Help for relfux & tactile defensiveness

[Guest guest]

Hello, I wanted to share some of my story and relay info on silent

reflux and related problems since it was so difficult to find. My 28

month old boy has some signs of apraxia but doesnt quite fit the

profile. He also has some signs of Sensory Integration disorder but

again, doesnt quite fit that profile either. He does have reflux, it

was undiagnosed and untreated until age 21 months. By that time, he

was extremely hypersensitive orally, severe tactile defensiveness

(but only with food), speech delayed and eating only pureed foods.

He's had extensive speech therapy and OT for the past 6 months and

we've made lots of progress as far as oral-motor skills - he can blow

bubbles, toot a horn, etc. But absolutely no progress at all with

his eating. After reading everything and anything I could find on

Apraxia, tactile defensiveness, SID, etc, I still felt pretty

strongly that he didnt quite fit those profiles. My feeling is that

the reflux went untreated for so long that he developed a phobia

about foods and eating. He seems normal in every way except for

things that deal with his mouth. I found that my suspicions may not

be wrong. I found an incredible website - www.feedingcenter.org that

helps little ones just like my son. There is a bulletin board on the

website also, it was encouraging to see others working on the same

issues as we are. I'll post back once we complete the eval & start

the progam.