Guest guest Posted January 25, 2001 Report Share Posted January 25, 2001 I want to thank you all for responding to my letter.I am so glad I found your group.The neurosurgeon I have never told me a lot about this desease, he just said not to expect any miracles because i had my symtoms so long.He is a good surgeon but that is about all i can say.He sent me home on the second day after surgery and i was only eating ice chips and not keeping them down.I dont care for him to much now because of that and the fact that he doesnt explain anything.where i live the drs. here dont know a lot about it either.I hope they all learn more about it and maybe oeople like us wont have to suffer so long.do any of you draw ss disability for this. i fought for 3 years for mine and they will reevaluate me in october to see if i have improved. I would much rather work i always did until i got to where i couldnt no matter how hard i tryed. i am a very independent person.I am 46 years old and feel like i am trapped in this body that doesnt work right and hurts with every movement.I am so praying that this gets better.I read good stories and bad stories.I wish we could all have happy endings.with love deb Quote Link to comment Share on other sites More sharing options...
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