Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Just wanted you to all know the latest on . > and I went into NY yesterday for further chiari/sm testing. She had > to go through a spinal tap (with no anesthesia --- and she was absolutely > wonderful --- wish I could have had the anesthesia). While they performed > the tap -- for about 2 2/1 hours, they took continuous pressure readings > of her cord and discovered that her pressures are extremely high. Dr. > Kula figures that she has an open pressure of at least 250 -- normal is up > to 170. She then proceeded to go just under 500 at times. > > They then gave her a radioactive material into the spine and are following > her with special nuclear medicine screening for the next three days. Her > MRI of two weeks ago show that she is once again having trouble in the > neck region (from compression of the brain stem) and that her flow of > spinal fluid is limited. > > Dr. Kula called about an hour after we returned home last night and stated > that will definitely need shunt surgery. This is where they put a > tubing in the ventricles of the brain and drain the fluid elsewhere in the > body. He is not sure if the neurosurgeon would want to do anything more > than this at this time. He thinks the neurosurgeon is going to jump in > and perform this neurosurgery by next week. > > This doesn't leave us a lot of time --- which has its benefits. > [Faith] I am assuming that she will be admitted to Northshore University Hospital on Long Island for this procedure. Dr. Milhorat is her neurosurgeon. > is pretty comfortable at this time and doesn't know about the > upcoming surgery --- no need to worry her any earlier than necessary. > Please pray that she accepts this easily because she is so proud of her > long hair --- don't blame her because it is the first time it is so long > --- mid back region. I am going to talk with the neurologist this am and > see if there is anyway around shaving her entire head. It would make life > so much easier. Just in case, we are going for those wonderful family > pictures this weekend. > > We will keep you updated as we know more. Thanks for being there and > always remembering in your thoughts and prayers. > > Faith > [Faith] : three decompression, odontoidectomy, spinal fusion, halo for four months, dura plasty, revision of the dura plasty, titanium plate insertion, g-tube fed and one very special young lady. > > ________________ > & Faith Webb > Quote Link to comment Share on other sites More sharing options...
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