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E Burdick wrote:

>

>

>

> Hi there April. Sorry to hear about your flares this summer. Hope you're

> feeling a bit better. I have your number and will call soon for a Sat.

> evening. Brett doesn't seem to be getting worse...it's that I thought the

> ear swelling would go down and the redness would disappear with the

> relafen. I will check w/ him on the pain this eve. and if it's bad I will

> call Dr. . She was so nice and soooooo busy. I can't wait to hear

> what she has to say about his blood work. And I am worried about the pain

> he is having in his lower back. I don't think we can see Dr.

> whenever we want to ... our health plan for now only gave us two visits w/

> her.

>

> We'll see how the Oct. 26th visit goes. She will probably tell the drs. at

> the health plan what she will do for treatment. Take care of

> yourself...see you soon.

>

> B.

>

> At 01:23 AM 10/12/1999 -0700, you wrote:

> >

> >

> >hi all

> >so who is the grandma and why was she offensive?for susan b.-how is

> >brett getting worse?-go ahead and call dr. evans-she is good for fitting

> >you in should you need to be seen-lets get together when it is

> >convenient-call me we are usually free-except fri nights as my son plays

> >football and for short periods on sat when my daughter plays soccer-im

> >sorry to hear about the feeling guilty about laying around useless-boy i

> >know that feeling-its hard for kids to understand but i reduce

> >everything to this-if it cant be helped that is the way it

> >is-geez-before i had a dx i felt like such an idiot for feeling wiped

> >out-my husband used to kid me about having consumption-when i think

> >about all the disparate symptoms that go with this disease that drs

> >never took seriously or were evaluated separately with no common thread

> >you feel like a malingerer-so the rib thing-for years i had the

> >pain-particularly walking in a mall-is it the stopping and starting?-i

> >used to be able to shop all day-now one store is it-alsodid any of you

> >ever experience pain in ribs-arms-pelvis if someone grabs you -i

> >remember when my kids were little their crawling on me felt like someone

> >was hitting a bruised tender spot-my rib stuff comes and goes-maybe it

> >will be the same for you i think lisa??and this brain stuff-sometimes i

> >just cant drive because i feel too stupid-like i cant perform all the

> >functions needed to do the task-is that just me?boy this is long-angie

> >did i say i had a bad summer?-i didnt enjoy my flares but i ate up the

> >beach and my flowers and everything that goes with summer-april

> >

> >>hi and welcome. maybe we can come up with answers that our doctors can't

> >

>

> > hi and welcome. maybe we can come up with answers that our doctors can't

hi susan,

i hope brett is feeling ok-ive had 2 episodes of horrid back pain which

lasted about 2 or 3 weeks-dr evans isnt sure if it is rp or slipped

disc-symptoms and treatment the same so guess it doesnt matter-thank God

ive only had that 2x-second time it took a long while to walk without

pain and dragging of leg-but short lived thank God-hope brett has that

luck-sometimes-most times blood tests show nothing except maybe elevated

esr so ---anyway-good luck-look forward to meeting you guys-april

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  • 5 months later...
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I'm in NJ, but my mother and her husband live in Jensen Beach, FL. We will

be there in April. Where are you?

Jodi

Hi

> From: booboooww@...

>

> Does anyone live in or around Florida?

>

> a

> 4 1/2 RSS

>

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>

>

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Guest guest

a

I live in Georgia, for all the good it would do us as far as visits go . I

live on the North Carolina boarder. But, it's still down in Dixie. Grandma

Ann, if I'm not mistaken lives in South Carolina.

Danna

Hi

> From: booboooww@...

>

> Does anyone live in or around Florida?

>

> a

> 4 1/2 RSS

>

> ------------------------------------------------------------------------

> GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0%

> Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

> http://click./1/937/0/_/229381/_/953084920/

> ------------------------------------------------------------------------

>

>

>

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Guest guest

Danna,

I was just wondering if anyone was close. I guess I have just never seen

another child with the RSS and was wondering about a gathering close by or

something. a

( 4 1/2 - 26 lbs 36 inches tall)

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a

I know what you mean. Have you seen the pictures in the files section of

the onelist web site for RSS? I know it's not like seeing RSS kids in

person, but it's the next best thing.

Danna

Re: Hi

> From: booboooww@...

>

> Danna,

>

> I was just wondering if anyone was close. I guess I have just never seen

> another child with the RSS and was wondering about a gathering close by or

> something. a

> ( 4 1/2 - 26 lbs 36 inches tall)

>

> ------------------------------------------------------------------------

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> 0.0% Intro or 9.9% Fixed APR and no hidden fees.

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> ------------------------------------------------------------------------

>

>

>

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  • 1 year later...

Hi,

Am a reg on OZ for Nons.

Have an adopted 21 yr old BPd who has 2 little girls.

Maybe have mentioned this before here awhile back.

Anyway, she has made our life HELL. We sometimes, no

mostly, wish we hadn't adopted her. We were naive and

foolish at the time, didn't check more thoroughly into

her psych eval and soc svc records but that's water

beyond the dumb bridge.

Life has been HELL. But we've been documenting for

Social Services who opened an investigation through

Child Protection.

BP-d attempted suicide about 2 weeks ago, has been

really off the wall emotionally and mentally. Gave us

her babies Nov 16th and hasn't seen them. All of a

sudden, she's " ready " to take them back...we refused.

She threatened our personal safety so we left with the

kids and spent the night elsewhere.

Husband talked to her briefly the following day and

she " switched " on him, from pleasant and huggy, to

threatening and ugly. Slept the night somewhere else

again.

Thursday talked to lawyer.

Friday lawyer wrote up papers, we went to court, judge

ORDERED EMERGENCY TEMP CUSTODY BE GIVEN TO US!!

Miracle!!!

She hasn't been able to be served yet and we dread it

when she is.

We go to court on Tuesday afternoon. We plan on asking

the judge to give us Temp Custody of the two children

for one year, giving her time to get a psych eval and

whatever social services suggests as accountability in

pulling her life together.

We are SO scared of her, we look at Caller ID before

picking up phone, have all the doors triple locked,

etc!!

MN

__________________________________________________

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Hi,

I am so sorry to hear all you are going through. You are ding the right

thing for the children though. Right now she is not able to care for herself

never mind children. I don't blame you for being scared. I am not an expert

but here is my two sense if she gets visitation rights make it in another

place other then your home and make it supervised with a social worker then

you and your husband don't have to deal with her. Also the social worker can

monitor what she is saying to the children.

God Bless

Cheryl

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