Sleep, Benedryl, Melitonin, Rhuemy Doctors, and Being Invisible

[Guest guest]

LOL, I will attempt to tackle it all!

Okay here I go. Here is what I have found:

Sleep: well there was an old report that was done ages ago in Fibro

speak that showed that we don't get REM moments like everyone else.

This means we don't get the deep deep sleep everyone else gets--so

therefore, if there is noise outside, or light, or anything that goes

bump in the night: We are up! This includes tempatures, barimetric

pressure problems (if we get drops in the weather, we know it). So

because of this, we need consistancy in our sleep rooms.

This means: good mattresses, good pillows, good sheets, and good

drapes! The room needs to be a constant tempature (no fluctuations)

and noise kept to a minimum.

How to get to sleep: Well, that for some maybe medication, for

others, maybe not. Part of the problem with medication that I have

found is that there is NO guarentee that 'enough' today is going to

be 'enough' tomarrow--and so on. Another problem is what works when

you are in a small flare, doesn't do in a major flare! Nor can you

count on it when you have to total body lock down. See my point?

Ambien and alternatives of that nature can cause blackouts. A true

nightmare--you don't remember the whole night before--any of it. And

there is no guarentee that it won't happen to you, just because it

hasn't happened before.

Melitonin--Good Alternative SSRI (Seritonin Uptake Inhibitor) only

one small problem, you need to have it monitored by your doctor to

make sure your body isn't getting too much Seritonin! And you need to

Go off it every now and then to take a break so your body can balance

it with your neurons.

Benedryl--Yep too much can be a bad thing and what's worse is that

your body will begin to develop a hystemine response. You will begin

to ITCH all over and your skin will turn red every time you scratch.

This is not normal.

Rhuemy's--Well, it's hard to say this, but when you ask a doctor

about Fibromyalgia, they all say they " Treat it " . Some know more than

others--and that's just a fact--ask around. If your doctor doesn't

know about spot injections and " Spray and stretch " (he looks at you

funny when you ask about this) he doesn't know about FMS!

Being Invisible and Disabled--I have Cerebral Palsy as well as FMS.

And believe it or not, it doesn't change a darn blasted thing! I have

care attendants who still think I can charge up Mt Everest and

Doctors who still think I should " do " something about my 30 lbs I

still have, and yada, yada, yada.

My husband who is on Canadian Crutches (the elbow crutches) and has

Spastic CP, (legs) almost got hit in a cross walk in 1994, getting

across the street in Oregon, because a lady " Didn't see him " ! So

she yelled from her car window.

People, it goes on and on. We deal with it all the time. It is

frustrating, it is hard and finally you just have to stamp your foot

down and demand to be put first--because in truth, if you don't, no

one else will. Disabled people are not treated fair, nice, or just.

Sorry. I could sing this song all day long. Heck in resturants, they

want to put us next to the service enterances because they are scared

to put us anywhere else! It is horrid! Demand better! 2