Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 tonia i am so sorry, i still have one teen at home, and this is so hard on my whole family...i feel like an inconvienence.. pinkie > > Pinkie.....Try having your own 1 year old that is a Mamma's boy. Petey >clings to me constantly......he always wants me to hold him. But, he's >finally gotten wilder....cause now he grabs on with one heck of a grip, and >he bounces around on me while he's standing or sitting, he kicks my bad >leg/knee when sitting down....... >Then the girls. When they want a hug from Mom.....all Mom does is say ouch >ouch ouch ouch ouch! > >I know that its hard for you with your grandson.....but, at least you was >able to hold and play with your own daughter/son when they was >babies/children. I can't even do that. > >Tonia > _________________________________________________________________ Stop worrying about overloading your inbox - get MSN Hotmail Extra Storage! http://join.msn.com/?pgmarket=en-us & page=hotmail/es2 & ST=1/go/onm00200362ave/dire\ ct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Pinkie, I really do know that feeling!!! I feel like I'm always in the way....just taking up space that could be used for something else most of the time. Or, if I left and divorced Gene....he could still find someone that could go and do all of the things that He likes to do without complaining about hurting too much. If he had someone else, he wouldn't have to worry about the kids getting on the bus to school every morning, or if someone will be there to get Crystal off the bus in the afternoon......or, if Petey is still in bed needing a diaper change and fed yet......cause I'm still in bed at noon. Someone else could get up in the mornings and get the girls hair done for them, have them wear matching clothes.......or, they would be able to handle the kids, grabbing them and holding them back when Gene needs to go somewhere and doesn't want to take a kid with him everywhere he goes. Someone who can actually clean the house, do laundry, the dishes, and have dinner on the table when he gets off work or out of the field. Hell, have someone here just so he CAN go to work. Because with me, I can't get out of bed in the mornings that easy......to get the girls hair done, clothes that match, have Petey out of bed, changed and fed..... I can't catch Crystal to keep her from always going with Gene when ever he goes out the door.....or keep the house picked up all the time, laundry always caught up, and I can't even get my hands in the dish water to do the dishes, let alone stand up that long. So......yeah, I know what feeling like I'm a huge incovenience is all about.....especially when I can't drive, and Gene has to drop everything that he's got to do just to take me to the doctor, grocery shopping....or anything else. Tonia -------Original Message------- tonia i am so sorry, i still have one teen at home, and this is so hard on my whole family...i feel like an inconvienence..pinkie ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 my husband likes to hug isee his arms coming and say no it hurts Pinkie _________________________________________________________________ Check out MSN PC Safety & Security to help ensure your PC is protected and safe. http://specials.msn.com/msn/security.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 i dont even go to the store anymore let alone let my husband bathe me bout 1 x a month sounds kinda like me, but all i do is go to dr appt's pinkie > > Pinkie, >I really do know that feeling!!! I feel like I'm always in the way....just >taking up space that could be used for something else most of the time. > >Or, if I left and divorced Gene....he could still find someone that could >go >and do all of the things that He likes to do without complaining about >hurting too much. If he had someone else, he wouldn't have to worry about >the kids getting on the bus to school every morning, or if someone will be >there to get Crystal off the bus in the afternoon......or, if Petey is >still >in bed needing a diaper change and fed yet......cause I'm still in bed at >noon. > >Someone else could get up in the mornings and get the girls hair done for >them, have them wear matching clothes.......or, they would be able to >handle >the kids, grabbing them and holding them back when Gene needs to go >somewhere and doesn't want to take a kid with him everywhere he goes. > >Someone who can actually clean the house, do laundry, the dishes, and have >dinner on the table when he gets off work or out of the field. Hell, have >someone here just so he CAN go to work. > >Because with me, I can't get out of bed in the mornings that easy......to >get the girls hair done, clothes that match, have Petey out of bed, changed >and fed..... >I can't catch Crystal to keep her from always going with Gene when ever he >goes out the door.....or keep the house picked up all the time, laundry >always caught up, and I can't even get my hands in the dish water to do the >dishes, let alone stand up that long. > >So......yeah, I know what feeling like I'm a huge incovenience is all >about. >...especially when I can't drive, and Gene has to drop everything that he's >got to do just to take me to the doctor, grocery shopping....or anything >else. > >Tonia _________________________________________________________________ Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 Actually ladies....it also depends on 2 other things: 1. Pinkie's pain Tolerance might not be as high as yours.... and 2. it depends on exactly where the Sensitivity is at, and HOW sensitive she is. I can't stand to put my hands in the bath tub at all when I take a bath. It makes them swell up really bad, but, also just because the rest of my body can handle the hot water....my hands absolutely can't. In fact, even washing my hands with water sends my pain levels soaring.....the quick 1-2 minute wash.....and it doesn't matter what temp the water is either. Now, instead of using water to wash my hands, I use a baby wipe instead. I can handle those a lot better, plus, my hands still get clean. Taking a shower....I can handle the water hitting me, but I also have one of those shower heads that you can change how the water comes out. Gene bought me a massaging one....it comes out either in a light spray, a heavy spray, or like darts which is the massage. I can't use the massage one or the heavy/normal spray either...but the light one is perfect! Plus, its one of those that hooks up to the regular shower, but has the hose....so that if I can't stand the water coming down from a distance, I can hold it closer to me which means that it is softly landing on me. And, my hair used to be long, until I started having problems lifting my arm up long enough to brush it and put it in a pony tail. Then, also because I just had Petey....I got it cut really short.....because I was sweating a lot, plus like a typical baby, once Petey learned how to grab things, my hair was his favorite thing to pull! So, I didn't have to use as much shampoo, and my hands didn't get stuck in the water as long either. Another thing. I couldn't stand it in PT when they used a cotton ball to desenitize my leg, but also couldn;'t stand the tennis ball or anything else they tried. Then, when I switched PT's....in between them I had gotten it to where I could handle a regular bath towel. I couldn't stand anything else though....so, the 2nd PT used only the towels..but tried using different pressures. She would try it lightly, normally, and rough/hard. I could only stand it normally... but, when it comes to clothes on my leg, I can't stand anything that feels like that towel, but I can softer things. So....really, it all depends on a lot of different things. Plus, we all have different pain tolerances....while we might have the exact same kind of pain, one of us might say its a 10, while the other says its only a 4. And, for some of us, we might have certain area's that are more sensitive than another....but for someone else, their whole body could be very sensitive, or not sensitive at all. Tonia -------Original Message------- GEE I CAN'T GO THROUGH THE DAY WITHOUT BATHING IN THE MORNING AND MOST TIMES BEFORE I GO TO BED TOO. LOL CLEAN AS A WHISTLE I KNOW EVEN IF IT HURTS LIKE HELL I STILL BATH EVERYDAY.....WASHING MY LONG CURLY BLOND HAIR IS ANOTHER STORY. I ALWAYS WASHED IT EVERY DAY BEFORE I GOT RSD ....NOW MAYBE 2 OR THREE TIMES A WEEK. ITS REALLY HARD TO MANAGE HAVE TO CUT IT SHORTER. HAVE A GOOD NIGHT STACEY Stationery ©Stationery Heaven____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 oh well i don't even care anymore pinkie > >Not meaning this in a bad way but i read somewhere that was one of the >causes for infection in RSD patients not bathing the area thats affected >with RSD. Leads to a free breeding ground for bad germs to start a >infection. I know it hurts like heck. But i take a bath and use >antibacterial soup to kill the germs we dont need. Maybe you could sit on >the side of the tub and wash that way. I dont know i just know no matter >how bad it gets i gotta wash everyday.and wash my hair twice a week. at the >least. Get a wand so you can control where the water goes. There has to be >a way. _________________________________________________________________ MSN Toolbar provides one-click access to Hotmail from any Web page – FREE download! http://toolbar.msn.com/go/onm00200413ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Pinkie - You're right. We don't know about your pain or what level your RSD is at. Even though we try to be responsive to what others may be experiencing, we only know about our own pain and the symptoms that we have. All of us struggle here. All of us are trying to be supportive. Everyone is doing the best that they can. In a few of your recent posts, you've sounded especially depressed and frustrated. Is there someone or something in particular that you're angry about? BarbaraPinkDay007 Time wrote: u dont know bout my pain and rsd being at what levelpinkie_________________________________________________________________Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 Pinkie - I'm sorry that you're going through such a scary time. Sometimes when we are emotionally struggling the things that we write are more apt to be jumbled and misunderstood by others. Would it help to talk about procdures/surgeries that you have coming up? Maybe we could help calm some of your fears a bit. So many of us here have had a lot of different medical things done to our bodies....Chances are pretty good that we could help you through it even if it was just a little help. No one is asking you or anyone else to leave the group. BarbaraPinkDay007 Time wrote: yeah its me i'm so scared and overwelmed right now im sorry....i have too much going on 3 appts so far next week..and they keep making more appts///think the drs are worried bout my rsd...i just asked my husband not to talk too much about what is going to happen to me soon....lots of blocks and surgeries coming up...now i'm crying again..i hope everyone understands..i will try hard not to take out my fears here...you all mean so much to me...it's going to hurt...i keep breaking down crying , lack of sleep too...but i promise i will try my best to be good , sorry if i upset anyone..if u want i will leave this group..just let me know....;{Pinkie>>Pinkie - You're right. We don't know about your pain or what level your >RSD is at. Even though we try to be responsive to what others may be >experiencing, we only know about our own pain and the symptoms that we >have. All of us struggle here. All of us are trying to be supportive. >Everyone is doing the best that they can. In a few of your recent posts, >you've sounded especially depressed and frustrated. Is there someone or >something in particular that you're angry about? Barbara>_________________________________________________________________MSN Toolbar provides one-click access to Hotmail from any Web page – FREE download! http://toolbar.msn.com/go/onm00200413ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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