Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Hi Domenique- My daughter is being tested for Auditory Neuropathy next week. We doubt that she has it, but are re-doing her audiology battery to be sure. When diagnosing this, audiologists look for nromal OE tests, with abnormal or absent Auditory Brainstem Response. (ABR) My daughter's last ABR was normal, from Mass Eye and Ear. We are getting a second opinion from Children's Hospital in Boston, just to be sure. We do feel that she has some form of Central Auditory Processing issue, but doubt that she has any form of more severe hearing loss, such as in Auditory Neuropathy. She is only 23 months old, so it is impossible to test her for CAPD at this point, or so I'm told. I'm not looking forward to the upcoming test- she will have to be sedated, and needs to be sleep and food deprived for many hours prior to testing- NO fun for any of us!! I'm interested in hearing the reasons you suspect Auditory Neuropathy in your child? Has your child had any hearing testing done yet? -Beth, mother of Casey, 23 months old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Hi Domenique-- I will have to spend more time on that website, thanks for sharing it. What caught my eye was the title Auditory Neuropathy which made me think of an article called Nutritional Neuropathy which I found when I was looking for info relating sensory types of issues (such as over sensitivity of the hands and feet--resembles glove and stocking parasthesia). I am wondering if perhaps there is a link between auditory neuropathy and these other kinds of neuropathies. The article is the third one below. I am putting two other articles that came up when I googled auditory nutritional neuropathy. So perhaps there is something that can be " helped " other than looking at it strictly from a therapy perspective. And yes, the 1st percentile is, as you know, not good. That's a pretty simple test for most of us-- shave shade (same words or different words)? http://www.mrrc.npi.ucla.edu/mrrc/faculty.asp?faculty=453 http://www.augie.edu/perry/ear/nutrition.htm http://www.emedicine.com/neuro/topic278.htm W > Hi, > > I'm currently in the diagnosis stage with my late talker. > My 6yr old son recently had Auditory Perceptual Skills: Revised TAPS > test done. The results were not that great as far as I'm concerned > and the one particular subtest score: > > Auditory Word Discrimination subtest (measures the ability to > discriminate paired one-and two-syllable words with phonemically > similar consonants, cognate or vowel differences)His score is only in > the 1st Percentile. > > As I am researching Auditory Processing Problems I came accrosed the > term Auditory Neuropathy............. > http://auditoryneuropathy.tripod.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Hi Domenique- It has been explained to me (by our audiologists) that Auditory Neuropathy is a more severe form of Central Auditory Processing disorder, and that CAPD and Apraxia can co-occur. Auditory Neuropathy is a deficit in the ability of the fibers of the auditory nerve to fire syncronously. People with this condition have very poor speech perception abilities, especially in noise, and can possibly have hearing loss of almost any degree from mild to profoundly deaf. They may seem to hear at some times and not hear at other times. They may pass certain types of hearing tests but fail others. My daughter seems to fit the description of a child with this issue, but her ABR testing results so far do not fit the diagnostic criteria. We'll know better next week, after the second set of tests. It's more likely that she would fall into the catagory of someone with CAPD, but not Auditory Neuropathy. It's frustrating not knowing for sure what she " hears " and what she doesn't. Her receptive and expressive language skills are quite poor, at this point, yet she wants so much to communicate with others. Her response to auditory stimuli, particularly speech, is very inconsistent, especially in the presence of background noise. I found some info. on AN on the Raising Deaf Kids website, www.raisingdeafkids.org I've also been reading a book about Auditory processing disorder called, " When The Brain Can't Hear " , by Teri Bellis, Ph.d. It contains some good information about children and adults with Auditory Processing issues,( but only touches briefly on AN.) Hope some of this helps! -Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Thanks for the reply Beth, Yes, my 6yr old son Tyler has had his hearing tested (several times) and he can hear the tones. One of his ears does tend to have fluid and cause some negative pressure. But the Audiologist said there was not any nerve or bone damage. We did visit Ear,Nose and Throat doctor to check for possible tube dysfunction - Doctor could not see any reason for tubes and just prescribed Flonase to keep the tube open. So we went ahead and had Auditory Perception revised (TAPS) test performed by the Audiologist and the test scores are surprisingly low. Especially the Auditory Word Discrimination subtest (measures the ability to discriminate paired one-and two-syllable words with phonemically similar consonants, cognates or vowel differences)were he only scored in the 1st percentile. My son Tyler was non-verbal until about the age of 3yrs. (only had about 2 word attempts) He does have Sensory issues (especially with loud noise) And at this time the diagnosis is leaning towards High Function Autism. February 2004 he will have Speech and Language evaluation. I suspect apraxia because he does great problems with word and sound retreival. Will an Audiologist perform your daughters Auditory Brainstem Response test? Domenique Re: [ ] Auditory Neuropathy > Hi Domenique- > My daughter is being tested for Auditory Neuropathy next week. We doubt that > she has it, but are re-doing her audiology battery to be sure. When > diagnosing this, audiologists look for nromal OE tests, with abnormal or absent > Auditory Brainstem Response. (ABR) My daughter's last ABR was normal, from Mass Eye > and Ear. We are getting a second opinion from Children's Hospital in Boston, > just to be sure. We do feel that she has some form of Central Auditory > Processing issue, but doubt that she has any form of more severe hearing loss, such > as in Auditory Neuropathy. She is only 23 months old, so it is impossible to > test her for CAPD at this point, or so I'm told. I'm not looking forward to > the upcoming test- she will have to be sedated, and needs to be sleep and > food deprived for many hours prior to testing- NO fun for any of us!! > > I'm interested in hearing the reasons you suspect Auditory Neuropathy in your > child? Has your child had any hearing testing done yet? > -Beth, mother of Casey, 23 months old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Domenique- I forgot to mention in my last post to you that my daughter's testing will be performed by an audiologist at Children's Hospital. They will test her ABR and OE's. Thought I'd mention also that some of her history is similar to your son's- My daughter has had fluid issues in her ears- A " stiiff " tymp tested in her right ear. Tubes were discussed, but we are holding off at this point- the ENT doctor felt we should wait a little longer and see if she has many more ear infections. She has had 5 so far in the last 18 months. She also has some sensory issues that we are working on daily, and she gets OT therapy weekly for this. -Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Beth, Thanks for the links - What is your opinion with reguard to Auditory Neuropathy and Apraxia being inter-related? are they? Domenique > > > Hi, > > > > I'm currently in the diagnosis stage with my late talker. > > My 6yr old son recently had Auditory Perceptual Skills: Revised TAPS > > test done. The results were not that great as far as I'm concerned > > and the one particular subtest score: > > > > Auditory Word Discrimination subtest (measures the ability to > > discriminate paired one-and two-syllable words with phonemically > > similar consonants, cognate or vowel differences)His score is only > in > > the 1st Percentile. > > > > As I am researching Auditory Processing Problems I came accrosed > the > > term Auditory Neuropathy............. > > http://auditoryneuropathy.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Beth, What are OE's ? - Domenique Re: [ ] Auditory Neuropathy > Domenique- > I forgot to mention in my last post to you that my daughter's testing will be > performed by an audiologist at Children's Hospital. They will test her ABR > and OE's. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Domenique- OE or OAE testing assesses the function of the cochlea- the portion of the inner ear that transforms sound vibrations into signals that are transmitted to the brain. They use a probe in the ear which sends a sound, and when the sound reachers the inner ear an " echo " occurs if hearing is normal or near normal. Casey (my daughter) has not had this test done before- she will never sit still long enough and is very aversive to anything being put in her ears. It should have been done during her 1st ABR test, while she was sedated. Hope I explained that correctly! -Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Hi, My daughter has profound SN hearing loss and there is a group on called listen-up for parents of children with all kinds of hearing loss including AN (Auditory Neuropathy). It is a very active group. I know that some AN children also successfully received cochlear implants. Here is the link: Listen-Up/ Louise > Hi, > > I'm currently in the diagnosis stage with my late talker. > My 6yr old son recently had Auditory Perceptual Skills: Revised TAPS > test done. The results were not that great as far as I'm concerned > and the one particular subtest score: > > Auditory Word Discrimination subtest (measures the ability to > discriminate paired one-and two-syllable words with phonemically > similar consonants, cognate or vowel differences)His score is only in > the 1st Percentile. > > As I am researching Auditory Processing Problems I came accrosed the > term Auditory Neuropathy............. > http://auditoryneuropathy.tripod.com > > > All along I have suspected Apraxia, but now I'm suspecting a possible > combination of the two: Apraxia and Auditory Neuropathy. Fully intend > to discuss this with the Pediatric Neurologist.... > > Any insight on this topic would be greatly appreciated... > > Domenique > Mom to 2 little boys with speech problems Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 My son has auditory neuropathy in one ear. AN can be easily diagnosed by administering an OAE test (standard hearing test in which the outer hair cells' response to sound is measured) and an ABR or BAER test (brainstem response to sound is measured - neurological " provoked response " test). The OAE is normal (meaning the hair cells are fine and the ear can " hear " ) but the ABR is abnormal/absent (meaning the sound is not being carried to the brain due to a defect somewhere between the inner hair cells and the auditory nerve). There's a group for auditory neuropathy, if you're interested. I think my son's auditory neuropathy was caused by mercury ototoxicity in utero, as he has regained hearing in the previously-deaf ear since we started lipoGSH and TD-DMPS/NDF+. Angie > Has anyones child been diagnosed with auditory Neuropathy? > > has " selective hearing " Someone mentioned he might have auditory > Neuropathy. Never heard of this before. > > > Thanks, > > Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 When was 15 months old he was at an evaluation and had two teachers in front of him, one came up from behind with pots and pans and banged them, did not even blink an eye, They said should have been screaming. He was tested and hears. I was told that sometimes it just doesnt register to his brain, especially if he is focused on one thing. Is this the same thing? was poisoned by mercury in utero too, Rhogam. Hes almost 19, and I have never heard of auditory Neuropathy. Is this a new test? Thanks, Donna > > Has anyones child been diagnosed with auditory Neuropathy? > > > > has " selective hearing " Someone mentioned he might have > auditory > > Neuropathy. Never heard of this before. > > > > > > Thanks, > > > > Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 It is a relatively new test. When your son was tested, do you know what method was used to test his hearing? I wonder if they did a hair cell test since he was so little? (OAE test). Does he hear (behaviorally) but just tune people out? Auditory neuropathy is an actual sensoneurial hearing loss, so you physically cannot hear. Any audiologist could diagnose it by giving an ABR and OAE. Angie > > > Has anyones child been diagnosed with auditory Neuropathy? > > > > > > has " selective hearing " Someone mentioned he might have > > auditory > > > Neuropathy. Never heard of this before. > > > > > > > > > Thanks, > > > > > > Donna Quote Link to comment Share on other sites More sharing options...
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