Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Judi, in your note you mention Gordon has DSI....he is so close in age to my son, I was wondering what kind of DSI....does he tend to be " hypersensitive " or " hyposensitive " ? my son has the exact same " diagnoses " as your son so am trying to " picture " how much alike they would look if we saw them together. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 HI Carol! Sorry I couldn't respond sooner. Was down w/ a bug the last 2 days. I've been reading some of your notes on Micah. Sounds a lot like Gordon. Gordon has hypersensitive hearing.. when he's outside playing and hears a helicopter or airplane he puts his hands over his ears and runs inside the house. Restaurants and big spaces with noise make him hyper. He sometimes creates his own weird noises -- beeping, screeching... he does great animal imitations, particularly dolphins an whales!! Sometimes he just hums and I have to tell him to stop " buzzing " . He likes deep pressure... hugs, brushing. But, he was always sensitive about tags in his shirt... not so much anymore, thank god. He's an avid reader... reading is the one thing that he knows he excels in and he loves it and is very proud of himself. Today they had a field day at his school.. relay races, sports, etc. He didn't want to go! He cried this morning and was so full of anxiety. Then he didn't want me to go! Of course he went and participated and he was great. He was terrific at T-ball and kicking a soccer ball. Then he got hysterical when I tried to leave and wanted to come home with me. Then when we were in the car, he was crying that he wanted to return to his class! Sometimes the behavior makes me nuts!! Maybe you can e-mail me privately so we don't bore everyone else with all this minutia!! Love reading your e- mails. You and I sound so much alike in terms of being at the end of our ropes and struggling with school districts unwilling to do what they're supposed to. But, we continue to fight because what else can we do? And yes, I don't sleep at night because I wake up in a cold sweat thinking about how to get Gordon all the things that he needs. Judi ---------- From: " kcholt11 " <kcholt11@...> < > Subject: [ ] diagnoses Date: Mon, Jun 3, 2002, 5:36 AM Judi, in your note you mention Gordon has DSI....he is so close in age to my son, I was wondering what kind of DSI....does he tend to be " hypersensitive " or " hyposensitive " ? my son has the exact same " diagnoses " as your son so am trying to " picture " how much alike they would look if we saw them together. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 In a message dated 6/14/2004 1:18:18 AM Eastern Daylight Time, k_susan04@... writes: Have any of you dealt with a cyst reaction to Lyme's? Hi- Yes, I actually had three of them cut out about 13 days ago. I don't know if they are from Lyme or not...I am beyond trying to comprehend this crazy disease!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Hi, On the subject of diagnosis, I have RA (3 years, 2.5 years on AP, 2x100 mg Minocin. for 2 years then added Zithromax 2 x 250 mg twice a week and 2x250 mg Metronidazole twice a week). Although my RA is reasonably controlled, I still have some swelling and liquid blisters (nodules) on the back of my hands. My energy is very limited. Since it appeared I have reached a plateau, I searched for an explanation and suspected that maybe a food allergy was involved. I did a strict elimination diet ( only cooked vegetables, cooked fruit and brown rice) for 14 days as described by Neal Barnard,MD in Foods that fight Pain. The surprise was NO CHANGE in any way. Whats blocking my AP from progress ? Does anybody have a useful comment ? As usual, thanks for any contribution. nne Esther Warkov wrote: > > >Hi Everyone, > >My name is Peggy, from ohio..I am a single parent three lovely > >children..Ages are 15boy, 7girl, 5boy.. Oldest has adhd and > >bipolar,daughter no signs yet but symptons of adhd,youngest has adhd > >agression issues,developemental delays,bone and muscle probs,and now > >showing signs of juvenilne rheumatoid arthritis.. > > Why not consider going to a scientifically-oriented ND (naturalpath) > in addition to the regular doctors? The naturalpathic drs. may be > able to do further diagnostic work. > -- > Esther Warkov, Ph.D > Member OMTA, SMTA > Founder, The Piano Connection > www.thepianoconnection.com > 971.255-0388 (Portland) > pianos@... <mailto:pianos%40thepianoconnection.com> > esther_warkov@... <mailto:esther_warkov%40comcast.net> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 HI nne, From what you are telling us, I think you are doing great. It takes a long time for some people to get rid of the nodules and energy for me was the last thing I noticed returning (and when I flare it's the first thing that goes) It was around 7 years before I felt like I was in remission. I have mycoplasma hominis and it is very hard to treat. Are you taking very good acidophilis and taking a high dose for all the antibiotics you are on? Sometimes you need to be tested for yeast or go on an antifungal (diflucan for surface yeast or nystatin for deep tissue yeast). If you have yeast you may need to also treat for leaky gut (glutamine and aloe vera gel) and even if you don't have yeast just being on antibiotics can cause it. What do you use to decrease the inflammation? You may need to be on a small amount of cortisone or cortef. There are many homeopathic antinflamatories you could use since they took most of the prescription ones off the market. Patience. It takes patience to wait for changes. Sometimes changes are very subtle but they are there. Best of luck Cooky AP 10 years _____ From: rheumatic [mailto:rheumatic ] On Behalf Of Wiesboeck Sent: Monday, August 06, 2007 4:19 PM rheumatic Subject: Re: rheumatic re: Diagnoses Hi, On the subject of diagnosis, I have RA (3 years, 2.5 years on AP, 2x100 mg Minocin. for 2 years then added Zithromax 2 x 250 mg twice a week and 2x250 mg Metronidazole twice a week). Although my RA is reasonably controlled, I still have some swelling and liquid blisters (nodules) on the back of my hands. My energy is very limited. Since it appeared I have reached a plateau, I searched for an explanation and suspected that maybe a food allergy was involved. I did a strict elimination diet ( only cooked vegetables, cooked fruit and brown rice) for 14 days as described by Neal Barnard,MD in Foods that fight Pain. The surprise was NO CHANGE in any way. Whats blocking my AP from progress ? Does anybody have a useful comment ? As usual, thanks for any contribution. nne Esther Warkov wrote: > > >Hi Everyone, > >My name is Peggy, from ohio..I am a single parent three lovely > >children..Ages are 15boy, 7girl, 5boy.. Oldest has adhd and > >bipolar,daughter no signs yet but symptons of adhd,youngest has adhd > >agression issues,developemental delays,bone and muscle probs,and now > >showing signs of juvenilne rheumatoid arthritis.. > > Why not consider going to a scientifically-oriented ND (naturalpath) > in addition to the regular doctors? The naturalpathic drs. may be > able to do further diagnostic work. > -- > Esther Warkov, Ph.D > Member OMTA, SMTA > Founder, The Piano Connection > www.thepianoconnection.com > 971.255-0388 (Portland) > pianos@thepianoconn <mailto:pianos%40thepianoconnection.com> ection.com <mailto:pianos%40thepianoconnection.com> > esther_warkov@ <mailto:esther_warkov%40comcast.net> comcast.net <mailto:esther_warkov%40comcast.net> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Hi, nne: In most cases of RA there is some secondary infection or dysbiosis that causes LGS and candidiasis. Consider doing the spittle test and candida-elimination diet. We need at least 11g EFAs average daily. EV olive oil can make a part of this, but especially borage seed (GLAs) oil and flaxseed oil. Avoid refined sugars and starches and you will almost certainly notice a difference. Good luck to You, Wiesboeck <rawie@...> wrote: Hi, On the subject of diagnosis, I have RA (3 years, 2.5 years on AP, 2x100 mg Minocin. for 2 years then added Zithromax 2 x 250 mg twice a week and 2x250 mg Metronidazole twice a week). Although my RA is reasonably controlled, I still have some swelling and liquid blisters (nodules) on the back of my hands. My energy is very limited. Since it appeared I have reached a plateau, I searched for an explanation and suspected that maybe a food allergy was involved. I did a strict elimination diet ( only cooked vegetables, cooked fruit and brown rice) for 14 days as described by Neal Barnard,MD in Foods that fight Pain. The surprise was NO CHANGE in any way. Whats blocking my AP from progress ? Does anybody have a useful comment ? As usual, thanks for any contribution. nne Esther Warkov wrote: > > >Hi Everyone, > >My name is Peggy, from ohio..I am a single parent three lovely > >children..Ages are 15boy, 7girl, 5boy.. Oldest has adhd and > >bipolar,daughter no signs yet but symptons of adhd,youngest has adhd > >agression issues,developemental delays,bone and muscle probs,and now > >showing signs of juvenilne rheumatoid arthritis.. > > Why not consider going to a scientifically-oriented ND (naturalpath) > in addition to the regular doctors? The naturalpathic drs. may be > able to do further diagnostic work. > -- > Esther Warkov, Ph.D > Member OMTA, SMTA > Founder, The Piano Connection > www.thepianoconnection.com > 971.255-0388 (Portland) > pianos@... <mailto:pianos%40thepianoconnection.com> > esther_warkov@... <mailto:esther_warkov%40comcast.net> > > --------------------------------- Ready for the edge of your seat? Check out tonight's top picks on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Hi nne, Have you had your thyroid checked? All of my thyroid labs were in the normal range, but my temperature was only 97.0, so my AP doc put me on Armour Thyroid. I feel like a new person! It was a revelation. I ran out of it for a few weeks last month and thought it was no big deal but then had a major flare until I got some more. I definitely have a normal person's energy level now. It is the greatest gift. Best of luck, Emma ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Thanks , I want to persue your suggestions but I am not familiar with the term LGS. Also, where can I arrange for the spittle test ? Thanks for your help, nne Merchant wrote: > > Hi, nne: > > In most cases of RA there is some secondary infection or dysbiosis > that causes LGS and candidiasis. Consider doing the spittle test and > candida-elimination diet. We need at least 11g EFAs average daily. EV > olive oil can make a part of this, but especially borage seed (GLAs) > oil and flaxseed oil. Avoid refined sugars and starches and you will > almost certainly notice a difference. > > Good luck to You, > > > > > Wiesboeck <rawie@... <mailto:rawie%40bellsouth.net>> > wrote: > Hi, > On the subject of diagnosis, I have RA (3 years, 2.5 years on AP, 2x100 > mg Minocin. for 2 years then added Zithromax 2 x 250 mg twice a week and > 2x250 mg Metronidazole twice a week). > Although my RA is reasonably controlled, I still have some swelling and > liquid blisters (nodules) on the back of my hands. My energy is very > limited. > Since it appeared I have reached a plateau, I searched for an > explanation and suspected that maybe a food allergy was involved. I did > a strict elimination diet ( only cooked vegetables, cooked fruit and > brown rice) for 14 days as described by Neal Barnard,MD in Foods that > fight Pain. The surprise was NO CHANGE in any way. Whats blocking my AP > from progress ? > Does anybody have a useful comment ? > > As usual, thanks for any contribution. > > nne > > Esther Warkov wrote: > > > > >Hi Everyone, > > >My name is Peggy, from ohio..I am a single parent three lovely > > >children..Ages are 15boy, 7girl, 5boy.. Oldest has adhd and > > >bipolar,daughter no signs yet but symptons of adhd,youngest has adhd > > >agression issues,developemental delays,bone and muscle probs,and now > > >showing signs of juvenilne rheumatoid arthritis.. > > > > Why not consider going to a scientifically-oriented ND (naturalpath) > > in addition to the regular doctors? The naturalpathic drs. may be > > able to do further diagnostic work. > > -- > > Esther Warkov, Ph.D > > Member OMTA, SMTA > > Founder, The Piano Connection > > www.thepianoconnection.com > > 971.255-0388 (Portland) > > pianos@... > <mailto:pianos%40thepianoconnection.com> > <mailto:pianos%40thepianoconnection.com> > > esther_warkov@... <mailto:esther_warkov%40comcast.net> > <mailto:esther_warkov%40comcast.net> > > > > > > --------------------------------- > Ready for the edge of your seat? Check out tonight's top picks on > TV. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2007 Report Share Posted August 7, 2007 Check out the information in Section 13 of the FAQ on www.rheumatic.org Re: rheumatic re: Diagnoses > Hi, > On the subject of diagnosis, I have RA (3 years, 2.5 years on AP, 2x100 > mg Minocin. for 2 years then added Zithromax 2 x 250 mg twice a week and > 2x250 mg Metronidazole twice a week). > Although my RA is reasonably controlled, I still have some swelling and > liquid blisters (nodules) on the back of my hands. My energy is very > limited. > Since it appeared I have reached a plateau, I searched for an > explanation and suspected that maybe a food allergy was involved. I did > a strict elimination diet ( only cooked vegetables, cooked fruit and > brown rice) for 14 days as described by Neal Barnard,MD in Foods that > fight Pain. The surprise was NO CHANGE in any way. Whats blocking my AP > from progress ? > Does anybody have a useful comment ? > > As usual, thanks for any contribution. > > nne > > Esther Warkov wrote: >> >> >Hi Everyone, >> >My name is Peggy, from ohio..I am a single parent three lovely >> >children..Ages are 15boy, 7girl, 5boy.. Oldest has adhd and >> >bipolar,daughter no signs yet but symptons of adhd,youngest has adhd >> >agression issues,developemental delays,bone and muscle probs,and now >> >showing signs of juvenilne rheumatoid arthritis.. >> >> Why not consider going to a scientifically-oriented ND (naturalpath) >> in addition to the regular doctors? The naturalpathic drs. may be >> able to do further diagnostic work. >> -- >> Esther Warkov, Ph.D >> Member OMTA, SMTA >> Founder, The Piano Connection >> www.thepianoconnection.com >> 971.255-0388 (Portland) >> pianos@... <mailto:pianos%40thepianoconnection.com> >> esther_warkov@... <mailto:esther_warkov%40comcast.net> >> >> > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
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