New member from Oklahoma

[Guest guest]

Hi,

I just want to let those from Oklahoma know that we have a new

RSD/CRPS Support Group that meets once a month at the Mercy

Neurosciences Institute, thanks to Drs. and Marshall. If you

have any questions about our group, please contact me at

rspisapainforme@...

I have had RSD for 3 1/2 years after lifting a box of books and when

I turned to set them on a table, my left knee popped. This is the

craziest condition I have ever heard of, let alone dealt with. I am

fortunate to have a very supportive family. I could write a book on

the politics of the Workers Comp system in OK as well as the Social

Security System. Whew--tires me out to think about it!

I would love to visit with anyone who has RSD. I don't like that pain

is our commonality, but I have met some true friends through this

ordeal. Some of the other people I thought were my friends hit the

road about 3 years ago--right at the time I was finally diagnosed

with RSD.

Thanks for your support.

Lynn

[Guest guest]

Hello and Welcome,

I hate that we have to meet under these conditions. I was diagnosed in January after foot surgery in November did not heal properly. It was still painful, so the doctor ordered a bone scan. This was to rule out bone infection. It came back with RSD. I think I would have rather had the infection. Antibiotics could have cured this. RSD, will be here forever. I have been to the pain clinic once and it was not too bad. I go again for an LSB on the 21st. I am pretty scared. They say that it is not a big deal. Have you had any experience with this? Do you know anyone who has? Let me know.

Get back to me on your ideas and suggestions.

Tammie in Iowa rsdisapainforme wrote:

Hi,I just want to let those from Oklahoma know that we have a new RSD/CRPS Support Group that meets once a month at the Mercy Neurosciences Institute, thanks to Drs. and Marshall. If you have any questions about our group, please contact me at rspisapainforme@...I have had RSD for 3 1/2 years after lifting a box of books and when I turned to set them on a table, my left knee popped. This is the craziest condition I have ever heard of, let alone dealt with. I am fortunate to have a very supportive family. I could write a book on the politics of the Workers Comp system in OK as well as the Social Security System. Whew--tires me out to think about it!I would love to visit with anyone who has RSD. I don't like that pain is our commonality, but I have met some true friends through this ordeal. Some of the

other people I thought were my friends hit the road about 3 years ago--right at the time I was finally diagnosed with RSD.Thanks for your support.Lynn

[Guest guest]

Tammie - Please do not give up hope. If they started treatment as early as January, you have a pretty good shot at getting this under control. We'll all keep our hopes up for you too. Barbaratammie barber wrote:

Hello and Welcome,

I hate that we have to meet under these conditions. I was diagnosed in January after foot surgery in November did not heal properly. It was still painful, so the doctor ordered a bone scan. This was to rule out bone infection. It came back with RSD. I think I would have rather had the infection. Antibiotics could have cured this. RSD, will be here forever. I have been to the pain clinic once and it was not too bad. I go again for an LSB on the 21st. I am pretty scared. They say that it is not a big deal. Have you had any experience with this? Do you know anyone who has? Let me know.

Get back to me on your ideas and suggestions.

Tammie in Iowa rsdisapainforme wrote:

Hi,I just want to let those from Oklahoma know that we have a new RSD/CRPS Support Group that meets once a month at the Mercy Neurosciences Institute, thanks to Drs. and Marshall. If you have any questions about our group, please contact me at rspisapainforme@...I have had RSD for 3 1/2 years after lifting a box of books and when I turned to set them on a table, my left knee popped. This is the craziest condition I have ever heard of, let alone dealt with. I am fortunate to have a very supportive family. I could write a book on the politics of the Workers Comp system in OK as well as the Social Security System. Whew--tires me out to think about it!I would love to visit with anyone who has RSD. I don't like that pain is our commonality, but I have met some true friends through this ordeal. Some of the

other people I thought were my friends hit the road about 3 years ago--right at the time I was finally diagnosed with RSD.Thanks for your support.Lynn

[Guest guest]

Lin,

From this response it must be the lumbar block so I'm going to throw my two cents in. I don't want to scare you but another girl I know who had one done for other reasons had a similar reaction although to a smaller scale because she does not have RSD. Anyway, they did sedate me too, but the little bit to relax me actually completely knocked me out. This was probably a good thing because I was freezing plus laying on my stomach I couldn't really do with my knee. They put something under it too but I still could not get comfortable and was shaking and spasming pretty bad. So was good to knock me out so I didn't move during the procedure. Anyway, afterwards my whole right side was spasming when I got home and my back was killing me. They said it would go away in a few days but it didn't. I ended up having severe muscle spasms in my back. They gave me trigger shots, put me on like 3 different muscle relaxers as time went on and I wasn't getting better. Finally I went to my primary doctor because the pain doctor couldn't see me. He put me on Flexeril (which I still have to take or I have pain in my back) and I did some physical therapy on it since I was doing therapy for my knee anyway. They did ultrasound and massage on my back and it finally got better. Again, I do not want to scare you but some people have back pain afterwards beyond what the normal pain should be.

Lori

[Guest guest]

( must be one of those ones that don't agree lol. Actually I have been really blessed.and find myself with friends that have stuck me through all of this.....and I've had RSD/CRPS for twelve years. I think it's important for the folks here that are newly diagnosed to know that it's not all downhill. There are treatments that help....and for some folks treatments, if RSD is caught early in the point of the condition, these treatments can stop things in their tracks. While not trying to sound Pollyanna-ish, I believe it's critical for our emotional well-being to remember that not everyone gets all of the symptoms and not everyone gets worse. For those of us who have had RSD for years, there is no doubt that our lives have been significantly changed......I try to remeber that some things balance out in the end. BarbaraAlwayzLoRi@... wrote:

Hi Lynn, it's nice toI think almost everone here would agree that we have lost our "old" friends because of this. I've met some great people here though, so something good has come out of having this.

[Guest guest]

They did not start the treatment that soon. I had so many things inbetween then and now that I can not remember tham all. I was only diagnosed about two months ago. B4 that, I was on steroids, pain meds, and test after test to figure out the pain. Too little too late.

TammieBARBARA TORREY wrote:

Tammie - Please do not give up hope. If they started treatment as early as January, you have a pretty good shot at getting this under control. We'll all keep our hopes up for you too. Barbaratammie barber wrote:

Hello and Welcome,

I hate that we have to meet under these conditions. I was diagnosed in January after foot surgery in November did not heal properly. It was still painful, so the doctor ordered a bone scan. This was to rule out bone infection. It came back with RSD. I think I would have rather had the infection. Antibiotics could have cured this. RSD, will be here forever. I have been to the pain clinic once and it was not too bad. I go again for an LSB on the 21st. I am pretty scared. They say that it is not a big deal. Have you had any experience with this? Do you know anyone who has? Let me know.

Get back to me on your ideas and suggestions.

Tammie in Iowa rsdisapainforme wrote:

Hi,I just want to let those from Oklahoma know that we have a new RSD/CRPS Support Group that meets once a month at the Mercy Neurosciences Institute, thanks to Drs. and Marshall. If you have any questions about our group, please contact me at rspisapainforme@...I have had RSD for 3 1/2 years after lifting a box of books and when I turned to set them on a table, my left knee popped. This is the craziest condition I have ever heard of, let alone dealt with. I am fortunate to have a very supportive family. I could write a book on the politics of the Workers Comp system in OK as well as the Social Security System. Whew--tires me out to think about it!I would love to visit with anyone who has RSD. I don't like that pain is our commonality, but I have met some true friends through this ordeal. Some of the

other people I thought were my friends hit the road about 3 years ago--right at the time I was finally diagnosed with RSD.Thanks for your support.Lynn