Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 JR, at the risk of being a 'pollyanna' my own spascisty went away on its own - which is a really wierd thing - but it did. My 'brand' of CMT has really wierd oddities to it, hard to explain, baffles Drs. etc. I wonder if there is an 'idiosyncratic CMT neuropathy? Do you not like to take medications or do you find alternatives to living with the spascity? ~ G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 Hi G, I would rather not take meds. I just try to get by and so far have done ok, however I do have this ongoing problem. I gusee I wait and see what happens. How long did you have to live with your spascisty? Did it go away suddenly? or perhaps it was a gradual thing? jr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 In a message dated 12/14/2000 8:37:50 PM Pacific Standard Time, karenann2@... writes: > My Dr. is going to send me for therapy for swallowing......dose anyone > else have trouble swallowing? > > Ann > I wonder what therapy can do for that?? Keep us posted. Many people with CMT have this problem. I eat slow and take smaller bites. That helps me. I seem to always be in a hurry so I have to remind myself not to eat fast. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 My Dr. is going to send me for therapy for swallowing......dose anyone else have trouble swallowing? Ann http://community.webtv.net/karenann2/WarmGreetings Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Oh yes I will keep you posted....this seems to be a problem with mosy people who have neuropathy......there are diffrent ways to hold the neck and head...I don't know whenI go, but I will for sure share with the group! Ann http://community.webtv.net/karenann2/WarmGreetings Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Hi Liz here...I have always had trouble swallowing...I rarely eat steak because I've almost killed myself choking. It's not worth it. I've even talked myself into hating steak so I don't get jealous when I see other people with a fat juicy one.LOL. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Hi Group, With regards to asymetric weakened neck muscles, I have a problem with the left scalene which supports the neck from the side. This along with some cervical arthritis left over from an old whiplash injury got to be very tender and bothersome. A Physiatrist gave me some neck toning exercises some years ago which I do daily and have found them to be of great help. If anybody is interested I can send a copy or discribe them. EdM -----Original Message----- From: karenann2@... <karenann2@...> egroups <egroups> Date: Friday, December 15, 2000 12:19 AM Subject: Re: [] spascisty >Oh yes I will keep you posted....this seems to be a problem with mosy >people who have neuropathy......there are diffrent ways to hold the neck >and head...I don't know whenI go, but I will for sure share with the >group! > > Ann >http://community.webtv.net/karenann2/WarmGreetings > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Hi Group, Well again, do I ever ! Everyday I have episodes of very difficult swallowing. Cold applesauce is almoet a slamdunk in that department. After much doctorial review and an expensive endoscopy recently, there is no explanation other than it's a CMT thing. It's hard to ignore it because of the possibility of a lesion being present. Spasm, hernia, acid reflux, and lack of muscle response are all additional possibilities most of which can be ruled outwith endoscopy examination. Just another stirer in the muddy waters of Dx, I'm afraid. - EdM -----Original Message----- From: jacee17@... <jacee17@...> egroups <egroups> Date: Thursday, December 14, 2000 11:57 PM Subject: Re: [] spascisty >In a message dated 12/14/2000 8:37:50 PM Pacific Standard Time, >karenann2@... writes: > > >> My Dr. is going to send me for therapy for swallowing......dose anyone >> else have trouble swallowing? >> >> Ann >> > > I wonder what therapy can do for that?? Keep us posted. Many people with >CMT have this problem. I eat slow and take smaller bites. That helps me. I >seem to always be in a hurry so I have to remind myself not to eat fast. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Jack, I would like of copy of the neck exercises also. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Ed: Please send me the information you have on the exercises: J Crock 329 HWY 38 N Stanwood, IA 52337 Thanks! Jane >From: " Edwin R. More " <edwinrmore@...> >Reply-egroups ><egroups> >Subject: Re: [] spascisty >Date: Fri, 15 Dec 2000 08:20:23 -0500 > >Hi Group, >With regards to asymetric weakened neck muscles, I have a problem with the >left scalene which supports the neck from the side. This along with some >cervical arthritis left over from an old whiplash injury got to be very >tender and bothersome. A Physiatrist gave me some neck toning exercises >some >years ago which I do daily and have found them to be of great help. If >anybody is interested I can send a copy or discribe them. EdM >-----Original Message----- >From: karenann2@... <karenann2@...> >egroups <egroups> >Date: Friday, December 15, 2000 12:19 AM >Subject: Re: [] spascisty > > > >Oh yes I will keep you posted....this seems to be a problem with mosy > >people who have neuropathy......there are diffrent ways to hold the neck > >and head...I don't know whenI go, but I will for sure share with the > >group! > > > > Ann > >http://community.webtv.net/karenann2/WarmGreetings > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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