Vicki

[Guest guest]

I can't believe you only got one reply Vicki......thought this is a support

group!! I do have the tumors but have never had any surgery as yet. So

sorry I can't add my two cents in here. I wish you ALL THE BEST OF LUCK.

Love & Hugs

Marnie

[Guest guest]

Italy!! I knew you had a trip planned but thought possibly NY. Sept 20th is

just

days away, you need to decide. It may be a break you need, airport security will

be tight, but who know what type of retaliation will occur in the next week, Id

be leery of traveling abroad right now:-(

Who coordinates my nf2 stuff? good question. sighhhhhhhh My dr mostly up until

now. he is an excellect surgeon, truely regarded as one of the best here in FL.

I'm his only nf2 patient though, he has read up, i have told him many details

that i know, he truthfully learns from me at times and is not to arrogant to

admit it. we watch tumors on mri's. I believe we waited too long on the last 2

surgeries however that may be partly my fault becaUSE I have not made clear at

times how bad my symoptoms were. Id love another dr to help us decide when to

act

but am clueless on how to find on, but i'll always use current dr for surgeon,

until he retires in 10 yrs.

vjpcook@... wrote:

> and All Crew,

> Thanks for your concern. I am here in LA still. I am supposed to leave for

> Italy on Sept. 20 but I am unsure if I want to chance it. Damn these idiots.

> You know today Anne and I saw her oncologist for a checkup forthe

> Thalidomide. He speculates that her tumors have not slowed but rather grew.

> This situation is so much more vital that his stuff of hatred towards other

> countries. I wish for these hijackers the worst case of NF2 that I can

> imagine. Then we will see how much time they have to devote to this

> ridiculous behavior.

> , who coordinates your health care in the medical world? A doc or

> yourself?

>

> Thanks for your thoughts, Love, Vicki

>

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