Guest guest Posted January 22, 2005 Report Share Posted January 22, 2005 Are u using the Danactive? Or are u using a probiotic mix that you matched to ingredients in Danactive. It's wonderful to have a reduction in irritation, isn't it? I have dysesthetic vulvodynia, but as I posted earlier the daily pain is about a 2 on a scale of 1-10 (10 being worst). I just be sure to wear very loose pants, avoid my allergens, drink my Danactive and use my HRT faithfully. I would say, if pressed, that the Danactive took my daily pain from a 6 to a 2. There are odd periods of time now when I have no pain at all - but it only lasts a week or so and then comes back at about a 2/3 and settles down to a steady 2 in a few days. Dusty -----Original Message-----From: Mace Sent: Friday, January 21, 2005 11:10 PMTo: VulvarDisorders Subject: Re: / probiotics questionOh, woops, I thought that it was *cured*. I am better at the moment but it may just be a temporary thing and not attributable to that. I have had my hopes up a *lot* of times.I haven't got any yeast either, which is nice.> > I never claimed that my Vulvodynia was cured - only that using the Danactive> dramatically improved me and the change even impressed my gyn who said that> my vaginal white cell count significantly improved.> > I would say that it took about a month to 6 weeks to notice that I was> feeling much better.> > I have not had yeast since that time, nor any other vaginal infection.> Dusty> *****END OF MESSAGE/REMOVE WHEN REPLYING*****http://groups.yahoo.com/group/VulvarDisordersto search our archive or view our files.*** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2005 Report Share Posted January 24, 2005 Hey. Listen, maybe you have *nerve* pain. This is caused when you have so much pain from one place that your neurons just keep on sending pain messages constantly. My pharmacist likened it to a doorbell that is stuck! It's a good analogy. Nerve pain is a real true thing that happens. A doctor with experience will know how to test for it. It's just that most doctors are unaware of it and continue searching for and treating pathological conditions even though there is no proof of that, just because the symptoms persist. I'm not saying that's what you have, just that it sounds like your doctor is clueless (not his or her fault necessarily!) and you have to point out the possibility! Nerve pain IS treatable so don't lose hope whatever you do. Nerve pain can be treated with drugs like Amitriptyline, zoloft, effexor, which increase your level of NEUROTRANSMITTERS. These neurotransmitters help your nerves to calm down. Nerve pain can also be treated with anti-seizure drugs. The theory behind this is that the nerve pain is caused by inappropriate electrical signals in your nerves. Even terrible intractible nerve pain (like moi) can be treated with a combination of those pharmaceuticals. It's not exactly wonderful to take piles of wierd pills but hey, if it works! Sorry I didn't mean to go on and on about it. And I really have no idea if you have nerve pain or not, but your doctor needs to know that is a possiblitiy. If he or she hasn't thought of it yet you need to point it out. The people on this list can give you scientific papers to take to your doctor to help educate him or her. > I kind of have a simliar experience. I had a long bout with yeast > infections after being pumped with high doses of antibiotics. I have a > lot of itching and irritation, but my cultures for yeast have all > turned out negative. I do feel like the pain is less when I get my > period. So I don't know if it is related. My doctors think it's > possibly lichen planus. But I'm not convinced, or at least, not > convinced that that is the only cause of the pain. It's very > depressing because I keep thinking/hoping it is some horrible allergic > reaction to the antibiotics and that my body will get over it. But I'm > starting to lose hope. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 In a message dated 1/25/05 7:38:59 AM, VulvarDisorders writes: Is there an actual proven connection between antibiotics and vvs? Is there any research in this respect?>> Not that I've seen, but I haven't done a through search either. Many women do link their vvs symptoms beginning while taking Macrobid, Cipro and Flagyl. Debbie Tiger "My posts go generally unnoticed, I think. Except by the really cool people." - N., 12/3/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 In a message dated 1/25/05 7:38:59 AM, VulvarDisorders writes: Is there an actual proven connection between antibiotics and vvs? Is there any research in this respect?>> Not that I've seen, but I haven't done a through search either. Many women do link their vvs symptoms beginning while taking Macrobid, Cipro and Flagyl. Debbie Tiger "My posts go generally unnoticed, I think. Except by the really cool people." - N., 12/3/04 Quote Link to comment Share on other sites More sharing options...
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