Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Hi all, I have been on a few support groups (for other conditions) through the years but have never felt so welcomed! WOW. Your blurb sure is right in stating that you are a caring group. Lets try this again,,,,,,,,,,,,thanks! We try! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 hi, my name is wendy and i live in australia. i have suffered with fibro like symptoms for 6 yrs now and still no diagnosis. When the symptoms begun it was after a flu like sickness i got living in hong kong and the doctor there gave me a antibiotic called Klacid. I got very sick from this drug with symptoms like lupus (joint swelling, butterfly rash across my face and on parts of my body) and she sent me back home. Once i returned to australia and stopped taking the tablets the symptoms disappeared. But the body aches, lower back pain, neck pain, shoulder pain, sciatica pain headaches, continued. I went to my doctor here and they did some blood tests and x rays and a bone density test but all was normal. He told me to take anti inflams and painkillers and go home. I have not been back to him since. (maybe that is a mistake now i dont know). I then went on my own journey of physio, chiro, myotherapy, oseopath, and bowen therapy trying to find some relief. All making the pain worse except bowen therapy that does give me some relief from time to time; depending on the severity of the pain at the time. now 6 yrs later i am still living with the pain only the symptoms have grown to other problems like TMJ. IBS, sleep problems . Now that the seasons have changed my pain and fatigue have escalated again this time alot worse so i have now gone back to a female doctor and she has just sent me to have blood tests again and put me on endep 10mg to help me sleep. the first night i was on them i got 3 hours sleep with out waking up the next night 4 hours but then the next night and the night after that i am back to not sleeping well at all. waking up every hour to 2 hours. i am exhausted in the morning. The morning stiffness is not as severe as before taking the tablets but still i am achey. i am trying to keep my spirits up and not let myself get too down with all this but it is very difficult. I am so tired all day everyday. i have to go back to the doctor on monday to find out the results but i dont hold my breath as i am expecting them to come up normal again like last time. I feel like i am loosing my mind at times, hubby tries to be supportive but he really has no idea what to do or how i feel, and how can he! i am hoping by being here in this group that i can find some support to keep me grounded. thank you for reading my post wendy -- they say 'what goes around comes around' that would explain why i am such a dizzy person! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 I have heard similar story today from a friend.. I don't think blood test is going to tell you have fibro.. I think it goes by pressure points and history.. Is there A rhuemoidologist who you can consult with.. Bet -- newbie hi, my name is wendy and i live in australia. i have suffered with fibro like symptoms for 6 yrs now and still no diagnosis. When the symptoms begun it was after a flu like sickness i got living in hong kong and the doctor there gave me a antibiotic called Klacid. I got very sick from this drug with symptoms like lupus (joint swelling, butterfly rash across my face and on parts of my body) and she sent me back home. Once i returned to australia and stopped taking the tablets the symptoms disappeared. But the body aches, lower back pain, neck pain, shoulder pain, sciatica pain headaches, continued. I went to my doctor here and they did some blood tests and x rays and a bone density test but all was normal. He told me to take anti inflams and painkillers and go home. I have not been back to him since. (maybe that is a mistake now i dont know). I then went on my own journey of physio, chiro, myotherapy, oseopath, and bowen therapy trying to find some relief. All making the pain worse except bowen therapy that does give me some relief from time to time; depending on the severity of the pain at the time. now 6 yrs later i am still living with the pain only the symptoms have grown to other problems like TMJ. IBS, sleep problems . Now that the seasons have changed my pain and fatigue have escalated again this time alot worse so i have now gone back to a female doctor and she has just sent me to have blood tests again and put me on endep 10mg to help me sleep. the first night i was on them i got 3 hours sleep with out waking up the next night 4 hours but then the next night and the night after that i am back to not sleeping well at all. waking up every hour to 2 hours. i am exhausted in the morning. The morning stiffness is not as severe as before taking the tablets but still i am achey. i am trying to keep my spirits up and not let myself get too down with all this but it is very difficult. I am so tired all day everyday. i have to go back to the doctor on monday to find out the results but i dont hold my breath as i am expecting them to come up normal again like last time. I feel like i am loosing my mind at times, hubby tries to be supportive but he really has no idea what to do or how i feel, and how can he! i am hoping by being here in this group that i can find some support to keep me grounded. thank you for reading my post wendy -- they say 'what goes around comes around' that would explain why i am such a dizzy person! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 i saw a rheumatoligist about 5 yrs ago, two actually and one said it could be fibro )he was i fill in but i had to see the other doc) the other was so rude and pushed on a few places and said it was not and sent me home with no idea of why i was in pain. I dont expect the blood tests will show anything and i suspect the doc will send me to a rheuma again (but i wont go to the rude one). I think the hardest thing is sometimes you can be in so much pain and then make a appointement to see them but then on the day you see them your pain might not be as severe, so they do not get a true reading. so what do you do? (throwing hands in the air) wendy > > I have heard similar story today from a friend.. > I don't think blood test is going to tell you have fibro.. > I think it goes by pressure points and history.. Is there > A rhuemoidologist who you can consult with.. > > Bet > -- newbie > > hi, my name is wendy and i live in australia. > i have suffered with fibro like symptoms for 6 yrs now and still no > diagnosis. When the symptoms begun it was after a flu like sickness i got > living in hong kong and the doctor there gave me a antibiotic called > Klacid. > I got very sick from this drug with symptoms like lupus (joint swelling, > butterfly rash across my face and on parts of my body) and she sent me > back > home. Once i returned to australia and stopped taking the tablets the > symptoms disappeared. But the body aches, lower back pain, neck pain, > shoulder pain, sciatica pain headaches, continued. > I went to my doctor here and they did some blood tests and x rays and a > bone > density test but all was normal. > He told me to take anti inflams and painkillers and go home. > I have not been back to him since. (maybe that is a mistake now i dont > know). > I then went on my own journey of physio, chiro, myotherapy, oseopath, and > bowen therapy trying to find some relief. > All making the pain worse except bowen therapy that does give me some > relief > from time to time; depending on the severity of the pain at the time. > now 6 yrs later i am still living with the pain only the symptoms have > grown > to other problems like TMJ. IBS, sleep problems . > Now that the seasons have changed my pain and fatigue have escalated again > this time alot worse so i have now gone back to a female doctor and she > has > just sent me to have blood tests again and put me on endep 10mg to help me > sleep. > the first night i was on them i got 3 hours sleep with out waking up the > next night 4 hours but then the next night and the night after that i am > back to not sleeping well at all. waking up every hour to 2 hours. i am > exhausted in the morning. The morning stiffness is not as > severe as before taking the tablets but still i am achey. > i am trying to keep my spirits up and not let myself get too down with all > this but it is very difficult. I am so tired all day everyday. > i have to go back to the doctor on monday to find out the results but i > dont > hold my breath as i am expecting them to come up normal again like last > time. > I feel like i am loosing my mind at times, hubby tries to be supportive > but > he really has no idea what to do or how i feel, and how can he! > i am hoping by being here in this group that i can find some support to > keep > me grounded. > thank you for reading my post > wendy > > -- > they say 'what goes around comes around' that would explain why i am such > a > dizzy person! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 hi Misty, thank you for the welcome, yes i am aware of the long and tedious testing that goes with a diagnosis for FM. I begun the journey as i said about 6 yrs ago and when i hit the brick wall i decided to go it on my own as i was not getting any help from my doc or the specialist. I figured that if FM is undiagnosable then i will just treat it myself to the best of my ability as if it really was FM (if that makes sense). I self medicated on over the counter aniti inflams and pain killers, paced myself as much as possible, bowen therapy when i got too bad. But recently since the change of weather my pain had escalated to the point that i am having trouble coping and work is becoming harder to handle. I dont know if i should just give up the merry go round that the medical profession put you through if in the end i am still back where i am now. Apart from the expense the frustration and mental anguish I dont know if i have the strength to go thru all this again. i welcome any suggestions from anyone wendy > > , > > Welcome to the group hon. I'm kind of new here too, but I've had > FM/CFS/ME for 29 years, so I know exactly what you've been going through. > > FM does not show on any other diagnostic test. The only diagnosis for FM > is a hands on evaluation by a skilled medical professional. So I'm sure the > testing you've been through was to rule out other medical conditions. One > thing to remember is that you're not alone out here. > > This evaluation usually consists of: > 1. Ruling out medical conditions whose symptoms mimic FM (i.e., > thyroid disease, MS, lupus, etc.) 2. An extensive medical history which > includes a discussion of the nature and duration of specific > symptoms. 3. A physical examination which includes a tender point exam > – The criteria used for diagnosis is widespread pain for a duration of more > than 3 months. Also, pain in 11 of the 18 tender point locations when a > pressure of 4 kgs is used in the tender point location. > > FM/CFS/ME Resources also has links for finding a doctor who treats FM, > CFS/ME, as well as support groups near you, and FAQ's. All information if > for people worldwide and is totally free. Please let me know if there is > anything I can do to help. > > Best Wishes, > > Misty > > > Patient & Founder > FM/CFS/ME Resources > http://fmcfsme.d-3systems.com/ > > > --------------------------------- > Be a PS3 game guru. > Get your game face on with the latest PS3 news and previews at Yahoo! > Games. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 , I think everyone handles FM in different ways, and of course FM hits everyone in different ways too. I've learned over the last 29 years what I'm capable of doing...(most of the time)...and what I'm not capable of doing. I know what meds work for me and what don't. I've found that handling my FM is a huge balancing act between stress, meds, sleep, and support. If I can get all of them to balance, I'm fairly well off. I visit a GP, I go once every 3 months for blood work, and updated prescriptions. The rest I handle on my own. My dr is a believer that FM and CFS/ME are one in the same...I'm not. However he's conceded to help me in any way I ask. I've found by staying far away from Rheumy's my FM and CFS are more in control. But that's my personal opinion. What works for me won't necessarily work for you, and visa versa. Bottom line, we know what our body is capable of handling more than someone who doesn't have this. Find your limitations and try to live within them. I hope my rambling has helped. (lol) Best Wishes, Misty Patient & Founder FM/CFS/ME Resources http://fmcfsme.d-3systems.com/ --------------------------------- We won't tell. Get more on shows you hate to love (and love to hate): Yahoo! TV's Guilty Pleasures list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 My primary care doc sent me to a RA specialist.. But she said I have Fibro and Osteo.. She did a through exam and did more blood test to rule out RA... But that was about 2 weeks ago.. And then I went into a flare and was real sick.. I called and called about getting something to keep for times like this.. I had some valium I took.. And listening to the group I tried this and that.. So at the moment I am self medicating with what I have .. I got some over the counter sleep aid like melantonin.. Or tryptophan.. Bet -- newbie > > hi, my name is wendy and i live in australia. > i have suffered with fibro like symptoms for 6 yrs now and still no > diagnosis. When the symptoms begun it was after a flu like sickness i got > living in hong kong and the doctor there gave me a antibiotic called > Klacid. > I got very sick from this drug with symptoms like lupus (joint swelling, > butterfly rash across my face and on parts of my body) and she sent me > back > home. Once i returned to australia and stopped taking the tablets the > symptoms disappeared. But the body aches, lower back pain, neck pain, > shoulder pain, sciatica pain headaches, continued. > I went to my doctor here and they did some blood tests and x rays and a > bone > density test but all was normal. > He told me to take anti inflams and painkillers and go home. > I have not been back to him since. (maybe that is a mistake now i dont > know). > I then went on my own journey of physio, chiro, myotherapy, oseopath, and > bowen therapy trying to find some relief. > All making the pain worse except bowen therapy that does give me some > relief > from time to time; depending on the severity of the pain at the time. > now 6 yrs later i am still living with the pain only the symptoms have > grown > to other problems like TMJ. IBS, sleep problems . > Now that the seasons have changed my pain and fatigue have escalated again > this time alot worse so i have now gone back to a female doctor and she > has > just sent me to have blood tests again and put me on endep 10mg to help me > sleep. > the first night i was on them i got 3 hours sleep with out waking up the > next night 4 hours but then the next night and the night after that i am > back to not sleeping well at all. waking up every hour to 2 hours. i am > exhausted in the morning. The morning stiffness is not as > severe as before taking the tablets but still i am achey. > i am trying to keep my spirits up and not let myself get too down with all > this but it is very difficult. I am so tired all day everyday. > i have to go back to the doctor on monday to find out the results but i > dont > hold my breath as i am expecting them to come up normal again like last > time. > I feel like i am loosing my mind at times, hubby tries to be supportive > but > he really has no idea what to do or how i feel, and how can he! > i am hoping by being here in this group that i can find some support to > keep > me grounded. > thank you for reading my post > wendy > > -- > they say 'what goes around comes around' that would explain why i am such > a > dizzy person! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 thank you misty, yes that is exactly what i have been doing all these years while i have not had a diagnosis. and i suspect i will continue to do the same even after going through the paces with this doctor. i have learnt to deal with the aches and pains and chronic pains over the years but the lack of sleep is only new for me and is really taking its toll on me and the meds she gave me have done nothing. i really dont want her to up the anti depressants (frankly i am not depressed!) never have been! but after 4 weeks with very little sleep i can see how one does get depressed. It is effecting me in all sorts of ways. anyway i will hang in there just not sure where to go from here wendy > > , > > I think everyone handles FM in different ways, and of course FM hits > everyone in different ways too. I've learned over the last 29 years what > I'm capable of doing...(most of the time)...and what I'm not capable of > doing. I know what meds work for me and what don't. > > I've found that handling my FM is a huge balancing act between stress, > meds, sleep, and support. If I can get all of them to balance, I'm fairly > well off. I visit a GP, I go once every 3 months for blood work, and > updated prescriptions. The rest I handle on my own. My dr is a believer > that FM and CFS/ME are one in the same...I'm not. However he's conceded to > help me in any way I ask. I've found by staying far away from Rheumy's my > FM and CFS are more in control. But that's my personal opinion. What works > for me won't necessarily work for you, and visa versa. Bottom line, we know > what our body is capable of handling more than someone who doesn't have > this. Find your limitations and try to live within them. I hope my > rambling has helped. (lol) > > Best Wishes, > > Misty > > Patient & Founder > FM/CFS/ME Resources > http://fmcfsme.d-3systems.com/ > > > --------------------------------- > We won't tell. Get more on shows you hate to love > (and love to hate): Yahoo! TV's Guilty Pleasures list. > > Quote Link to comment Share on other sites More sharing options...
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