Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 Bet, " go to the recreation center " ? He's kidding, right? (lol) " Recration " for me is getting in and out of my wheelchair to use the bathroom. On a " good day " I can get in and out of the tub for a shower. I haven't been able to actually walk in years, and am hardly able to push myself in the wheelchair. Pain is a 24/7/365 event for me, as is for most of us I'm sure. Best Wishes, Misty Patient & Founder FM/CFS/ME Resources http://fmcfsme.d-3systems.com/ <<I just told my husband over breakfast.. This is a lonely illness.. We look fine and act fine.. But I get worn out fast and sometimes hurt more than Other days.. He said well maybe you need to go to the recreation center and go on the machines.. And loose Weight too .. LOL I told him I will do all those things But it will not take away the pain or fatigue it will help My bones etc.. I told him people think we are slugs and It is so miss under stood... Gave it to him lol Bet>> --------------------------------- The fish are biting. Get more visitors on your site using Yahoo! Search Marketing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 LOL Sorry Misty.. I don't think my Fibro has advanced as some of yours has .. My doc thought I had RA and the specialist thinks it is Fibro.. And osteo. I ache all over most of the time.. And the fatigue is terrible.. I am able to walk well and can do 15 min so far around the block.. I can go to the center to swim but havent yet and use some of the walking machines.. The tiredness has been going on for a long time.. And I blamed a lot on my bad chronic back problems.. But now my arms and hands hurt as the rest of me.. I am sorry but your post below cracked me up.. I know you are in a terrible state but you put it so funny... Yes I am in some state of pain all the time.. It isnt do I have pain its how much today.. God bless you Misty.. Bet 1:12 NIV Blessed is the man who perseveres under trial, because when he has stood the test, he will receive the crown of life that God has promised to those who love him. -- Re: Recreation??? Bet, " go to the recreation center " ? He's kidding, right? (lol) " Recration " for me is getting in and out of my wheelchair to use the bathroom. On a good day " I can get in and out of the tub for a shower. I haven't been able to actually walk in years, and am hardly able to push myself in the wheelchair. Pain is a 24/7/365 event for me, as is for most of us I'm sure. Best Wishes, Misty Patient & Founder FM/CFS/ME Resources http://fmcfsme.d-3systems.com/ <<I just told my husband over breakfast.. This is a lonely illness.. We look fine and act fine.. But I get worn out fast and sometimes hurt more than Other days.. He said well maybe you need to go to the recreation center and go on the machines.. And loose Weight too .. LOL I told him I will do all those things But it will not take away the pain or fatigue it will help My bones etc.. I told him people think we are slugs and It is so miss under stood... Gave it to him lol Bet>> --------------------------------- The fish are biting. Get more visitors on your site using Yahoo! Search Marketing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 Hi Misty, Don't worry if you can't walk. Getting in and out of a w/c or shower is strenuos enough for you. That gets your heart rate up some. I am proud that you try and get out of your w/c for the bathroom or shower. Just do what little you can and that's what counts. hugs, Debbie J > > Bet, > > " go to the recreation center " ? He's kidding, right? (lol) " Recration " for me is getting in and out of my wheelchair to use the bathroom. On a " good day " I can get in and out of the tub for a shower. I haven't been able to actually walk in years, and am hardly able to push myself in the wheelchair. Pain is a 24/7/365 event for me, as is for most of us I'm sure. > > Best Wishes, > > Misty > > Patient & Founder > FM/CFS/ME Resources > http://fmcfsme.d-3systems.com/ > > >> > --------------------------------- > The fish are biting. > Get more visitors on your site using Yahoo! Search Marketing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 Bet, I learned a LONG time ago that you have to try to find a sense of humor. Otherwise the urge to do away with yourself is too great. Of all the doctors I've been to, (trust me there've been a few), they all have remarked on the extent of my FM, CFS/ME. In the beginning I had assumed everyone had it as bad as I did. But then I began meeting people online, and I realized very few of them were as disabled as I was. I still have to chuckle to myself when I think back on my interview with the disability judge, many years ago. Here I was, sitting in my wheelchair, trying not to cry because the pain of sitting was unbearable. The tears streaming down my cheeks as I answer questions from the judge. After 30 minutes of this he turns and says to his asistant, " why is this women here, she should have been granted SSD long ago. " Many people ask me " how do you do it? " , " what's your secret " , or " what's your strategy for dealing with FM, CFS/ME " . Again I have to chuckle to myself. Does anyone ask a " normal " person what their strategy for breathing is? How do they get through the day? By putting one foot in front of the other....if possible...and dealing with the cards you've been dealt. There comes a point in life where you have to make a choice. A choice of trying to exist, or giving up. Most people choose life. That's the hard road, and the one usually traveled alone. After 29 I've learned my limitations...for the most part...FM always likes to throw you a curve, just to make sure it's got your full attention. I've mourned my youth, my middle years, and even old age. I know my life isn't great, but it's mine, and I choose to enjoy it to the fullest extent. I will not sit and dwell on my losses, nor will I hang out with people who don't believe in me. Many a time I've traveled the road alone because of this, but it beats the misery of people who don't belive it's real. I used to think the opposite of love was hate. I learned long ago that it was indifference instead. I've survived 29 years with FM/CFS/ME, 15 years in a wheelchair, 13 years in an abusive marriage, 2 heart attacks and I still refuse to give up. At 46 I still have a life to look forward to. Sorry for writing so much, kind of got carried away. Misty Patient & Founder FM/CFS/ME Resources http://fmcfsme.d-3systems.com/ <<LOL Sorry Misty.. I don't think my Fibro has advanced as some of yours has .. My doc thought I had RA and the specialist thinks it is Fibro.. And osteo. I ache all over most of the time.. And the fatigue is terrible.. I am able to walk well and can do 15 min so far around the block.. I can go to the center to swim but havent yet and use some of the walking machines.. The tiredness has been going on for a long time.. And I blamed a lot on my bad chronic back problems.. But now my arms and hands hurt as the rest of me.. I am sorry but your post below cracked me up.. I know you are in a terrible state but you put it so funny... Yes I am in some state of pain all the time.. It isnt do I have pain its how much today..>>> --------------------------------- The fish are biting. Get more visitors on your site using Yahoo! Search Marketing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 God Bless you Misty.. Bet -- Re: Recreation??? Bet, I learned a LONG time ago that you have to try to find a sense of humor. Otherwise the urge to do away with yourself is too great. Of all the doctors I've been to, (trust me there've been a few), they all have remarked on the extent of my FM, CFS/ME. In the beginning I had assumed everyone had it as bad as I did. But then I began meeting people online, and I realized very few of them were as disabled as I was. I still have to chuckle to myself when I think back on my interview with the disability judge, many years ago. Here I was, sitting in my wheelchair, trying not to cry because the pain of sitting was unbearable. The tears streaming down my cheeks as I answer questions from the judge. After 30 minutes of this he turns and says to his asistant, " why is this women here, she should have been granted SSD long ago. " Many people ask me " how do you do it? " , " what's your secret " , or " what's your strategy for dealing with FM, CFS/ME " . Again I have to chuckle to myself. Does anyone ask a " normal " person what their strategy for breathing is? How do they get through the day? By putting one foot in front of the other....if possible...and dealing with the cards you've been dealt. There comes a point in life where you have to make a choice. A choice of trying to exist, or giving up. Most people choose life. That's the hard road, and the one usually traveled alone. After 29 I've learned my limitations...for the most part...FM always likes to throw you a curve, just to make sure it's got your full attention. I've mourned my youth, my middle years, and even old age. I know my life isn't great, but it's mine, and I choose to enjoy it to the fullest extent. I will not sit and dwell on my losses, nor will I hang out with people who don t believe in me. Many a time I've traveled the road alone because of this, but it beats the misery of people who don't belive it's real. I used to think the opposite of love was hate. I learned long ago that it was indifference instead. I've survived 29 years with FM/CFS/ME, 15 years in a wheelchair, 13 years in an abusive marriage, 2 heart attacks and I still refuse to give up. At 46 I still have a life to look forward to. Sorry for writing so much, kind of got carried away. Misty Patient & Founder FM/CFS/ME Resources http://fmcfsme.d-3systems.com/ <<LOL Sorry Misty.. I don't think my Fibro has advanced as some of yours has .. My doc thought I had RA and the specialist thinks it is Fibro.. And osteo. I ache all over most of the time.. And the fatigue is terrible.. I am able to walk well and can do 15 min so far around the block.. I can go to the center to swim but havent yet and use some of the walking machines.. The tiredness has been going on for a long time.. And I blamed a lot on my bad chronic back problems.. But now my arms and hands hurt as the rest of me.. I am sorry but your post below cracked me up.. I know you are in a terrible state but you put it so funny... Yes I am in some state of pain all the time.. It isnt do I have pain its how much today..>>> --------------------------------- The fish are biting. Get more visitors on your site using Yahoo! Search Marketing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2007 Report Share Posted March 20, 2007 <<God Bless you Misty.. Bet>> Thanks (smile), sorry for rambling on so. Best Wishes, Misty Patient & Founder FM/CFS/ME Resources http://fmcfsme.d-3systems.com/ --------------------------------- Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Yahoo! Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2007 Report Share Posted March 20, 2007 That was a beautiful recap of your life so far. I truly admire you Misty. Margaret B > Bet, > > I learned a LONG time ago that you have to try to find a sense of > humor. Otherwise the urge to do away with yourself is too great. > Of all the doctors I've been to, (trust me there've been a few), > they all have remarked on the extent of my FM, CFS/ME. > > In the beginning I had assumed everyone had it as bad as I did. > But then I began meeting people online, and I realized very few of > them were as disabled as I was. I still have to chuckle to myself > when I think back on my interview with the disability judge, many > years ago. Here I was, sitting in my wheelchair, trying not to cry > because the pain of sitting was unbearable. The tears streaming > down my cheeks as I answer questions from the judge. After 30 > minutes of this he turns and says to his asistant, " why is this > women here, she should have been granted SSD long ago. " > > Many people ask me " how do you do it? " , " what's your secret " , or > " what's your strategy for dealing with FM, CFS/ME " . Again I have > to chuckle to myself. Does anyone ask a " normal " person what their > strategy for breathing is? How do they get through the day? By > putting one foot in front of the other....if possible...and dealing > with the cards you've been dealt. There comes a point in life > where you have to make a choice. A choice of trying to exist, or > giving up. Most people choose life. That's the hard road, and the > one usually traveled alone. > > After 29 I've learned my limitations...for the most part...FM > always likes to throw you a curve, just to make sure it's got your > full attention. I've mourned my youth, my middle years, and even > old age. I know my life isn't great, but it's mine, and I choose > to enjoy it to the fullest extent. I will not sit and dwell on my > losses, nor will I hang out with people who don't believe in me. > Many a time I've traveled the road alone because of this, but it > beats the misery of people who don't belive it's real. I used to > think the opposite of love was hate. I learned long ago that it > was indifference instead. > > I've survived 29 years with FM/CFS/ME, 15 years in a wheelchair, > 13 years in an abusive marriage, 2 heart attacks and I still refuse > to give up. At 46 I still have a life to look forward to. Sorry > for writing so much, kind of got carried away. > > Misty > > Patient & Founder > FM/CFS/ME Resources > http://fmcfsme.d-3systems.com/ > > > > <<LOL Sorry Misty.. I don't think my Fibro has advanced as some > of yours has > . My doc thought I had RA and the specialist thinks it is Fibro.. > And osteo. > I ache all over most of the time.. And the fatigue is terrible.. I > am able > to walk well and can do 15 min so far around the block.. I can go > to the > center to swim but havent yet and use some of the walking > machines.. The > tiredness has been going on for a long time.. And I blamed a lot on > my bad > chronic back problems.. But now my arms and hands hurt as the rest > of me.. > I am sorry but your post below cracked me up.. I know you are in a > terrible > state but you put it so funny... > Yes I am in some state of pain all the time.. It isnt do I have > pain its how > much today..>>> > > > --------------------------------- > The fish are biting. > Get more visitors on your site using Yahoo! Search Marketing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2007 Report Share Posted March 20, 2007 Margaret, Thanks. Always nice to be admired. (lol) Misty Patient & Founder FM/CFS/ME Resources http://fmcfsme.d-3systems.com/ --------------------------------- Don't pick lemons. See all the new 2007 cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
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