~~ Newbie

[Guest guest]

Hello ,

Welcome to the group. I am glad you found us. I am the original owner

& founder. I now have 2 co-owners Vicki & Kristy, I think we still have a few

Mods hanging on as well. So between all of us we should be able to help you with

any technical problems. The biggest thing you will find here is the mail load

but please do NOT let that run you off. There are several options to handle that

for you like daily digest & read on the site itself. You will find a HUGE wealth

of info & support here. If you ever ask a question and no one answers it's

because of the heavy load so just put a Large Print ~IMPORTANT PLEASE ANSWER~ in

your subject line and you will be seen. I hope you enjoy it here and feel right

at home and become a part of this huge family, for that is truly what we are.

I also suffer from really bad migraines. I have for many years and they have

had me on EVERYTHING! I still have the injections I can give myself, BUT my Dr.

in Wi. found a miracle for mine. Sounds really weird since it isn't meant for

them but for me at least it works. It is a drug called Tizanidine 4 mg. tabs..

They srated me off at a low dose twice a day and upped it until they found a

dose that worked for me. I am now on 1 1/2 tabs in morning, 1 1/2 tabs evening &

2 1/2 tabs at bedtime. That is where I am maintaining. I have had maybe 2 or 3

in a year now. It is a side affect of this med that it can control migraines. So

if other doesn't work for you then you might want to ask your Doc about it. I

get them so bad I can't even open my eyes and lay over the toilet. It was so bad

at one time that it busted the blood vessels in my eye and I had a pocket of

blood hanging from it. They told my mother that they couldn't promise I'd live

through the night. They had given me 4 shots of narcotics 15 mins. apart with no

relief. They said couldn't give me any more or I would overdose. They had tried

Demerol, Staydol, Versaid & another I can't remember. I still have the Imetrex

Injections I can use but someone has to be here for me to use them and I have to

give in my right leg as far from my heart as I can. The first one I ever had

gave me a heart attack right in the Doc's office & scared him to death. Nurses

were already gone & we were 30 miles away from any hospital. He wanted to see I

could give to myself so I just popped it in my left arm right next to my heart

and it felt like a mule had kicked me right in the heart. But after all the pain

was over and I got my breath again it did help the headache some. That was

before my Tizanidine days. I haven't resorted to using the Imetrex in over a

year.

I have to say you still having one ovary left worries me. I know from

personal exp. & anyone that I know who had a partial hyst. and then had to have

one ovary removed later ussualy has to have the other removed in 2-4 yrs.. I

hope this doesn't happen to you but it does make me worry. Especially people

with Fibro.. We tend to have more cysts & scar tissue than non-fibro people.

My thyroid shut down totaly so I take meds everyday for it. They can't find

a solid dose that works for me so I have to take .175 one day .150 the next. But

NOTHING is ever normal with me LOL.

I have so much more wrong but the list is way to long to list. Just a few is

COPD, IBS, CHF, Osteoparosis, Osteo & Ruem. Arthritis throughout my entire body.

They have found many odd fixes for some of my problems so never hesitate to ask

I may have an off the wall idea for you. I had a wonderful team of Docs in Wi. I

sure do miss them. They were so patient & understanding and tried what ever they

could to try to help me.

This is getting long so I will close it for now. Again welcome & I look

forward to getting to know you. I am not here alot from time to time but I hope

to be here more for awhile. I have unlimited long distance in the USA so if you

wish to talk on the phone just send me your number to my private mail at

wolfsfibromail@... and I will call from time to time. Be sure you tell

me your time zone and the best times to call. I will help in any way I can.

God Bless!

Rev. /WolfPoet

Owner & Founder

[Guest guest]

Just curious if the dr's ever told you what causes your migraines? I do know

that they are a neurological disease so there very well may not be a

" cause. " But since they've got you on muscle relaxers did they say your

migraines are triggered from muscle tension/spasms?

>

> Hello ,

>

> Welcome to the group. I am glad you found us. I am the original

> owner & founder. I now have 2 co-owners Vicki & Kristy, I think we still

> have a few Mods hanging on as well. So between all of us we should be able

> to help you with any technical problems. The biggest thing you will find

> here is the mail load but please do NOT let that run you off. There are

> several options to handle that for you like daily digest & read on the site

> itself. You will find a HUGE wealth of info & support here. If you ever ask

> a question and no one answers it's because of the heavy load so just put a

> Large Print ~IMPORTANT PLEASE ANSWER~ in your subject line and you will be

> seen. I hope you enjoy it here and feel right at home and become a part of

> this huge family, for that is truly what we are.

> I also suffer from really bad migraines. I have for many years and they

> have had me on EVERYTHING! I still have the injections I can give myself,

> BUT my Dr. in Wi. found a miracle for mine. Sounds really weird since it

> isn't meant for them but for me at least it works. It is a drug called

> Tizanidine 4 mg. tabs.. They srated me off at a low dose twice a day and

> upped it until they found a dose that worked for me. I am now on 1 1/2 tabs

> in morning, 1 1/2 tabs evening & 2 1/2 tabs at bedtime. That is where I am

> maintaining. I have had maybe 2 or 3 in a year now. It is a side affect of

> this med that it can control migraines. So if other doesn't work for you

> then you might want to ask your Doc about it. I get them so bad I can't even

> open my eyes and lay over the toilet. It was so bad at one time that it

> busted the blood vessels in my eye and I had a pocket of blood hanging from

> it. They told my mother that they couldn't promise I'd live through the

> night. They had given me 4 shots of narcotics 15 mins. apart with no relief.

> They said couldn't give me any more or I would overdose. They had tried

> Demerol, Staydol, Versaid & another I can't remember. I still have the

> Imetrex Injections I can use but someone has to be here for me to use them

> and I have to give in my right leg as far from my heart as I can. The first

> one I ever had gave me a heart attack right in the Doc's office & scared him

> to death. Nurses were already gone & we were 30 miles away from any

> hospital. He wanted to see I could give to myself so I just popped it in my

> left arm right next to my heart and it felt like a mule had kicked me right

> in the heart. But after all the pain was over and I got my breath again it

> did help the headache some. That was before my Tizanidine days. I haven't

> resorted to using the Imetrex in over a year.

> I have to say you still having one ovary left worries me. I know from

> personal exp. & anyone that I know who had a partial hyst. and then had to

> have one ovary removed later ussualy has to have the other removed in 2-4

> yrs.. I hope this doesn't happen to you but it does make me worry.

> Especially people with Fibro.. We tend to have more cysts & scar tissue than

> non-fibro people.

> My thyroid shut down totaly so I take meds everyday for it. They can't

> find a solid dose that works for me so I have to take .175 one day .150 the

> next. But NOTHING is ever normal with me LOL.

> I have so much more wrong but the list is way to long to list. Just a few

> is COPD, IBS, CHF, Osteoparosis, Osteo & Ruem. Arthritis throughout my

> entire body. They have found many odd fixes for some of my problems so never

> hesitate to ask I may have an off the wall idea for you. I had a wonderful

> team of Docs in Wi. I sure do miss them. They were so patient &

> understanding and tried what ever they could to try to help me.

> This is getting long so I will close it for now. Again welcome & I look

> forward to getting to know you. I am not here alot from time to time but I

> hope to be here more for awhile. I have unlimited long distance in the USA

> so if you wish to talk on the phone just send me your number to my private

> mail at wolfsfibromail@... <wolfsfibromail%40earthlink.net> and

> I will call from time to time. Be sure you tell me your time zone and the

> best times to call. I will help in any way I can.

>

> God Bless!

> Rev. /WolfPoet

> Owner & Founder

>

>