. Whew. What insurance coverage do you have now and is it permanent if you want it to be? I'd be agreeing with you about Medicare being worth it if you have access to CFS Conscious doctors, prescription and testing coverage that is pretty broad. We get some weird tests that just aren't covered. The information that Al gave someone about getting financial breaks through drug companies is a very hot tip for me. I feel like I have so far to go before I finally get the right insurance set up here in California. As soon as I feel familiar with how to call these companies and their names, etc. guess I'll start that long process because it does sound like a really outstanding option. If it's needs based, I may be in trouble because I'm far from rich but not poverty level with my husband's income--self employed and without insurance himself because we can't afford it. As for Cheney, some of his direct patients are having a conversation online right now. We had a huge amount of info come through which Carol Sieverling in our group generously taped and transcribed for us with Cheney's permission. You can find tons of info in our archives, but I don't know the digest numbers. Also good sites for Cheney's articles, which if you don't get from others, I'll try to find again. What stealth virus have you positive for? Are you taking the Ganciclovir IV? How do you feel? Have you been tested for mycoplasmas and other antibiotic receptive infections? I had some immunizations that really crashed me and started new symptoms, too. As for the giving of blood--with low blood volume, which you probably had already, that could be very hard on your illness. Welcome! Sheri > > From: " Deb O'Brien " <Debob@...> > > Hi - I'm also thinking of going on Medicare - they have already sent me a > card!! In Calif there are only two medigap policies available, the cheapest > is through Blue Cross and is $270./month!! Considerably more expensive for > those of us under 65 as they know we are disabled and expensive!! If you do > the HMO option, medigap is around $70/month. I presently pay $140/month > with a rather high deductible so don't know if Medicare is worth it! > > I'm also new to the list and really appreciate the Cheney 02 and Dr. See > articles. I came in through the back door with a cellular respiratory > defect (muscle bx showed defects in complexes I,II-III of the respiratory > chain in the electron transport chain) and eventually from too much > oxidative stress ( I was heavy into biking!!) my immune system went awry > and I started having problems with infections and longer and longer > recovery times until 1 and 1/2 years ago I had a yellow fever vaccination > (was planning a trip to Peru!!) did a weekend ride in the mountains, and > basically , haven't seen the light of day since!! Recently started > ganciclovir (am pos for stealth virus), immunopro, take tons of coQ10, and > other vits - and occ gamma glob. Anyway, plan to shortly get an order for > 02 and try that rebreather mask (my blood is alkalotic!) - my very first > symptoms 10 to 15 years ago happened after donating a unit of blood - I > suddenly had to go home with this (now familiar!) total wipeout exhaustion. > After that, occasionally, on rides, someone would have to come back for me > in a car as I would just collapse - no power bars, bananas, goo, > gatorade,etc would work - but, being in super denial and in love with my > bike and the endorphins I kept pushing ( a bit like an alcoholic and > blackouts! ) until there was nothing left to push!! I was convinced a year > or so ago I had mycoplasma but Blood was neg at Nicholson's Lab but in the > meantine had been on erythromicin for a month and it really helped for > awhile. In fact any antibiotic or antiviral seems to help for awhile. > Things that do not work::airplanes, alcohol, exercise, nitrous oxide (in > dental offices - the last time I had it I called up the hygenist and > practically accused her of putting poison in the gas!! - nitrous oxide is a > known problem for the mitochondrial myopathy folks) Anyway, you can > understand why I'm excited about the 02 stuff. Deb > ----- Original Message ----- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 In a message dated 1/4/01 5:54:37 PM Central Standard Time, egroups writes: << e: Thu, 04 Jan 2001 11:55:51 -0000 From: cmontana@... Subject: Surgery... etc Hi, all. It's not Sunday, but to those of you who pray, please pray for me as I go in to have my knee replacement surgery tomorrow morning. I'll be off the forum from tomorrow for about 10 days, but I'll be thinking about you. These are days of high anxiety, as you might imagine. >> I wish you would get this before you go in. I'm thinking of you with a prayer. Think of me too. I have to have this done this month. My broken leg hasn't healed and the break is so close to the knee they have to do both. My knee is shot. I have also been strength and conditioning building at physical therapy. It is kind of weird to be trying to walk on a broken leg but I'm just along for the ride. I'll do about anything to get out of the wheelchair and back to the land of cars and stores etc. Good luck!!! Carolyn McClurg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 In a message dated 1/5/2001 5:38:44 AM Eastern Standard Time, antriumlass@... writes: << I wish you would get this before you go in. I'm thinking of you with a prayer. Think of me too. I have to have this done this month. My broken leg hasn't healed and the break is so close to the knee they have to do both. My knee is shot. I have also been strength and conditioning building at physical therapy. It is kind of weird to be trying to walk on a broken leg but I'm just along for the ride. I'll do about anything to get out of the wheelchair and back to the land of cars and stores etc. Good luck!!! Carolyn McClurg >> I want to wish both Carolyns the best of luck. Have faith. I'll be praying for both of you. I sincerely hope both of you will be walking soon with little or no help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 Donna, Thank you so much for the information that you gave me. I am so thankful for this list. When I'm totally overwhelmed, all I have to do is ask and it's right there. What a blessing! Josiah is 9 years old. I don't know if he's " high " functioning or not. When he was evaluated he was determined to be mild to severe. I know he could do so much more. There is so much life in him. I'll see what I can find out and do for him. I never even thought of contacting the Autism group here. Thanks again, Donna. Lesa ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 > . Of course, many of them > came from Willard, so they have reason to be. :-( Hi, Everyone........Gail.......this is my home area!!! My dad and uncle both > as power plant employees. My uncle got TB working > there, too. I use to feel soooooooo sad for the people there, watching > them just sit and rock in the chairs outside. No, I didn't hear about the > pipe bombs at your school, either. Perhaps, they should reopen Willard!!! > .........thanks for the reply back. Glad your Dad is home > and best wishes for Sheena, too. Take care, Everyone. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 In a message dated 2/15/01 8:26:40 AM Eastern Standard Time, will.obey@... writes: << I'll see what I can find out and do for him. I never even thought of contacting the Autism group here. Thanks again, Donna. Lesa >> You're very welcome Lesa. Let us know how you make out. donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 In a message dated 2/15/01 1:56:56 PM Eastern Standard Time, mfroof@... writes: << Hi, Everyone........Gail.......this is my home area!!! My dad and uncle both > as power plant employees. My uncle got TB working > there, too. I use to feel soooooooo sad for the people there, watching > them just sit and rock in the chairs outside. No, I didn't hear about the > pipe bombs at your school, either. Perhaps, they should reopen Willard!!! >> Hi Margaret!!! How is Gareth doing? Ready to move yet? If they reopened Willard, it would be filled in a week with the crackpots around here! LOL I think we have more than our share here. LOL Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 In a message dated 7/8/01 1:03:45 AM, writes: >a little over a year ago, a close friend just about left us, > >conjestive heart failure, with all the problem areas that go with it. > >he was sent to a doctor in Santa Barbara, Ca, and she straightened > >his life style out, a diet that worked, and my friend is healthier > >than i've ever known him to be. still with problems but a lot better. > >it was doctor schwarzbein. i bought her book and both cook books. For those of you who readily dismissed the Suzanne Somers diet, it is based on Dr. Schwarzbein's work. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 You wrote: Cheryl, I hope you didn't take offence at my last message..... I was only joking.... wish I could live in Hawaii.... just for the scenery. Regards * * * * * * * Oh, no, none taken. Working with 30 - 40 guys on a daily basis has really toughened my skin. I've had the " powers that be " in our organization say " Cheryl has the hide of a rhinoceros and the will of iron with a poker face to boot!! " I was raised by a WW2 Chief Warrant Officer in the Navy (dad) in military fashion, so that was my first introduction to becoming the Woman Warrior I am today. Aloha, CB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 Hi All.... this is from Pearland, Texas. It's been ages since I " ve been on, and I wish everyone many blessings! My sister-in-law is getting her degree in Special Ed. (My brother's an Aspie, so his their son). She has emailed me asking if I have come across any bad Autism websites that promote incorrect information ...has anyone run across anything anywhere that might be of help to her? My son is Autistic and non-verbal, so I know of tons of sites...but thankfully no crummy ones! Anyone have any suggestions? Thanks all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Friday: I see how concerned you are, try not to be too upset. I was an ER nurse for 13 years and have been a rehab nurse for the last 13 years. The naltrexone 25 mg won't hurt him, he may be nauseous if he is taking narcotics. The lower dose at night may not cause nausea at all. He probably should wait until tomorrow night when his stomach has settled to take the lower dose. If he is older, he should start on maybe 1.5 mg for a few days and work up with the dosage. Naltrexone when given for other reasons is typically given in 50 mg doses so this man did not receive a harmful dosage of the medication. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Friday: Can you find out what medications the man is on? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 thankyou Vicki (like talking to myself - Vicki is my other name, lol) I am ringing them tomorrow as its abit late now to call. I will find out medication. I was going to also warn them about alcohol and codiene? is that all i have to say or is there more i should say>? I've already told my father to tell him to take 4.5 from now on (and i was going to warn about stiffness ad spasms and if on baclofen or any injectable CRABs too) except copaxone, any more advise? I appreciate professional view from a nurse especially - as we say here " NURSES - CANT LIVE WITHOUT EM " (its a bumper bar sticker on cars, lol) Friday > Friday: > > Can you find out what medications the man is on? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 Tomato and potato sprouts are deadly poisonous. There may be other sprouts that are poisonous but I don't know them...Sid There are 8 messages in this issue. Topics in this digest: 1. What should not be sprouted? From: " Hazel " 2. RE: What should not be sprouted? From: " ~Deanna " 3. Re: What should not be sprouted? From: Bill Dickhaus 4. Re: What should not be sprouted? From: 5. RE: What should not be sprouted? From: " ~Deanna " 6. Re: What should not be sprouted? From: " Denier " 7. Re: What should not be sprouted? From: " sheila " 8. Re: What should not be sprouted? From: Marilyn Kefirlady ________________________________________________________________________ ________________________________________________________________________ Message: 1 Date: Wed, 28 Sep 2005 15:12:28 -0000 From: " Hazel " Subject: What should not be sprouted? Hi I asked this question before but didnt get any responses. Is there anything that shouldnt be sprouted? I dont want to poison the kids. Can you sprout kidney beans, black beans, aduki beans? Thanks Hazel ________________________________________________________________________ ________________________________________________________________________ Message: 2 Date: Wed, 28 Sep 2005 11:04:25 -0500 From: " ~Deanna " Subject: RE: What should not be sprouted? I'm not the best one to ask, but I am pretty sure kidney beans are a no-no. Black beans may be okay...it seems like I have seen black (turtle?) beans for sale for sprouting. And, I can tell you from experience that adzuki beans are 100% okay to sprout. Garbanzo beans are great when sprouted, as are several varieties of peas (just not black-eyed peas, from what I have heard). Lentils are wonderful... Hope this helps, a little, at least until somebody more knowledgeable decides to respond. :-) ~Deanna What should not be sprouted? Hi I asked this question before but didnt get any responses. Is there anything that shouldnt be sprouted? I dont want to poison the kids. Can you sprout kidney beans, black beans, aduki beans? Thanks Hazel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 Not to dispute what you are saying, but on occasion some tomatoes I have purchased from the supermarket have had seeds inside that have begun to sprout... I didn't think anything about it really, and ate the tomato (including seeds), and I'm still alive to talk about it. But, I'm sure they should not intentionally be sprouted and eaten; they wouldn't taste good anyway. ~Deanna Re: Digest Number 682 Tomato and potato sprouts are deadly poisonous. There may be other sprouts that are poisonous but I don't know them...Sid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 Interestingly, these are part of the nightshade family. Perhaps the others in the family are also poisonous. Diane Sid wrote: >Tomato and potato sprouts are deadly poisonous. There may be other sprouts that are poisonous but I don't know them...Sid > > >There are 8 messages in this issue. > >Topics in this digest: > >1. What should not be sprouted? >From: " Hazel " >2. RE: What should not be sprouted? >From: " ~Deanna " >3. Re: What should not be sprouted? >From: Bill Dickhaus >4. Re: What should not be sprouted? >From: >5. RE: What should not be sprouted? >From: " ~Deanna " >6. Re: What should not be sprouted? >From: " Denier " >7. Re: What should not be sprouted? >From: " sheila " >8. Re: What should not be sprouted? >From: Marilyn Kefirlady > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 1 >Date: Wed, 28 Sep 2005 15:12:28 -0000 >From: " Hazel " >Subject: What should not be sprouted? > >Hi >I asked this question before but didnt get any responses. Is there >anything that shouldnt be sprouted? I dont want to poison the kids. >Can you sprout kidney beans, black beans, aduki beans? >Thanks >Hazel > > > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 2 >Date: Wed, 28 Sep 2005 11:04:25 -0500 >From: " ~Deanna " >Subject: RE: What should not be sprouted? > >I'm not the best one to ask, but I am pretty sure kidney beans are a >no-no. Black beans may be okay...it seems like I have seen black >(turtle?) beans for sale for sprouting. And, I can tell you from >experience that adzuki beans are 100% okay to sprout. Garbanzo beans >are great when sprouted, as are several varieties of peas (just not >black-eyed peas, from what I have heard). Lentils are wonderful... >Hope this helps, a little, at least until somebody more knowledgeable >decides to respond. :-) > >~Deanna > > > > > What should not be sprouted? > > >Hi >I asked this question before but didnt get any responses. Is there >anything that shouldnt be sprouted? I dont want to poison the kids. >Can you sprout kidney beans, black beans, aduki beans? >Thanks >Hazel > > > > > Quote Link to comment Share on other sites More sharing options...
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