Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 Hi Everyone, Just as an update, my mom and I are still waiting to hear back from Dr. Frim. However, I was hugely impressed to get Email from over the holiday with some questions for me. They must be extremely dedicated to be so willing to help people, even at this busy time of year. I am trying not to get my hopes up, but you know how that goes <G> I have a question. I have been experiencing EXTREME ear pain for the last couple of months. It came with my latest " flare " up of headaches. It feels like a pointed pressure, almost as if someone is trying to stab out of my ears. If I lay on one side or the other, it gets worse on that side. Has anyone experienced this??? I have often had pressure behind my eyes, but never in my ears. Also (sorry for all the questions tonight) has anyone here had experience with a dx of pseudo tumor cerebri? I am trying to find more information as that was the only clue the nsg I saw locally had. The only problem with that is that people with that problem usually get relief from a spinal tap, whereas I just get a horrible " spinal " headache. I would appreciate any info! Smiles, Marcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 Hi Marcy,I also have had more ear problems the last few months.The ringing is so loud i can't hear the tv sometimes.At night i can't go to sleep because of it.The pain seems to come and go at it's own will.I hope after i talk to my nrg wed i'll know more what to expect.Carman - Pain in ears? Hi Everyone, Just as an update, my mom and I are still waiting to hear back from Dr. Frim. However, I was hugely impressed to get Email from over the holiday with some questions for me. They must be extremely dedicated to be so willing to help people, even at this busy time of year. I am trying not to get my hopes up, but you know how that goes <G> I have a question. I have been experiencing EXTREME ear pain for the last couple of months. It came with my latest " flare " up of headaches. It feels like a pointed pressure, almost as if someone is trying to stab out of my ears. If I lay on one side or the other, it gets worse on that side. Has anyone experienced this??? I have often had pressure behind my eyes, but never in my ears. Also (sorry for all the questions tonight) has anyone here had experience with a dx of pseudo tumor cerebri? I am trying to find more information as that was the only clue the nsg I saw locally had. The only problem with that is that people with that problem usually get relief from a spinal tap, whereas I just get a horrible " spinal " headache. I would appreciate any info! Smiles, Marcy Help section: /help/ NOTE: NCC refers to posts with No Chiari Content Unsubscribe Yourself: chiari-unsubscribeegroups WACMA Home: www.pressenter.com/~wacma WACMA List: www.eGroups.com/group/chiari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 CMarcy2000@... wrote: > Hi Everyone, > > Just as an update, my mom and I are still waiting to hear back from Dr. Frim. > However, I was hugely impressed to get Email from over the holiday with > some questions for me. They must be extremely dedicated to be so willing to > help people, even at this busy time of year. I am trying not to get my hopes > up, but you know how that goes <G> > > I have a question. I have been experiencing EXTREME ear pain for the last > couple of months. It came with my latest " flare " up of headaches. It feels > like a pointed pressure, almost as if someone is trying to stab out of my > ears. If I lay on one side or the other, it gets worse on that side. Has > anyone experienced this??? I have often had pressure behind my eyes, but > never in my ears. > > Also (sorry for all the questions tonight) has anyone here had experience > with a dx of pseudo tumor cerebri? I am trying to find more information as > that was the only clue the nsg I saw locally had. The only problem with that > is that people with that problem usually get relief from a spinal tap, > whereas I just get a horrible " spinal " headache. I would appreciate any info! > > Smiles, > > Marcy yes, i have had it for years now....exactly as you describe. dak -- -=-=-=-=-=-=-=-=-=-=-=- Everyone has a photographic memory, some just don't have film. \ / (!!)/ DJ \ \ ICQ-3404154 IM - starskygirl2 -=-=-=-=-=-=-=-=-=-=-=- Quote Link to comment Share on other sites More sharing options...
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