Re: Will Your Child Talk

[Guest guest]

Good Morning:

It is so hard not to get discourage and loose faith. My daughter Kayla is

five years old and she will be six in January. She is making noise but no

words. Four hours of private speech therapy. How do you keep holding on? She

also have fine motor delays. I am so tired, and worry.

Kathy,

Laurel, land

[Guest guest]

Hi

" The people that don't talk are the ones that don't make any sounds

at all.

No No No .......!

I realise that your point is to reassure those whose kids are making

sounds but the statement is a little definite that non verbal will

stay non-verbal.

Please understand I am being emphatic not arguementative. It would be

easy to read that negatively if you have a non verbal kiddie - even

though I know it does not strictly mean that.

Making no sounds mat reduce your chances somewhat but my son, as I

have already said, had NO sounds before 4 and he is talking now.

Anyone out there with non-verbal kids do not give up either !!!!!!!!!!

Regards

Deborah

> I just thought I would post this. When I first found out about

> apraxia, I read an article about talking.

>

> One thing that it said was that if your child can make any sounds,

> then a speech therapist can get them to talk.

>

> The people that don't talk are the ones that cannot make any sounds

> at all.

>

> I've been looking at her old reports. This is one from when she

was

> 3 years 11 months old. So she was almost 4 and had 2 years of

> speech. These were the examples of her speech:

>

> " My turn "

> " No see it "

> " No me know "

> " Mine here "

> " Me sleepy "

> " Me trick or treat "

> " No, me "

> " No me see it "

>

> Now, she really is talking, and she even is reading Magic Tree

House

> books (with some help). I also know that when she is a teenager,

> you will not be able to tell her from the other teenagers by her

> speech.

>

> So if your child is making sounds, don't get discouraged. Look for

> the positives. Think little steps, not big ones.

>

> Suzi

[Guest guest]

Hi Kathy!

What is your child's diagnosis? Does she appear to understand all

you say even though she can't speak verbally? Does she play with

toys appropriately? What are her favorite things to play with?

Does she enjoy going to the zoo? the movies? Does she act strange

ever in large groups or when things are very loud, or when you try

to get her hair cut or hug her? Does she eat well? Are there

certain textures she avoids? Have you had an evaluation by a good

neurodevelopmental MD who is knowledgeable about apraxia? I can't

stress enough the importance of taking your child to a professional

that is knowledgeable in the case of medical! (or don't take her or

she'll just be slapped with a label that may or may not be

appropriate) What do her speech or occupational therapists think

she has? How often does she have therapy? Do they do motor

planning therapy for apraxia or strengthening therapy for weakness?

Do they do both? (and I hope she's getting multisensory therapy

overall!)

Have you read The Late Talker book which is a book for any child

that has delays in speech and covers all of these feelings?

http://www.speech-express.com/late.talker.html These feelings of

depression and hoplessness are normal -but so are feelings of

denial, fear, anger, and acceptance. Understanding you are not the

only one going through this and that there are many who went through

it with their child and are now on the other side may be helpful.

If not the book also provides numerous comforting ways to help

yourself and child. To me knowledge is powerful -at least once you

have knowledge, and you try to help your child the best you know

how, you know you are doing all you can do.

If not have you at least read

http://www.cherab.org/information/latetalkerhandout.html (while you

see if either you can pick up The Late Talker later at a local

bookstore or library)

Does she have any of the following parent friendly signs?

Soft signs

http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html

signs of verbal apraxia

http://www.cherab.org/information/speechlanguage/verbalapraxia.html

signs of oral apraxia or oral weakness problems

http://www.cherab.org/information/speechlanguage/oralapraxia.html

So far in all cases in this group the children eventually started

talking. I suspect due to the EFA aspect we stress so strongly

here. So...the million dollar question is...is your child on

EFAs? If so what is the formula on the bottle and how many

capsules do you use a day? (if you use ProEFA, Efalex or EyeQ you

don't have to tell us the formula -those are the " right " ones.)

May want to read this from the archives. Due to her daughter's

remarkable surges on the right EFAs after years of supplementing

with pure Omega 3's -and the fact that blood tests showed

didn't need any Omega 3 just Omega 6 and other things which caused

her to stop progressing once the ProEFA was stopped. But the fact

that in spite of this surged when put back on the ProEFA in

spite of what the blood analysis showed (and without discussing with

the doctors she was doing this) Suzanne is now going to medical

school to do research. If you or anyone wants to speak to Suzanne

about (who by the way 'also' went to The Summit Speech School

for the hearing impaired and deaf in New Providence, NJ along with

my son Tanner and his nephew and numerous others in this group)

Here is what happened within weeks of starting an Omega 3/6 oil

however.

From: Suzanne Smolyar

Date: Wed Mar 21, 2001 2:36 pm

Subject: RE: [ ] progress

Hi Gloria,

I wanted to say that I know exactly how you feel. Last night at the

table, 's brother (Ari 6.8) began to speak while was

trying to say something, so she looked at Ari and said in a loud and

affirmative tone " Shut up Ari, Shut up " . We were so excited and

overjoyed at her using that phrase - we forgot to explain to her

that it was inappropriate to use at the table and to her family

members. We just thought it was golden -just like you did.

Here is some background from one of my previous posts that will tell

you why this is so exciting .

" I am a mother of a beautiful 5-year-old girl, . Since the

time she was about 11 mo old - I had a feeling that something was

wrong with fine motor, gross motor and of course speech. Through

the past 4 years, I have gone to numerous neurologists, best in the

field, I must add. We have gone non-stop to therapy with ,

but the progress was painfully slow. did not speak- making

it nearly impossible for us to communicate with her. Everyday at

night I would kiss , and standing over her head I would

say, " please start talking tomorrow " - subliminal messages - hoping

they'd work.

To no avail, my child was just not talking. Therapy helped, but

progress was limited. I don't want to continue with this sob-story,

as you probably all understand the fear and frustration in parents

and the child as well.

After becoming involved with

[Guest guest]

" No No No .......! "

As always Deborah -Thank You!! " Never say never " is my motto -even

if in cases it's never been done before, there is hope it can be

done now. Actually by the way we cover in The Late Talker numerous signs for

late talkers -and all are just that -warning signs. There are no definites -and

in extreme cases our kids are called " miracle kids " I know.

We as a society are just beginning to understand and learn about how

to really help and understand communication impaired children with

or without research yet. This is due to the fact (in my opinion)

that speech and language impairments were for some idiotic reason

never viewed as anything a medical doctor could study...and the main

organization for speech and language professionals doesn't allow any

of their findings to be read unless they too are a member and have

the passcodes. This is why I can't post Dr. Sheppard's presentation

about teaching hearing apraxics at schools for the hearing

impaired/deaf! So who are they helping on the large scale? Some medical

doctors may be clueless at times -but I for one am thrilled as a group they are

learning -because you watch now how much quicker we learn and understand

more ways to help our children. How much more awareness, protection and

compassion there is towards our children.

In addition -as the parents and professionals that care for these

children -the Internet has changed everything. This grouplist for

example is the new way of anecdotal findings. Thousands of members

who report back what is working or not working for the child they care for. And

how they report

more times than not " the professionals are shocked "

As parents we don't have time to wait for all the clinical research

to prove that EFAs, multisensory therapies, appropriate and

intensive speech and occupational therapies are. And what type of

multisensory (and yes W -cranial sacral therapy is well explored

in the archives here and most of us including me found it to be very

successful and worth exploring)

And Deborah -when you posted the other day about the mom who wrote a

book but still mans the boards posting and reaching out each day -I

can tell you as another mom who wrote a book and mans the boards

each day it's done for both selfless and selfish reasons. We both

realize that we can learn more here than in any book -and no matter

how well our children are succeeding today -we are both still

searching how to further help or learn more about our children and

others like them.

=====

[Guest guest]

The point that I was trying to make was that if your child makes

sounds then your child can be taught to talk. It may be a long

process, but they can be taught.

If they don't make any noises, then they may not be physically able

to talk. Something may be wrong with their vocal cords, etc. It's

just uncertain.

Most of the posts I've read talk about their children already making

sounds, and some already are saying words. I was trying to

encourage them, that a big part of talking is the ability to make

sounds. Their child has already reached a major hurdle by being

able to make sounds.

Suzi

> Hi

> " The people that don't talk are the ones that don't make any

sounds

> at all.

> No No No .......!

> I realise that your point is to reassure those whose kids are

making

> sounds but the statement is a little definite that non verbal will

> stay non-verbal.

> Please understand I am being emphatic not arguementative. It would

be

> easy to read that negatively if you have a non verbal kiddie -

even

> though I know it does not strictly mean that.

> Making no sounds mat reduce your chances somewhat but my son, as I

> have already said, had NO sounds before 4 and he is talking now.

> Anyone out there with non-verbal kids do not give up

either !!!!!!!!!!

> Regards

> Deborah

[Guest guest]

hi

yes ..i think i said thati realised your point was to reassure

and that i was being emphatic not arguementative for the sake of any

mums of non-verbal kids who misunderstood your point.

I did say that didn't I?

Deborah

> > Hi

> > " The people that don't talk are the ones that don't make any

> sounds

> > at all.

> > No No No .......!

> > I realise that your point is to reassure those whose kids are

> making

> > sounds but the statement is a little definite that non verbal

will

> > stay non-verbal.

> > Please understand I am being emphatic not arguementative. It

would

> be

> > easy to read that negatively if you have a non verbal kiddie -

> even

> > though I know it does not strictly mean that.

> > Making no sounds mat reduce your chances somewhat but my son, as

I

> > have already said, had NO sounds before 4 and he is talking now.

> > Anyone out there with non-verbal kids do not give up

> either !!!!!!!!!!

> > Regards

> > Deborah