Re: to is and Georgia

[Guest guest]

is,

You may want to try DMG or TMG (read about it at kirkmanlabs.com) and see if

that has any effect. When my son was your daughter's age, I saw a surge in his

development while he was taking it, primarily with his ability to focus and pay

attention and development in speech. It is basically a B vitamin (B15). It's

just a thought but something I thought of when I read your post.

You are very correct in saying that time will help too. My daughter MiKayla

narrowly missed a diagnosis of autism at age 3 she had such severe dyspraxia and

hypotonia and a sleep disorder and sensory issues to boot. If you saw her today

at age 6 you'd swear a miracle had occurred! She talks up a storm now (although

unless you know her well you'd only understand about half of her speech) and she

is very active, social and imaginative...a totally different child. I credit

gaining an older typical sister when I remarried and Kindergarten with typical

peers with helping her overcome most of her issues. There is hope and we won't

give up on Georgia!

Tammy

[ ] Off the ProEFA and ProEPA information

Hi everyone,

This is our update on my daughter's ProEFA/ProEPA treatment and her

progress with speech. We took her off her fish oil therapy 2-3

months ago, because after 8 months - it clearly was not " working " .

Brief history: (Georgia did not make any sounds until 14 months old.

She is cognitively on target, but has mild hypotonia. Her receptive

language is excellent.)

What a little mystery our 2.5 year old daughter is!! Georgia has

been dx with severe apraxia and through my research, I put her on

ProEFA 8 months ago and steadily and very slowly increased her

dosage to 2 caps ProEFA daily and 1 cap ProEPA.

Not once did I see an improvement in speech while on the fish oils.

We did not see an improvement with a different dosage, or adding

ProEPA. There was no connection with her spontaeous words or

increased facial expressions with the fish oils. Nothing.

Her clothing smelled of fish oil and when she perspired, it was very

fishy....and after 5 months of nothing significant - we pulled her

off. I told myself that the second that I see any sort or regression

in sounds, facial expressions, attention span, ANYTHING...I would

put her back on the oils. She has had No regression. She has

continued to follow her own pattern of improvement with speech -

despite fish oils in her diet or not.

Here is the GOOD NEWS and the mystery of our daughter:

One week off the fish oils entirely - Georgia said " Bye Bye " .

Now 3 months off the fish oils:

Georgia says, " dut " for duck, " dada " for daddy, " nana " for

grandma, " aaadun " for all done, and more......

Georgia uses a straw, blows a whistle, makes a kiss face, makes

different sounds on command, lke " da " , " pla " , " na " , etc...

And she has approximations and spontaneous words!!

Her speech is improving - and despite the overwhelming grief I felt

that the fish oils were not her " cure " , or even a moderate help -

her speech has improved the way it always has - on her own.

So for all of you out there who have children that the fish oils

don't seem to be working - it does not mean that your child won't

speak and continue to improve on their own schedule with the help of

a GOOD ST and your help as parents at home.

I do not dispute the fact that fish oil therapy works for many

children. I have very good friends that see a difference with the

ProEFA treatment.

Personally, I was devastated that the fish oils did not make any

difference - so sad about that. In a way, it was my last hope. But

it is OK - because Georgia is improving on her own. And I have seen

her steadily improve - and the improvement is ALL that matters.

If the oils don't work for your child - they CAN improve on their

own - Georgia is living proof of that. Don't give up hope.

is & Georgia 2.5 San Francisco