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Re: Welcome Lori Ice Cuff

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Now that I think about it.....they have them with pads too....instead of a cuff. And, you can put hot water in it also.

I was just thinking about this because I asked for a heating pad while in the hospital after I had Petey.....because the RSD had spread into my shoulder during the C-section, and I was told that they didn't have any heating pads.....but they did have that thing.

It worked really good!

Tonia

-------Original Message-------

Sandi,

I'm not sure the technical name of it, I've never seen it in a PT office. They use it after major surgeries. It is a cooler that you fill with ice and water and it pumps cold water into a cuff around your knee (or whatever affected area) It feels much better than regular ice as the ice pieces are very hard after surgery. Hope this helps!

Lori

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Ok, I'm curious here.

Wouldn't you be able to put hot/warm water into that cuff just as easily as you do cold water? I mean, it sounds like it would work.....

But, if you could add the hot water to it, that would help with the burning pain, muscle tightness, spasms......

Just an idea, whereas I don't have one and have no clue as to what you can and can't do with one...

Tonia

-------Original Message-------

It is a cooler that you fill with ice and water and it pumps cold water into a cuff around your knee (or whatever affected area)

Lori,

I have one of those also, one of the doctors ordered following ulnar nerve surgery. The cuff inflates as the ice water goes into it and it gets tighter, I used it as prescribed even though it hurt.

About two years later when I was diagnosed with RSD, the doctor we saw said to burn the cyro cuff as it would cause further problems.

We have it put away as it was expensive, w/c refused to cover the cost.

The only thing that has helped me has been warm water walking as long as there are no jets on in the therapy pool or spa. The pressure from the jets is too much.

Take Care,

Hoping for Pain Free Days,Sandi

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Tonia,

They do work great! I mentioned the ice to my doctor and he didn't seem overly concerned about it. He told me that first of all, it is not proven, as we know, and second of all he said in the early stage it shouldn't be a problem. He also said something interesting, he said ice can be bad because is constricts the blood vessels which are already constricted from the RSD. But he said mine seems to be the opposite because my knee is red and extremely hot. Where RSD usually gets cold mine is not, so I don't know what to do. He did increase my Neurontin and Methadone and said hopefully the medication will help and if it does I can start getting off the ice. Also, I found this website last night called RSDDocs and the "specialist" I"m supposed to see in April was not on the list. My doctor also said yesterday to let him know how the doctor is, so obviously he doesn't really know anything about him. I didn't feel real good about that. I did find a doctor on the website who is in Miami. I'm wondering if I should call him on my own or maybe let my neurologist know about it?? Any advice?? I"d rather go to a known specialist then just another pain doc. Let me know what you all think.

Thanks,

Lori

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Tonia,

You probably could but I don't know how long the water would stay hot. You can

pack the ice in there and have it stay cold for almost 12 hours, but nothing hot

to keep in there, if that makes sense.

Lori

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