- still problems with psuedo cyst

November 10, 2000

I know we should not question " His " plan, but do you ever wonder just why do

things keep going as they do??

I kinda thought that for , 4 surgeries in the last six months, might

have fullfilled " His " big plan for awhile. Guess not.

First let me say, this is not a common problem with a shunt (VP) but rather a

rare complication. Back in August, had to have her shunt externalized

because where the shunt drained (stomach cavity), a psuedo cycst (a pocket of

scar tissue) formed and all the CSF fluid had been building up instead of

reabsorbing. After the cyst being drained and then nine days later the shunt

put back in, but into the pleura, she still had some fluid in the cyst, but

the general surgeon felt like the rest of the fluid would re-absorb on its

own. Not!!

had a follow up CT yesterday to check her abdomen. The doctor (that

reads the films) had told me that this CT didn't look any different than the

one she had when she left the hospital - meaning there was still fluid there,

but she would compare films a little more. The general surgeon called me

today, and of course I missed his call. But his message was that there was

still a rather large cyst there which is not good because once again, this

fluid has been just " sitting " there. And who knows if there is infection.

Will have to wait till Monday now to see what the doctor's recommendation is.

My guess is a lapriscopy (sp?) and then a drain tube is not going to work

this time to drain the cyst. I may be wrong, but I'm thinking he will have

to surgically go in and either just remove the fluid and/or scar tissue that

is forming this pocket. But I guess I'd better not borrow problems before

they're even here.

Tory ('s mom)

18ys. old, craniofacial abnormalities, midline facial cleft, hydrocephalus,

growth hormone (weighs 53lbs.) and thyroid deficient, blind, severly delayed,

choanal atresia, optic nerve hypoplasia, artificial tear duct, 12-P

chromosome deletion, sensory integration disorder, latex allergy, probable

malignant hyperthermia, ACM II w/30mm herniation, basilar impression. June10,

98' suboccipital craniectomy and lamenectomy of C1 & C2. Aug. 10, 98' dura

graft. History of 42 surgeries. (and musically talented) SUCH A SPECIAL

LITTLE GIRL!

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