Guest guest Posted June 21, 1998 Report Share Posted June 21, 1998 Fran: Please do write and tell them that! I DO plan on getting the condition under control and sending in my success story. I'm sure they won't publish it, but, at least, then I can write to their editor and complain that cea Review doesn't present the whole story! Francesca Ferraro wrote: > I totally agree with you. I'm thinking of writing to the cea > Review and letting them know that the only success story is one of > being totally cured. Living a restricted lifestyle is not pleasant. > Metrogel doesn't work for me either. Antibiotics make me feel sick and > dizzy. Fran > > --- " james e. mossberg " wrote: > > Nothing is more valuable than hearing about the > > measures that actually > > worked! Thanks!! > > I also read cea Review. I think it offers > > worthwhile information, but > > it can be a bit misleading. I dislike the monthly > > " Success Story " on the > > back. > > It always seems to feature a sufferer who simply > > avoided their list of > > triggers > > and used antibiotics (which, of course, the > > publication's sponsor sells), > > and > > got rosacea under control. If only it were that > > simple! I thought there > > was > > something wrong with me because I wasn't gettimg > > miraculous results from > > Metrogel! This bulletin board has shown me that > > that's more the rule than > > the exception! > > I would advise reading cea Review, but taking > > its information only for > > what it's worth! > > > > > > > > flfw98@... wrote: > > > > > I have been suffering from cea for about 8 > > years and am glad I > > > found this group. Here are a few things that I > > can share, that you may > > > or may not already know about. > > > *Information -The cea newsletter called > > 'cea Review' (National > > > cea Society, 800 Northwest Highway, STE 200, > > Barrington, IL 60010) > > > is a must have. They also have a website. > > > *Photderm/Photofacial - I have had 3 of 5 > > photofacial treatments from > > > Doctor Bitter in California at the Institute for > > Dermatology and > > > Cosmetic Surgery . He uses a form of laser, which > > he calls a > > > 'Photofacial.' My condition has improved but > > other factors, i.e., a > > > stricter diet and good weather could have also > > influenced my skin. > > > *Traditional Laser - I had traditional laser at > > another Dermatologist. > > > I only had 1 treatment and did not notice any > > difference. It was > > > painful and left bruising. I would not go back > > for this again. > > > *Antibiotics –I’ve used tetra/mino cyclin over the > > years but am finding > > > that it has lost some of its affect. It also > > makes me feel sick so I > > > want to keep off it for now. > > > *Topicals – I’ve tried them all. Metrogel, > > Noritate, Klaron. None > > > seem to work and almost all of them are > > irritating. Acnemycin was > > > recommended but I never used it. Has anyone had > > experience with this? > > > *Soap – Cetaphil Bar soap is the gentlest. Use a > > small amount, only at > > > night. Only use water in the morning. Never > > overwash, pat or air dry > > > face. > > > *Moisturizers – I do not like any of the > > commercial moisturizers. Here > > > are two that I’ve found to be gentle and > > non-irritating. The best one > > > is sold by Dr. Bitter. It is called ‘Skin Savor – > > Nutrition for Skin’. > > > It is a blue cream that feels cool and gentle on > > your skin. Another > > > good moisturizer is ROC Dermatologic. It is > > distributed by Ortho > > > Dermatological Division for ROC in France. I used > > to buy it from my > > > Dermatologist, but can not find it on the retail > > market. Never over > > > moisturize. > > > *cea Disk Treatment - I purchased the cea > > disks from cea > > > Ltd. (also known as Bass & Boney, Inc.) I have > > not used these long, so > > > the only thing I can say is that the brown disk > > does not irritate and > > > appears to help. I'm moving to the yellow disk > > shortly and will keep > > > you posted. > > > *Sunscreen – I have used the gentlest of > > sunscreens, but they are all > > > irritating. I get best results from using a hat > > with a 4” brim and NO > > > suncreen. Here’s the name of a great hat catalog > > company that all > > > rosacea sufferers should know: Sun Precautions > > 1-800—882-7860. I > > > like the Solumbra. Baseball caps do not provide > > enough coverage. You > > > really need the 4’ brim. I’m considering the Sun > > Precautions parsol > > > for my tour of Europe next year. > > > *Foods Intake – Look at the list of ‘don’t eats’ > > that the National > > > cea Society has created. Follow it closely > > and also create a list > > > of your own. Also, I find that drinking more > > water 8-10 glasses a day, > > > as recommended by the cea Ltd. people has > > really helped. Avoid > > > salt – especially iodized salt. Do not use > > excessive amounts of > > > toothpaste when brushing as the mint and/or > > fluoride may be bad for > > > cea. I use peelu powder to brush most of the > > time. > > > > > > I know this is a mouthfull, but I have been able > > to get my skin under > > > control this summer. I just hope that it is not > > seasonal. Please > > > share your thoughts / experiences. Thanks. > > > > > > > > > ------------------------------------------------------------------------ > > > > > > eGroups.com home: > > /group/rosacea-support > > > - Simplifying group > > communications > > > > > > > ------------------------------------------------------------------------ > > > > eGroups.com home: > > /group/rosacea-support > > - Simplifying group > > communications > > > > > > > > > > > > ------------------------------------------------------------------------ > > eGroups.com home: /group/rosacea-support > - Simplifying group communications ------------------------------------------------------------------------ eGroups.com home: /group/rosacea-support - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 1999 Report Share Posted July 11, 1999 In a message dated 7/9/99 6:27:51 PM Pacific Daylight Time, jlmossb@... writes: << I dislike the monthly " Success Story " on the back. It always seems to feature a sufferer who simply avoided their list of triggers and used antibiotics (which, of course, the publication's sponsor sells), and got rosacea under control. If only it were that simple! I thought there was something wrong with me because I wasn't gettimg miraculous results from Metrogel! This bulletin board has shown me that that's more the rule than the exception! I would advise reading cea Review, but taking its information only for what it's worth! >> I have to agree. I began getting the cea Review when I was at my worst and found the articles depressing rather than helpful. Of course, it is published by Galderma, isn't it? Marji ------------------------------------------------------------------------ eGroups.com home: /group/rosacea-support - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
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