~Marie~ other peoples rudeness

[Guest guest]

Hi Sweetie,

I hate to say it but yes Fibro can be a very lonely disease. My Mother has

it too (not as bad as I do) but she still says if you'd just get out and do

something you'd feel better. She believes it's more depression than fibro. She

has it mildly. She is a lucky one. I have it VERY severe. I done so good last

summer & fall after coming back to Texas. The warm weather helped so much. I

even believed I was in remission! I guess I was for a few months! But when

winter hit and it has been very wet and extremly cold for this part of Tx. and

it let me know in a hurry that I indeed still have fibro. I have flared so bad

all winter & am out of all meds here. The Dr's here are not what they were in

Wi.. I remember why I stayed in Wi. for 10 years now. Right now we are having a

couple of nice days close to 80 then the next it may be 19. That is really

hurting me.

I reinjured my back this last week so now I am really suffering with it &

sinus has got a bad hold on me right now. I have a new laptop on it's way to me

thanks to a wonderful NON-FIBRO friend who is empathetic to it. She is so good

to me. We have never even met face to face just over the net. But, she is tired

of me not being able to be on line because it's to cold in here or I am sick so

she has bought a brand new laptop and had it sent to me. Will be here between

tomorrow and Friday. Now that is a true friend. She never asked for one cent of

it back but I did tell her she will get it back with interest if I have to pay

her a dollar a month for the rest of my life.

But, Sweetie like you most of my old friends have gone away because of my

illness. I do have one here in Tx.. That came and spent some time with me today,

it felt so good when she said " Sissy I just don't know what I'd do without you " .

We are so close. I call her Sister and she calls me Sissy! But she does

understand pain. She's had several bad accidents. In fact right now she's going

through a lot, she crushed her right elbow.

I guess what I am saying is the friends that are real TRUE friends will stay

around and support you. If they don't then they never were true friends to start

with. Also, you will find those who do understand. Look in your area for other

people who have fibro. See if there is a Fibro Support group around you. If

there isn't put out some fliers in your area asking for others that have fibro

and would be interested in starting a physical support group to call you. Meet

one or twice a month. Even if you just go to a cafe and have coffe, tea or soda

and talk. You would be suprised how much it would help to find others that share

what you go through. As we do here but in real life not just on-line. Print and

share some of the info from our site. There is many articles if you go into the

files section on the site. You can find places like light companies, AA groups,

employment offices, and other type offices that will let you have mettings. Even

your local hospital would probably let you use a room to have a group meeting

and send paitients to you! So many possibilities that you can do and find new

friends who share what you go through. They will be true friends for life!!!!!

I will close this it is getting long but good luck Sweetie & let us know if

you find a group or start one. I can send you all kinds of info to share in the

group. Also it never hurts to just have (forgive my language) a good old BITCH

session and get it out.

God Bless!

Rev. /WolfPoet

Owner & Founder