wHERE TO FIND A DR. WHO SPECIALIZES IN VULVODYNIA

[Guest guest]

I WOULD LIKE TO FIND A DR. WHO REALLY KNOWS THIS CONDITION- I COULD

GO TO BERGEN COUNTY NEW JERSEY, OR WESTCHESTER COUNTY NEW YORK-

ANYONE KNOW?

[Guest guest]

> I WOULD LIKE TO FIND A DR. WHO REALLY KNOWS THIS CONDITION- I COULD

> GO TO BERGEN COUNTY NEW JERSEY, OR WESTCHESTER COUNTY NEW YORK-

> ANYONE KNOW?

I just copied my post from last week to another woman in the NY area:

I've done a lot of internet research and found names through the NVA. There seem

to be only a handful of vulvodynia specialists in NYC: I have been to Dr.

Ledger in NY (Cornell NY Hospital; he is nice and knowledgable but after 3 oral

meds

didn't help me right away he didn't really know/care what else to do), now I'm

going to see

Dr. Gae Rodke (she wrote the Vulvovdynia survival guide w/ Glazer). I

have also

heard good things about Goldstein (he has a web site. www.ourgyn.com), he

is in

NY only somtimes and is expensive (non of these people take insurance). And I've

heard

good things about a Dr. in Philly: Kellogg-Spadt.

If you come across Dr. Peacocke, be careful, she seems to have a very

narrow view

on vulvar pain and doesn't deviate from her treatment even if it doesn't help.

I've heard she has helped many women but I've also heard many disappointed

patients

(through internet groups like this). I saw her for 1.5 years and had to

eventually give

up (she's a dermatologist specializing in vulvar pain).

Lastly, a well repected specialist is Dr. is at the University of

Rochester, NY.

If you want to start Physical Therapy/Biofeedback: Pamela on

Also, join the National Vulvodynia Association, they will send you info and a

list of

specialists in your area, there should be someone in NJ, and they put you in

touch with a

support group.

Good luck.

bel

[Guest guest]

In a message dated 9/18/04 10:20:40 AM, VulvarDisorders

writes:

<< Also, join the National Vulvodynia Association, they will send you info

and a list of

specialists in your area, there should be someone in NJ, and they put you in

touch with a

support group. >>

P.S. This list hasn't been updated in quite awhile, it's not worth the $40 -

if that's the only reason you're joining the NVA. Tara's list on her website

is a much better source.

Debbie

Tiger