Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 Georgia, This seems to happen a lot...people not knowing they had it b/f they had children. I heartbreakingly agree with you though in as much as we would not have had my daughter had we known about all of this. I read some info on a web sight, I think it was the Mayo Clinic? that they can sometimes reverse the NF during the first tri-mester through genetic manipulation but I think even that is still experimental. Thank you for being so candid. Molly --- C & G son wrote: > Molly, > I think my views on having children are not > really popular! I am 34 and have 2 girls aged > 11 and 12 and they are the joys of my life. > When I was 13 I came very close to death after > a huge ovarian cyst erupted, and I lost one > ovary and the other one was damaged. and > I decided to have children early if possible, > knowing that if my ovary worked it only had a > limited shelf life anyway! So Katrina was born > just before I turned 22 and Madeleine shortly > after I turned 24. However, if I had known > then that I had Nf2 I would have done what my > sister and brother have done, and remained > electively childless. Maybe had more cats! I > could never have a child knowing that there is > a good chance I may be subjecting it to this > disease. I know all the stuff about improved > treatments, la la la, but I just couldn't do > it. If I were to get pregnant now I couldn't > continue with it. > I adore my girls, don't get me wrong, but I am > very glad I was so sick as a teenager because > if I had not been they would not be here. > And please, don't anybody take offence!!! I > know that my views are not everybody's, I would > NEVER criticize somebody's right to decide to > have a child under these circumstances, this is > just MY opinion - and the reason we never did > go back for the third baby. > Georgia, very proud mother of two girls with > Nf2 > ===== <A HREF= " http://www.angelfire.com/la2/YoungWidows/index.html " > Left, But Not Alone Widows Surviving Reality</a> Molly (31) husband Shane died 1-25-99 : 3 children 2 yrs, 5 yrs and 8 yrs __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 In a message dated 8/17/01 11:39:51 AM Pacific Daylight Time, mark_sarmac@... writes: << Please, please, please, encourages your children with this disease to excel, despite this disease!! Because, I'll tell ya, if you do they will go on to do great things. Remember: " The greater the difficulty, the greater the glory. " --Cicero >> Mark, This is a great way to look at this issue. Just wanted to let you know I read it and thought it was so positive Lori Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 In a message dated 8/17/01 12:01:21 PM Pacific Daylight Time, larorr@... writes: << When my husband & I were expecting, we of course prayed for a healthy child. But no matter what we got we would deal with it. We would not love that child any different. I am a productive person. My life has meaning. My children will become productive people too. I think it's sad if we think only perfect children are the only ones worth being born. I think my children get strength from my sufferings. They both want to be doctors ( & mommys) and desire to help others. I'm sure they will in some capacity. Blessing, >> , I agree 100% Lori Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 In a message dated 8/17/01 8:33:49 PM Pacific Daylight Time, horizons@... writes: << They are my heart!! >> YOU BET !!!! Well said Carol Lana:)) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 I just want to put my 2 cents in here.... Anytime any of us have a baby, there is always risk that they could be born with a disability, deformaty, NF2 or anything humans manage to carry in their genes. I didn't find out until after I was diagnosed, but had I known, I still would of had them. They are my heart!! And the risk is 50/50, just like any pregnancy we have. Hope I am making sense!!! Hugs, Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 DAMG SKIPPY!!! It's been hotter than Blazes lately. Well, I wouldn't know since I've never been there but, according to the Good Book it is. =P But, like our friends from Arizona would say, " it's a dry heat " Mark@still sweating at the " dry heat " anyways. ----Original Message Follows---- From: vjpcook@... Are you so hot out in the valley? Vicki (at the beach) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 In a message dated 8/17/01 8:33:54 PM Pacific Daylight Time, horizons@... writes: << Hope I am making sense!!! Hugs, Carol >> Makes sense to me Carol. Lori Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 In a message dated 8/17/01 9:46:12 PM Pacific Daylight Time, ljr@... writes: << A proud & doting mother ?you just bet I am . >> Lois, This was just a wonderful letter and I wanted to let you know that when I read it it brought tears to my eyes. Lori Jo I have been reading so many of the postings on this topic and have found it hard many times what to reply. These are all touching my heart so. Quote Link to comment Share on other sites More sharing options...
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