- Re: Are there children who have apraxia with Motor planning issues

[Guest guest]

Hi Traci!

There is a number of really awesome parents and professionals in

this group from Ohio! Did you also join CherabofOhio?

So you were told 's 'diagnosis' of PDD NOS means " Pervasive

developmental DELAY? " With the NOS (not otherwise specified) after

what the PDD (delay not disorder) stands for...I'm not a doctor -but

isn't that a diagnosis that means... 's normal?!

So does this mean we all get to make up what PDD NOS stands for

now?! I've got one. What about Phantom Diagnosis Definition " not

otherwise specified " Or for - what about Pretty Darling

Daughter " not otherwise specified " (can't forget the NOS of course)

Carlin would have a hay day with " not otherwise

specified " ...if was otherwise specified, then you would have

an 'actual' diagnosis, right?

" Pervasive developmental DELAY " got 6 hits (all from message

boards) on a google search (it's apparently never been used in any

medical journals/websites/etc.) And the actual way you wrote

it...'development'...one hit. " Pervasive developmental Disorder " on

the other hand...30,500 hits in .15 seconds at google.

I'd say that is what most know PDD NOS to mean. And here it is:

" Pervasive Developmental Disorder, Not Otherwise Specified (PDD-NOS)

is a 'subthreshold' condition in which some - but not all - features

of autism or another explicitly identified Pervasive Developmental

Disorder are identified. PDD-NOS is often incorrectly referred to as

simply " PDD. " The term PDD refers to the class of conditions to

which autism belongs. PDD is NOT itself a diagnosis, while PDD-NOS

IS a diagnosis. The term Pervasive Developmental Disorder - Not

Otherwise Specified (PDD-NOS; also referred to as " atypical

personality development, " " atypical PDD, " or " atypical autism " ) is

included in DSM-IV to encompass cases where there is marked

impairment of social interaction, communication, and/or stereotyped

behavior patterns or interest, but when full features for autism or

another explicitly defined PDD are not met. "

http://info.med.yale.edu/chldstdy/autism/pddnos.html

So -unless you believe has autistic tendencies, or

unless she has " marked impairment of social interaction, communication,

and/or stereotyped behavior patterns or interest, but .. full

features for autism or another explicitly defined PDD are not met "

which is the only reason to use the diagnosis PDD NOS, I say stop

telling people this is 's diagnosis.

PDD and autism are each a unique diagnosis, which is why I always say (and

wrote in the post to you) to find a neuroldevelopmental pediatrician

(a respected knowledgeable one!) who is knowledgeable about both

autism and apraxia. It's apparent from what you wrote that the MD

you took your child to is not. If your child does not need ABA

therapy, which is great for most autistic/PDD children, it could

even be worse than inappropriate -it could be detrimental. So PDD

NOS should not be slapped on late talkers like Band-Aids for the

verbal disabled. Apraxia therapy at it's worst is expensive -but as

we talk about in The Late Talker book -benign for even those

children who have simple delays in speech. (and may even be

beneficial!)

Marina or or someone else in this group are very

knowledgeable about professionals in your area and so two of the good

people to talk to before you take for a second opinion (so you

don't end up wasting your money again)

OK to answer your question about cueing. Yes that's normal at first

while children with motor planning disorders are learning. This is why I say

multisensory. A cue can

be a verbal command -or touch -or visual. Most of our children

find ways, or are taught ways, to cue themselves too. Also once

it's in the child's motor memory -they no longer typically need a

cue.

Can you give us an example?

=====