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-----Original Message-----

From: willwright100@... <willwright100@...>

egroups <egroups>

Date: Monday, January 01, 2001 10:35 PM

Subject: [] Books

>Hi Everyone,

>

>Sitting here thinking , I was wondering what I could learn about CMT

>from books that I can not learn from the internet. I have the CMT

>handbook for primary physicians and subscribe to CMTA and CMTI...There

>are numerous sites on the internet and they start to be

>repetitive...It seems like the only thing I find refreshing about CMT

>is how everyone copes day to day...It would really be refreshing if

>there were any treatments or possible cure, but that seems to be down

>the road a few years...It does seem like the medical profession is

>starting to listen to and learn from CMTers about different

>symtoms...I do believe sites like this help more than books that

>blandly tell a few facts and and brush off CMT as a minor

>inconvenience........I still find myself searching the internet about

>CMT, but why I don't know...seems that all that is left to learn is

>the tecnical stuff and I do not have the education to understand

>that...

>

>Just spouting off as I am sitting here reflecting on a life with

>CMT...

>

>Will

>

>

>>>>>Will, your right unless there is something new out there we don't know

about, and frankly I believe we would be the first to know as we have a

strong membership reading and searching who keeps us well informed so a book

would not be a lot of help. A book with coping ideas and day to day living

with CMT from many CMTer's would be interesting, and their lives

before/after CMT. Gretchen had talked of such a book, but I think maybe

not enough persons onlist sent information to her for it to be completed.

(myself included) (guilty)!!! How about it Gretchen, any hope of doing

something like that now? ~>Becky M.

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In a message dated 1/1/2001 11:39:22 PM Eastern Standard Time,

willwright100@... writes:

<< Sitting here thinking , I was wondering what I could learn about CMT

from books that I can not learn from the internet. I have the CMT

handbook for primary physicians and subscribe to CMTA and CMTI...There

are numerous sites on the internet and they start to be

repetitive >>

Will

You said what I've been thinking. I've learned more from other CMTers than

any book I could read [except a book written by a CMTer]

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alisha here,

i don't want to say not to read a certain book or not its just that i asked

linda and i wasn't sure about it at all. right now i am trying to save

myself some money because i am not employed although i have been trying for

a long time. i believe myself that all the info i need to learn about CMT is

from linda's newsletter and the email groups that i am on. i have been told

so many different things about CMT that i am not sure what to believe and

not to believe. things have been told to me about my type which i don't

believe because i am the opposite of what they said. i don't what to say

don't buy the book or buy the book but i want it to be worth my while for me

to get it! i think this makes sense to everyone, i think it does but u never

know.

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