(No subject)

[Guest guest]

omg.... woo hoo.. any time.. just come on over. love ya Carol

(no subject)

Sorry I have to send this zipfile just in case it don't show up on your screen love Kimi

FW: I'm sending help...

YUMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMYou know, I was feeling a little guilty knowing how busy you are lately. Knowing all of the chores you have to get done, work, work, work all the time. So, since I do have the extra "Help," I've decided to lend you a few helping handsSo Here They Are:Someone toClean The Back Yard Straighten Up The Gardens Sanitize The Pool Pick Up A Few Things In Town Rotate Your Tires Change The Sheets and last, but certainly not least,Scrub the Shower I hope this helps ease some of your work load.

Hell, what are friends for?

FW: I'm sending help...

YUMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMYou know, I was feeling a little guilty knowing how busy you are lately. Knowing all of the chores you have to get done, work, work, work all the time. So, since I do have the extra "Help," I've decided to lend you a few helping handsSo Here They Are:Someone toClean The Back Yard Straighten Up The Gardens Sanitize The Pool Pick Up A Few Things In Town Rotate Your Tires Change The Sheets and last, but certainly not least,Scrub the Shower I hope this helps ease some of your work load.Hell, what are friends for?

[Guest guest]

a B., I am currently taking Plaquenil, seven months so far, and it is

just starting

to help with fevers, headaches, joint pain. It wasn't helping with the

fatigue, but it

may be that the new medication trial we are doing with Thyroid will help more

with

that. I already am feeling more like myself, and that's after less than a

week on the

stuff. Of course, it could be a placebo effect, too, based on hopefulness.

I am being

very cautious about making firm statements on this one. LOL

The skin lesions also appear to be responding to Allegra, which is the only

antihista-

mine that doesn't knock me out for days at a time. It is a slow process, but

if I don't

get any new lesions during the eight week trial period on this one, it would

be a strong indication that it IS a systemic allergic reaction to something.

The skin

biopsies did not show a positive ANA, but there are five points you must meet

for a

difinite diagnosis of Lupus skin lesions. I only met three, which means

there is a

60% chance the lesions are lupus related. Isn't that special? LOL Anyway,

my blood

work confirms SLE, and for the first time in more than 20 years, my medical

chart

says in plain English, SLE. No mention of the word " suspect " appended to it.

In the

past, my ANA's were positive then negative, then positive, so the local docs

were

reluctant to pin the SLE label on me...they just kept putting it on the

sideline with

" suspect " written after it. Now, at least, I have a dx, and it is in

addition to positive

Rheumatoid panels (this is consistent, and never negative), positive 18 hot

spots in

the fibro exam (also never lets up, always inflamed so they call it acute

myfibrositis), Sjogren's Syndrome, and Lyme Disease contracted on a camping

trip

over 17 years ago. Unfortunately, at that time, no doctor believed that

Lyme's had

reached the west coast, so I went undiagnosed for six years. Needless to

say, I was

in very bad shape by the time they got around to doing the Lyme's blood tests

on me.

I was positive, negative, positive, so they treated me with antibiotics for

nearly

six months. I improved significantly, but do have recurrent relapses. Short

term

antibiotics help, but I am resistant or allergic to so many, now, it may be

difficult

to find one that will be effective s hould I have a really bad relapse.

I also take oral diabetic drugs for blood sugars that fluctuate pretty

wildly, iron

supplements for anemia, Zorprin for inflammation, hormone replacement therapy

since I am post hysterectomy since age 35, Prozac for depression from pain and

sleep deprivation, Ultram for severe pain, and as I said earlier, Allegra and

Thyroid.

So far, the best of the lot has been Zorprin. I have used this

anti-inflammatory for

more than 25 years without stomach damage or internal bleeding. It is the

only one

my body can tolerate, and without it, I cannot get out of bed because of

arthritis

stiffness and pain.

In the past, Gold Salts were very effective against the RA, and I enjoyed a

long

remission before Lyme Disease invaded and set all the rest of them off again.

This is probably too much information, but that's the basics on my drugs and

conditions. Hope it's helpful. Hugs, MM

[Guest guest]

a B., I am currently taking Plaquenil, seven months so far, and it is

just starting

to help with fevers, headaches, joint pain. It wasn't helping with the

fatigue, but it

may be that the new medication trial we are doing with Thyroid will help more

with

that. I already am feeling more like myself, and that's after less than a

week on the

stuff. Of course, it could be a placebo effect, too, based on hopefulness.

I am being

very cautious about making firm statements on this one. LOL

The skin lesions also appear to be responding to Allegra, which is the only

antihista-

mine that doesn't knock me out for days at a time. It is a slow process, but

if I don't

get any new lesions during the eight week trial period on this one, it would

be a strong indication that it IS a systemic allergic reaction to something.

The skin

biopsies did not show a positive ANA, but there are five points you must meet

for a

difinite diagnosis of Lupus skin lesions. I only met three, which means

there is a

60% chance the lesions are lupus related. Isn't that special? LOL Anyway,

my blood

work confirms SLE, and for the first time in more than 20 years, my medical

chart

says in plain English, SLE. No mention of the word " suspect " appended to it.

In the

past, my ANA's were positive then negative, then positive, so the local docs

were

reluctant to pin the SLE label on me...they just kept putting it on the

sideline with

" suspect " written after it. Now, at least, I have a dx, and it is in

addition to positive

Rheumatoid panels (this is consistent, and never negative), positive 18 hot

spots in

the fibro exam (also never lets up, always inflamed so they call it acute

myfibrositis), Sjogren's Syndrome, and Lyme Disease contracted on a camping

trip

over 17 years ago. Unfortunately, at that time, no doctor believed that

Lyme's had

reached the west coast, so I went undiagnosed for six years. Needless to

say, I was

in very bad shape by the time they got around to doing the Lyme's blood tests

on me.

I was positive, negative, positive, so they treated me with antibiotics for

nearly

six months. I improved significantly, but do have recurrent relapses. Short

term

antibiotics help, but I am resistant or allergic to so many, now, it may be

difficult

to find one that will be effective s hould I have a really bad relapse.

I also take oral diabetic drugs for blood sugars that fluctuate pretty

wildly, iron

supplements for anemia, Zorprin for inflammation, hormone replacement therapy

since I am post hysterectomy since age 35, Prozac for depression from pain and

sleep deprivation, Ultram for severe pain, and as I said earlier, Allegra and

Thyroid.

So far, the best of the lot has been Zorprin. I have used this

anti-inflammatory for

more than 25 years without stomach damage or internal bleeding. It is the

only one

my body can tolerate, and without it, I cannot get out of bed because of

arthritis

stiffness and pain.

In the past, Gold Salts were very effective against the RA, and I enjoyed a

long

remission before Lyme Disease invaded and set all the rest of them off again.

This is probably too much information, but that's the basics on my drugs and

conditions. Hope it's helpful. Hugs, MM

[Guest guest]

woo hoo.... I was talking to heather the other day and she could not understand that when I was her age there was only four TV stations and they all stop sending out shows at Midnight.. OMG... she said she would not survive...lol thanks Carol

(no subject)

Congratulations! you made it! I Can't Believe We Made It! According to today's regulators and bureaucrats, those of us who were kids in the 30's, 40's, 50's, 60's, 70's or even the early 80's, probably shouldn't have survived. Our baby cribs were covered with bright colored lead-based paint. We had no childproof lids or locks on medicine bottles, doors, or cabinets, and when we rode our bikes, we had no helmets. Not to mention the risks we took hitchhiking ... As children, we would ride in cars with no seat belts or air bags. Riding in the back of a pickup truck on a warm day was always a special treat. We drank water from the garden hose and not from a bottle. Horrors! We ate cupcakes, bread and butter, and drank soda pop with sugar in it, but we were never overweight because we were always outside playing. We shared one soft drink with four friends , from one bottle, and no one actually died from this. We would spend hours building our go-carts out of scraps and then rode down the hill, only to find out we forgot the brakes. After running into the bushes a few times, we learned to solve the problem. We would leave home in the morning and play all day , as long as we were back when the street lights came on. No one was able to reach us all day. No cell phones. Unthinkable! We did not have Playstations, Nintendo 64, X-Boxes, no video games at all, no 99 channels on cable, video tape movies, surround sound, personal cell phones, personal computers, or Internet chat rooms. We had friends! We went outside and found them. We played dodge ball, and sometimes, the ball would really hurt. We fell out of trees, got cut and broke bones and teeth, and there were no lawsuits from these accidents. They were accidents. No one was to blame but us. Remember accidents? We had fights and punched each other and got black and blue and learned to get over it. We made up games with sticks and tennis balls and, although we were told it would happen, we did not put out any eyes. We rode bikes or walked to a friend's home and knocked on the door, or rang the bell or just walked in and talked to them. Little League had tryouts and not everyone made the team. Those who didn't had to learn to deal with disappointment. Some students weren't as smart as others, so they failed a grade and were held back to repeat the same grade. Horrors! Tests were not adjusted for any reason. Our actions were our own. Consequences were expected. The idea of parents bailing us out if we got in trouble in school or broke a law was unheard of. They actually sided with the school or the law. Imagine that! This generation has produced some of the best risk-takers, problem solvers, and inventors, ever. We had freedom, failure, success, and responsibility --- and we learned how to deal with it. And you're one of them! "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies

[Guest guest]

Anyone know anything

about Dr Liu/ Dr Delgado in PBC (neurologists)? I already scheduled an appt

with Dr Baquero but was curious. Thanks

Cohane, LCSW

creating connections and strengthening families by providing

developmental-behavioral interventions and psychotherapy services

Cohane@...