new here and need some advice

[Guest guest]

hi sherry,

i'm sorry to hear about your son.while i don't have personal experience with

this, it sounds very similar to what happened to my girlfriend's son. her

little boy was talking too and stopped after his shot. she said he was

different after his shot. she took him to my naturopath and homeopathy has

worked really well for her son. she felt that combined with speech therapy

is making a big difference.

good luck.

mandi

-- New here and need some advice

Hi. My name is Sherry and here is a brief story :

My son will be 3 in July and doesnt seem to want to use language to

communicate. I have had him evaluated for all kinds of developmental

disorders.

They can only tell me that he appears to be perfectly normal with the

exception of the speech delay. He will say single words when

prompted but is very shy around strangers. He will smile at them and

say hi but thats it.

The Dr's say they dont see any signs of Autism.

I did let them give the MMR shot after months of hesitation. He was

saying single words then but stopped shortly after. Of course

everyone rolls their eyes at me when I mention this.

We are seeing a speech therapist and he will say words for her.

I guess I am looking for some input or any suggestions on what might

be wrong. We are to see a neurologist next month. I have no clue

what to expect there.

We just started a mothers morning out program and he loves to go to

school. We have only been 3 times so far and I have stayed with

him. He has never stayed with anyone else so this will be a little

bit of a challenge. I told the director I didnt want him to cry and

she said I could stay as long as I wanted. Its ok to me if he cries

when I first leave. I understand that there is some mommy seperation

going on here too. But I would never let him go more than 10 mins.

I will do whatever it takes for his sake.

He is very smart and very loving. He likes to play with other

kids.....just doesnt talk.

Sherri has recommended a homeopath. There is one listed here so I

think I will call them tomorrow and just go talk to them to see what

they have to say.

Any input is greatly appreciated :-)

thanks

Sherry

[Guest guest]

Sherry, Sounds all too familiar. My son stopped babbling after his first shots

and now at 19 months is 6 - 9 months developmentally delayed. He was severely

autistic, but thanks to homeopathy and his strict elimination diet, at this

point, there are no symptoms of autism. (WOOHHOO!). Just speech and

developmental delays. He is catching up quickly on the developmental and OT

stuff. But he doesn't really want to make words (I can tell it is difficult or

nearly impossible for him to figure out how to make the sounds). He babbles away

but it isn't the usual mama, baba, gaga, it's all gobbledygoop. We've done some

sign language and he can do four signs (more, all done, mad, and yummy). He was

doing mommy and daddy - but he can say both (thank you god!).

The reason it sounds so familiar is that I have four friends with babies born

the exact same time as my son (July of 2001). EVERY SINGLE ONE of them is speech

delayed. Two are completely non-verbal, and two say a few words. All but one is

doing speech therapy with good results (the last refuses to believe there is a

problem she can't fix on her own - and maybe she can...).

In any event, I don't doubt the shots did it for one second. Two had reactions

to their shots. The other two moms refuse to discuss it. Oh well... I can only

offer info if they want it.

So to reassure you, yes, do homeopathy, and yes, I think your son will be

perfectly fine doing the speech therapy. He sounds like a great little boy. And

yes, it sounds like mom is having a hard time with the separation as well. It

gets easier.

Truly,

a

Hi. My name is Sherry and here is a brief story :

My son will be 3 in July and doesnt seem to want to use language to

communicate. I have had him evaluated for all kinds of developmental

disorders.

[Guest guest]

Forgot to mention... please, please, please do some serious research before you

decide to give your child another booster. He could be a candidate for further

regression...

Hi. My name is Sherry and here is a brief story :

My son will be 3 in July and doesnt seem to want to use language to

communicate. I have had him evaluated for all kinds of developmental

disorders.

[Guest guest]

Dear Sherry,

Welcome. Sheri is the one to talk to about homeopathic approaches. I just

started learning about classical homeopathic approaches and am new to this

arena, but I can tell you about some of the educational and/or therapeutic

approaches I used with my son. His name is and he was non-verbal at age

three.

He had what was called a total communication approach in his IEP (Individualized

Educational Plan). Everyone that worked with my son, including me, used many

avenues of communication, i.e. sign language, pictures, pictures (icons) with

the word(s), communication devices that he could push a button or touch a screen

and it would speak for him, modeling, written word--I labeled a lot of things in

the house, etc.

When my son's team knew he could read, we tapped into that avenue for

communication and speech. Today is seven and talks, but is NOT

conversational. Most of his speech is requesting something and/or repetitive

speech. He does know and sings a lot of nursery rhymes, reads out loud and can

quote some of his favorite stories off by heart and can recall word for word

many Mother Goose rhymes.

Another thing we did and still do with , is Greenspan's floortime play. I

have some info. on this and I could mail it to you if you would like. Greenspan

basically involves the parent, teacher, therapist, etc. to allow the child to

take the lead in an activity. Once the child is engaged, you work toward

circles of communication. I remember one of the first things I did with .

He wanted me to push him in the wheelburrow--he climbed in and gave me

non-verbal cues. But, instead of just giving in to his non-verbal cues I gave

him an anticipatory set-- " Ready, get set________ " And then after a little wait,

JJ would say " GO! " Kind of a fill in the blank thing. I will never forget it.

Today, if he is really into something, like swinging and needs a push, he will

generally come up with the entire sentence on his own with a " Ready, get set

go! " Or we might get a " Blast off , solar systems, stars! " Yea, he is missing

a bit in that sentence, but it is great to hear him speak! His syntax is not

age appropiate (for example he will say " I want a drink juice " ), but his speech

therapist thinks that will come in time. We are just elated that he is finally

trying to string words together.

So, hang in there and remember that it might be baby steps or you son may

develop speech quickly. You know him best and need to set up a program that

best meets his needs.

I hope I have helped in some way.

Lynda

New here and need some advice

Hi. My name is Sherry and here is a brief story :

[Guest guest]

>> Sherri has recommended a homeopath. There is one listed here so I

>> think I will call them tomorrow and just go talk to them to see

>what

>> they have to say.

>> Any input is greatly appreciated :-)

>> thanks

>> Sherry

Who is that you found on my list?

Sheri

--------------------------------------------------------

Sheri Nakken, R.N., MA, Classical Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

vaccineinfo@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Homeopathy course - http://www.nccn.net/~wwithin/homeo.htm

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL

OR LEGAL ADVICE. THE

DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

******

" Just look at us. Everything is backwards; everything is upside down.

Doctors destroy health, lawyers destroy justice, universities destroy

knowledge, governments destroy freedom, the major media destroy information

and religions destroy spirituality " .... Ellner

[Guest guest]

a, my son is 18 months old, completely unvaxxed, and doesn't speak a

word either! Sometimes they are just slow to speak. He used to say Dada,

bye-bye, horses, fish, meow, yum-yum, and a few other things, and he just

stopped. He knows exactly what he wants and what he wants to say, but he

just points and " eh, eh " , and shakes his head yes and no. He's been so busy

with his motor skills that the verbal skills just aren't a top priority for

him right now.

I didn't know that they even did speach therapy for an 18 month old!

www.ChestnutHillCurlies.com

Re: New here and need some advice

> Sherry, Sounds all too familiar. My son stopped babbling after his first

shots and now at 19 months is 6 - 9 months developmentally delayed. He was

severely autistic, but thanks to homeopathy and his strict elimination diet,

at this point, there are no symptoms of autism. (WOOHHOO!). Just speech and

developmental delays. He is catching up quickly on the developmental and OT

stuff. But he doesn't really want to make words (I can tell it is difficult

or nearly impossible for him to figure out how to make the sounds). He

babbles away but it isn't the usual mama, baba, gaga, it's all gobbledygoop.

We've done some sign language and he can do four signs (more, all done, mad,

and yummy). He was doing mommy and daddy - but he can say both (thank you

god!).

>

> The reason it sounds so familiar is that I have four friends with babies

born the exact same time as my son (July of 2001). EVERY SINGLE ONE of them

is speech delayed. Two are completely non-verbal, and two say a few words.

All but one is doing speech therapy with good results (the last refuses to

believe there is a problem she can't fix on her own - and maybe she can...).

>

> In any event, I don't doubt the shots did it for one second. Two had

reactions to their shots. The other two moms refuse to discuss it. Oh

well... I can only offer info if they want it.

>

> So to reassure you, yes, do homeopathy, and yes, I think your son will be

perfectly fine doing the speech therapy. He sounds like a great little boy.

And yes, it sounds like mom is having a hard time with the separation as

well. It gets easier.

>

> Truly,

> a

> Hi. My name is Sherry and here is a brief story :

>

> My son will be 3 in July and doesnt seem to want to use language to

> communicate. I have had him evaluated for all kinds of developmental

> disorders.

>

>

[Guest guest]

..

> I did let them give the MMR shot after months of hesitation. He was

> saying single words then but stopped shortly after. Of course

> everyone rolls their eyes at me when I mention this.

Hi Sherry,

Just wanted to say that my son lost the ability to speak after the MMR and

had what we now know were probably subtle seizures (eyes rolling back for a

few seconds). We have been trying to find experts/researchers on language

regression in the absence of autism and it has been very difficult. Where

are you located? We are in KY. Our ped at the time also rolled her eyes at

us and said, " there is no relationship between vaccines and your son's

speech problems. " We stopped all shots nonetheless - ( he has both

exemptions) and of course we stopped taking our son to her. Email me off

list and we can " talk " more about this.

Best,

Sandy

>

>

>

>

[Guest guest]

My son was like that, too, pointing and grunting for the longest time. He was

well past 3 before he could easily be understood by people outside our family.

I think 18 months would be a bit early to be labeling a child (especially a boy)

speech delayed. The other thing was dd (who is 20 months older than my ds) did

plenty of talking for the both of them, so I think he was content with that and

didn't even try (maybe he figured he couldn't get a word in edgewise anyway if

he did try!) : )

Kay

a, my son is 18 months old, completely unvaxxed, and doesn't speak a

word either! Sometimes they are just slow to speak. He used to say Dada,

bye-bye, horses, fish, meow, yum-yum, and a few other things, and he just

stopped. He knows exactly what he wants and what he wants to say, but he

just points and " eh, eh " , and shakes his head yes and no. He's been so busy

with his motor skills that the verbal skills just aren't a top priority for

him right now.

I didn't know that they even did speach therapy for an 18 month old!

[Guest guest]

,

Interesting! I realize some children are just late talkers. It's when they have

been vaxed and there was a reaction that a red flag should go up. (The CDC

itself reports an increase in speech delays for vaxed kids.) My son has other

developmental delays so speech isn't the only one. He also has motor

coordination, and hypotomia. But my other two friends' kids only have the

speech delays and the speech therapy is helping tremendously. I'm sure there

are many kids that will just start talking one day when they are good and ready

without any therapy.

I also know that many toddlers will stop doing new skills they have acquired

while they learn something else. It's when the original skills don't return that

there may be an issue.

Of course, I'm no expert... just sharing my experiences.

Truly,

a

Re: New here and need some advice

a, my son is 18 months old, completely unvaxxed, and doesn't speak a

word either! Sometimes they are just slow to speak. He used to say Dada,

bye-bye, horses, fish, meow, yum-yum, and a few other things, and he just

stopped. He knows exactly what he wants and what he wants to say, but he

just points and " eh, eh " , and shakes his head yes and no. He's been so busy

with his motor skills that the verbal skills just aren't a top priority for

him right now.

I didn't know that they even did speach therapy for an 18 month old!

www.ChestnutHillCurlies.com

[Guest guest]

I felt like you were describing my son to a T at that age. I also see a

connection with vaccines. I just had my 2nd child and got the eyes rolling when

the pedi nurse (who comes to your home here for the first visit) was informed we

will not be vaxing and why.

As for ds, he was diagnosed with a " unique " but normal personality. So we just

stopped vaxing him, but didn't think of trying homopathy until recently. Since

ds never really gets sick it was never a worry.

He is now 9 and started takling around 4 - 5 years, yet it started with him

describing. Sometimes I still have to explain what he means to people who aren't

use to him.

Cyn~

New here and need some advice

> Hi. My name is Sherry and here is a brief story :

>

> My son will be 3 in July and doesnt seem to want to use language to

> communicate. I have had him evaluated for all kinds of developmental

> disorders.

> They can only tell me that he appears to be perfectly normal with the

> exception of the speech delay. He will say single words when

> prompted but is very shy around strangers. He will smile at them and

> say hi but thats it.

> The Dr's say they dont see any signs of Autism.

> I did let them give the MMR shot after months of hesitation. He was

> saying single words then but stopped shortly after. Of course

> everyone rolls their eyes at me when I mention this.

> We are seeing a speech therapist and he will say words for her.

> I guess I am looking for some input or any suggestions on what might

> be wrong. We are to see a neurologist next month. I have no clue

> what to expect there.

> We just started a mothers morning out program and he loves to go to

> school. We have only been 3 times so far and I have stayed with

> him. He has never stayed with anyone else so this will be a little

> bit of a challenge. I told the director I didnt want him to cry and

> she said I could stay as long as I wanted. Its ok to me if he cries

> when I first leave. I understand that there is some mommy seperation

> going on here too. But I would never let him go more than 10 mins.

> I will do whatever it takes for his sake.

> He is very smart and very loving. He likes to play with other

> kids.....just doesnt talk.

> Sherri has recommended a homeopath. There is one listed here so I

> think I will call them tomorrow and just go talk to them to see what

> they have to say.

> Any input is greatly appreciated :-)

> thanks

> Sherry

>

>

>

>

>

[Guest guest]

my almost 5 y/o son 7/18 has me baffled and distraught. since

attending regular pre-k i have noticed his motor skills are behind

others his own age. difficulty catching ball, poor coordination. poor

upper body strength, strong legs, i think he has overcompensated for

weak upprer arm strength. i know this is a speech disorder message

board, but maybe he has a mild form of the speech with more motor

difficultie. he was speech delayed, had him tested by EIP but he

wasn't delayed enough. he would pronounce begining sound and end of

word but leave out the middle. that is the most vivid memory of his

patterns that i can recall.spoke like he had mouth full of marbles at

times. he starts regular kindergarten is sept. a 6.5 hour day which

scares the heck out of me. he has started to state he can't he wont

try new things because he can't do them. i spoke to new schools

psycologist about having him re-evaluated, she said she would have

him done in sept. they don't do them over the summer. she suggested

i have a private pt evaluation on my own to see where he stands.i did

that and he is in the 19th percentile 12% is the cutoff for

services.she said in two of the areas he tested at 3.8 years but in

one area he tested in above a 5 yo range.i think one skill put him

over to a higher percentile. she said he had mildly tight hamstrings,

poor muscle development upper arms.he can't skip, jumps but falls

most times when he lands.he is very bright, knows all his letters can

count up to 30-35, after doing some net surfing i came upon

dyspraxia, but also cerebal palsy. as far as cerebral palsy goes,

both are very similar in symptoms, the mild form of cp. anyone here

have any idea how to differntiate between the two. my pediatrician

said falling within the 19th percentile is still ok, within normal,

my ped is a glass is half full type of guy, while i am a half empty

person.he appreciated my concerns and suggested a neurolgy consult to

put my mind at ease he said.my son just asked me the other day, why

can't i make my body ride my bike faster? (training wheel bike of

course)he is slow and deliberate. so is his writing, he can write ok,

but this little guy has been writing his letters almost daily since

january. he has finally gotten the proper pencil grasp , but only for

about 2 weeks now.he also has a defeatist attitude lately, he says i

can't or refuses to try new things without tremendous

encouragement.also is saying i'm stupid now, that is what is scaring

me. what will he do when he gets to school and i am not there to

push him. he is quiet by nature, kind and goes with the flow, i think

he will get eaten up in school.any one know anything about motor

dyspraxia versus cerebra palsy? is the only way by brain scan or mri?

his neurology appointment isn't until august 8th and i am losing my

mind trying to get him up to speed for september.PLEASE someone give

me some ideas or suggestions for him.

[Guest guest]

Hi,

First of all, I would put your request in writing with the school to

have a full OT, PT and speech evaluation and request an IEP meeting.

Confirm that this was promised the first week of school. They are

already playing games by telling you to get your own PT eval. OT can

also help with gross motor skills you describe. PT Is difficult to

get in a school environement b/c it is more medical and as long a

child functions in the class, does stairs, walks across the room with

a tray can get up from a seated position they are off the hook. So

focis on the OT.

Make sure they use a test that tests connected speech and not

isolated words. That is where apraxic children who are speaking break

down the most.

Look into a gymnastics type class. This did wonders for my now 5 year

old. Also take advantage of the summer and do lots of swimming.

Second find an advocate so when you have an IEP meeting you have

someone who knows your rights at your side. It fascinates me how

cooperative schools are when their attempts to not service our kids

are under scrutiny.

Good luck, and stay in touch on the board. You will learn tons here!

Mom to 5 and 3

> my almost 5 y/o son 7/18 has me baffled and distraught. since

> attending regular pre-k i have noticed his motor skills are behind

> others his own age. difficulty catching ball, poor coordination.

poor

> upper body strength, strong legs, i think he has overcompensated

for

> weak upprer arm strength. i know this is a speech disorder message

> board, but maybe he has a mild form of the speech with more motor

> difficultie. he was speech delayed, had him tested by EIP but he

> wasn't delayed enough. he would pronounce begining sound and end of

> word but leave out the middle. that is the most vivid memory of his

> patterns that i can recall.spoke like he had mouth full of marbles

at

> times. he starts regular kindergarten is sept. a 6.5 hour day which

> scares the heck out of me. he has started to state he can't he wont

> try new things because he can't do them. i spoke to new schools

> psycologist about having him re-evaluated, she said she would have

> him done in sept. they don't do them over the summer. she

suggested

> i have a private pt evaluation on my own to see where he stands.i

did

> that and he is in the 19th percentile 12% is the cutoff for

> services.she said in two of the areas he tested at 3.8 years but in

> one area he tested in above a 5 yo range.i think one skill put him

> over to a higher percentile. she said he had mildly tight

hamstrings,

> poor muscle development upper arms.he can't skip, jumps but falls

> most times when he lands.he is very bright, knows all his letters

can

> count up to 30-35, after doing some net surfing i came upon

> dyspraxia, but also cerebal palsy. as far as cerebral palsy goes,

> both are very similar in symptoms, the mild form of cp. anyone here

> have any idea how to differntiate between the two. my pediatrician

> said falling within the 19th percentile is still ok, within normal,

> my ped is a glass is half full type of guy, while i am a half empty

> person.he appreciated my concerns and suggested a neurolgy consult

to

> put my mind at ease he said.my son just asked me the other day, why

> can't i make my body ride my bike faster? (training wheel bike of

> course)he is slow and deliberate. so is his writing, he can write

ok,

> but this little guy has been writing his letters almost daily since

> january. he has finally gotten the proper pencil grasp , but only

for

> about 2 weeks now.he also has a defeatist attitude lately, he says

i

> can't or refuses to try new things without tremendous

> encouragement.also is saying i'm stupid now, that is what is

scaring

> me. what will he do when he gets to school and i am not there to

> push him. he is quiet by nature, kind and goes with the flow, i

think

> he will get eaten up in school.any one know anything about motor

> dyspraxia versus cerebra palsy? is the only way by brain scan or

mri?

> his neurology appointment isn't until august 8th and i am losing my

> mind trying to get him up to speed for september.PLEASE someone

give

> me some ideas or suggestions for him.

[Guest guest]

Thanks Notan and Ann for your advice, that relly helps, but I'm still so sad.. this past months were soo good that I thought I was cured, I eat what I liked, I slept perfect (unless my son wakes me up) I didn't even had heartburn. And now thinking back how bad I was before the surgery.. oh please I don't want that again...I hope. I'm from Mexico but I have been living in Minnesota for almost 8 years. Beautiful place where you live Ann I wish I could visit again! Tace care and thanks again. Hilda lilac_blossom_lady <lilac_blossom_lady@...> wrote: Hello Hilda, Welcome to the Group. Don't panic darlin'. I think that what you are describing has happened to quite a

few people. From what I have read, some people need a dilation a few months after surgery. You would think that having the surgery would be a permanent answer wouldn't you? But it doesn't seem to be like that. As for the blood, join the club! As long as it doesn't happen regularly the Doctors don't seem to be too concerned about it. I had some a couple of weeks ago and did exactly the same as you,panicked, straight onto email to talk to my friend . A couple of hours later I was feeling a lot calmer when I could be a bit more logical. Our oesophaguses (oesophagi ? - Oh blimey!) become quite vulnerable, misshapen, sore - you name it, they are it, and sometimes they complain. I assume you will be seeing you Doc quite soon so that he can arrange a check-up for you. Meanwhile try not to worry too much. Just have a chat to us lot if it is getting you down. There is a lot of

caring in this Group. Lots of love from Ann in England (Where are you Hilda?) XXX >> Hi everyone, > I'm new here and I was diagnosed with achalasia a little over 3 years > ago, i went through a terrible pregnancy, right after my son was born I > had a botox shot which helped for about 4 months then I had the heller > myotomy (last april) and I thought I was cured.. but I'm starting to > get food stuck and today I threw up for the first time, it was very > hard and painful, and I could see some blood in there.> I'm very scared, Please! has this happened to any of you too?> Thanks in advance> Hilda>

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