Guest guest Posted August 26, 1999 Report Share Posted August 26, 1999 In a message dated 8/25/99 5:07:42 PM Central Daylight Time, Baaboo19@... writes: << Hi all-I have a question,what is your definition of remission??You know like Pete hasn't had a flare in 6 weeks or so,he is on alot of meds and we are VERY SLOWLY coming down on the prednisone but I'm not sure thats remission-wanted to know what you all think. Thanks Janet >> Hi Janet, I consider remission when you are off all the meds and no flare of any kind. AND it sounds like Pete is heading in that direction. I pray that he is : ) Love ya! Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 1999 Report Share Posted August 26, 1999 In a message dated 8/26/99 9:42:16 AM Central Daylight Time, Lu1953@... writes: Lu, I beg to differ, I am sorry, but remission is when the blood work, and symptoms have returned to within normal vaules, with or with out drugs. There is " Drug indused remisson " (which is what I am in), and there is remission with no drugs with Relapsing Polychondritis, which is true with most all disorders. Never the less drugs or no drugs " I am in remission " and plan on staying that way. The good thing is I get no side affects with the Imuran and never felt this good in so long, I fear though we might be lowering the pred to fast (I am 10 mg on pred and should be off of it in a month or so), I might need to go even slower then we are now. I cant even start to explan my energy level and feeling of wellness, I missed it so much and I am so happy I got it back. I never thought I would see this happen. I hate taking drugs! I even thought of lieing to my Doctors and tell them I am taking the Imuran and not take it to see what happens to me just on the low doses of the Prednisone, but I now know I would only hurt my self even more, I was scared I would get sick again like I did with the Methotrexate, but I did not on the Imuran, so I will continue to stay on it long term like they want me to. It would be nice to have a magic ball that will tell me what will happen down the road if I was to go off of the Imuran. Love, << I consider remission when you are off all the meds and no flare of any kind. AND it sounds like Pete is heading in that direction. I pray that he is : ) Love ya! Lu >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 1999 Report Share Posted August 26, 1999 HI , Your right...just consider I have jet lag.....: ) Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 1999 Report Share Posted August 26, 1999 Hi Janet, For me remission means that I am off of the methotrexate and prednisone completely and am on a very low dose of plaquinil for maintainance. I have NO PAIN OR INFLAMATION anywhere! My energy level is good and I feel great. THAT'S REMISSION to me (and my doc says so - lol). My rheumy said I don't need to see him unless I show symptoms. Mimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 1999 Report Share Posted August 26, 1999 In a message dated 99/08/25 04:09:46 pm Central Daylight Time, WCTET42@... writes: << How about we look at what might be contributing to your remissions. Have you done anything differently in the last month? Vacations, kids off to camp : ) >> Hi all, The big change in my life has been stress or lack thereof. I took the summer off to get my priorities in order. I decided to take care of me and everyone else was on the back burner. I was able to do this because my husband agreed that I would be no good to anyone if my health continued to suffer. The change in lifestyle began in January when my husband went to second shift in order to get our daughters off to school. That way the only one I had to worry about was me. When I started feeling better the meds were SLOWLY reduced and I'm doing great. Taking off for the summer was just the icing on the cake. My faith in God and prayers have been the biggest part of my remission. The prayer of serenity especially has helped me to change my lifestyle. God grant me the serenity to accept the things I cannot change the courage to change the things I can and the wisdom to know the difference. Hope this helps someone! Mimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 1999 Report Share Posted August 26, 1999 In a message dated 8/26/99 6:33:36 PM Central Daylight Time, ME2630@... writes: << Taking off for the summer was just the icing on the cake. My faith in God and prayers have been the biggest part of my remission. The prayer of serenity especially has helped me to change my lifestyle. God grant me the serenity to accept the things I cannot change the courage to change the things I can and the wisdom to know the difference. Hope this helps someone! Mimi >> Hi Mimi, Sometimes, I feel that things actually happen to bring us to God. Your e-mail was very inspirational! I agree with you 100% on the reducing the stress. I think it plays a major role in this and all autoimmune illnesses. I am so glad that you are in remission. Take care, Love ya! Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 1999 Report Share Posted August 28, 1999 In a message dated 8/27/99 6:48:02 PM Pacific Daylight Time, susuw@... writes: << Well Eunice, The ball stopped at mine and Angie's door. LOL As far as what remission is, I will never go into remission in you guys terms. No pain??? Come on now, we need to redefine remission so I can play too. LOL Will or Suzie Que LOL, I was talking about no more ostoprosis anymore. With all the Didronil I have taken since I was first told I had 15% ostoprosis, they said I was average in my back & my hips are better than average. (I hope they weren't talking about size) Ha! That is all I was talking about and I am doing good with the RP, but I'm on 400 mg. of Plaquenil and 3 mg. of pred. Now the day that I can throw all the darm medication down the kitchen sink, (or back shelf) I'll say remission. I've been so busy doing catch-up around here since I had stomach problems and it is a whole lot better, that I haven't made myself clear. OPPS. But, the group helps me a lot and I'm happy about the way I'm doing. I wish that for everyone and I hope more of us good better. Summer helps, don't you think? I know this winter I'll probably be singing the blues again, but for now I'm just singing. LOL Love, Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 1999 Report Share Posted August 28, 1999 In a message dated 8/28/99 8:32:31 PM Pacific Daylight Time, susuw@... writes: << As far as singing, I don't sing, I just howl!!!! Wanna hear me???? LOL >> , If I sang in public or even around husband, I would get Booed. I make a good frog and then up to higher than a soprano and back again. Terrible, but let's keep tormenting them. LOL If I could get rid of pills, they'd be real sorry as I'd sing like a crazy women. Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 1999 Report Share Posted August 28, 1999 Eunice, One of these days, we are all gonna have a " flush the pills down the toilet party! " Cause we aren't gonna need them anymore. It's gonna come soon too!!! I know what you mean about dreading winter. My knee has been so good until the past couple of weeks, and now it's practicing for winter already. Bad knee, bad knee!!! As far as singing, I don't sing, I just howl!!!! Wanna hear me???? LOL >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Will or Suzie Que LOL, I was talking about no more ostoprosis anymore. With all the Didronil I have taken since I was first told I had 15% ostoprosis, they said I was average in my back & my hips are better than average. (I hope they weren't talking about size) Ha! That is all I was talking about and I am doing good with the RP, but I'm on 400 mg. of Plaquenil and 3 mg. of pred. Now the day that I can throw all the darm medication down the kitchen sink, (or back shelf) I'll say remission. I've been so busy doing catch-up around here since I had stomach problems and it is a whole lot better, that I haven't made myself clear. OPPS. But, the group helps me a lot and I'm happy about the way I'm doing. I wish that for everyone and I hope more of us good better. Summer helps, don't you think? I know this winter I'll probably be singing the blues again, but for now I'm just singing. LOL Love, Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 1999 Report Share Posted August 29, 1999 In a message dated 8/28/99 10:32:37 PM Central Daylight Time, susuw@... writes: << we are all gonna have a " flush the pills down the toilet party! " Cause we aren't gonna need them anymore. It's gonna come soon too!!! >> Hey all, Wouldn't that be a wonderful party. I wouldn't mind waiting in line for that one.LOL Love ya! Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 1999 Report Share Posted August 29, 1999 In a message dated 8/28/99 5:54:30 PM Central Daylight Time, WCTET42@... writes: << but for now I'm just singing. LOL Love, Eunice >> Hi Eunice, Lu here... you sound like such a fun person to be around! I am so glad you are doing well. Keep it up ! Love ya! Lu Quote Link to comment Share on other sites More sharing options...
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