Re: Oh Lori, you sweet baby, this is just so awful, I am ...

[Guest guest]

JoAnn,

Thank you so much for everything you said to me, you don't know how much it means to me that you take the time to talk to me and help me with my problems when you have so much going on too. I thank you so much, truly from the bottom of my heart.

I am trying to stay positive, I really am. Just right now is so difficult that I'm getting diagnosed with disease after disease, I wonder when it will ever stop. I feel the next thing they are going to tell me is I have Lupus, just the way everything is going I would not be surprised. And then the doctors, well you all know the story, but it's so frustrating to be told on top of RSD you have fibro and reynauds and carpal tunnel, and I sit here getting no treamtment for any of it. But I'm trying to hang in, I have several appointments coming up, so hopefully something good will come out of at least 1 of them.

I just got the wrist slints that the doctor prescribed today. She told me only to wear them when I sleep though so they will not help me typing. Even if I could wear them during the day it would be hard. I have to break them in so they told me to wear them for 20 minutes, then wait an hour, and so on today to break them in, and I tried typing with them, it is near impossible...lol. But I'm taking today off from work and the next couple weeks will be calmer. It's only towards the end of the month that is Really bad with all the books I have to produce. But maybe the splints will help by then, keeping my fingers crossed. I also have to wear gloves pretty much all the time as I'm not allowed to hold a cold glass or anything. I swear I look like the biggest idiot here, makes me glad sometimes that I live alone.

Anyway, I am rambling now, thank you again for everything, you are so kind and I am so lucky to have you as a friend. Hope you are having a good day yourself and too!

Lori

[Guest guest]

lol Lin...I've only known you a short time but it will still be hard to get used to Lin...heh. I wrote a long e-mail about Reynauds but in case you miss it it's basically your blood vessels constrict and the affected area gets different colors. Mine is my hands and when it happens a couple fingers of sometimes parts of all my fingers get really white and cold. Then as you warm them up they might get blue because the blood stays in the blood vessels instead of flowing properly. Then as it starts to flow they get red or purplish. It can be a disease on it's own or a symptom of another disease. I still don't know if I have Lupus yet but if I do it could be a symptom of Lupus. It's chronic and from what Dawn and Tammie told me it gets worse to where you are freezing all the time. I have to wear gloves to touch anything cold, like a cold drink of whatever, and try to keep my body warm at all times. Fun fun, huh? I get down sometimes but I try to remain optimistic, and I really like talking to the group so I guess that's why I sound cheerful. Hope you're having a good day! Lori

[Guest guest]

Lin,

I definitely have the Raynauds, I just don't know if the Lupus is causing it or if I just have it on it's own. I have to go for more blood work on the Lupus and I go back on the 20th to get the results. So yeah I have RSD, Fibromyalgia and Raynauds, and possibly Lupus. I'm trying to deal with it as best as I can and not get down. My sisters have been really great listening and supporting me but don't really know what advice to give me. My mom is hard to deal with because she is kind of in denial about the whole thing. She tries to give me hope but it's like false hope, if that makes any sense, she won't face the reality of everything yet. But I'm just trying to keep busy and continue working, but without my hobbies my mind sometimes thinks too much, but I just hope it all comes out ok. Anyway, I'm rambline...lol...thank you for your support and concern and good luck with the MRI, let us know the results when you get them. Lori = )