Re: Hi, This is my first post

[Guest guest]

Hi Deb,

You sound like me. I always have to have 4-5 blankets under me at nite

to sleep on. Preferrably very soft ones. Anything rough irritates my

skin. Plus 2 of those mattress pads. Pillows anything like you said to

take any pressure off any part of my body.

I want to be social again. I was let go from my job 3 years ago it was

alla misunderstanding on the companies part . I took them to court and

won my case hands down. But felt so hurt, betrayed, and friendless.

It really took a toll on me.

The third year I had all kinds of job offers, but fell in CO. and

dislocated my shoulder,came home and did it againbut bad this time.

Had a specialest that would not do surgery went to PT for awhile but

even with that arm kept popping out of socket. Went to another

specialist that sayd I needed surgery to fix a Labrum tear. Now why

for the life of me this other so called specialist wouldn't do what I

asked. In may of this year I had the surgery. It has been a year now

with putting up with this and I do not know if I have the confidence to

get back in the work place.

The stress can be horrible but I miss being around people. It scares

me to death as a matter of fact. I have lost my confidence. I just do

not know if I can do it. I am so out of shape but my husband keeps

hounding me to get a job. He says he understands but I don't think he

does. He would like me to apply for disability but I do not even know

where to start. Could someone tell me what I need to do first. But,

deb you are not alone I understand completely.

Lori Hammer

>

> Hi, I am Deborah, I am 48 and I have had FMS since 1994, the first

> time I was diagniosed with FMS. Since then as the disease has

>

[Guest guest]

Welcome to the forum... a few of us are bi-polar. Unfortunately my

meds don't help the fms. I know about the feeling of isolation and

the fear that comes when you face going back out into the world. I

was on LTD for major depression and pain and barely got out of bed

for four months. Facing the world and facing the possibility of

having to go out in it every day is frightening. You have to work

every minute. Your body aches, people in a grocery line either crowd

you or annoy you, and the stress it builds aggrevates the fms. But

it is better than staying at home (though some days I have trouble

believing that). I work, I stress, I survive ... but you have to get

out of the house to do it. You are too young to stay at home.

>

> Hi, I am Deborah, I am 48 and I have had FMS since 1994, the first

> time I was diagniosed with FMS. Since then as the disease has

> progressed...Ibs, oh that is FMS...Chronic headaches, oh thats

> FMS...Don't go into the deepest part of Sleep thats FMS. So I have

> been diagniosed and re-diagiosed many times with FMS. I like

others

> was maintaining pretty good on vitamins and natural remedies till I

> got a staff infection after a surgery. It lasted seven months and

as

> it progressed so did my Fibro. Went from full-time work to part-

time

> to homebody. I have been getting better over the last two years

with

> some drug cocktails. I like others was diagniosed with bi-polar two

> years ago, but have been real lucky, the drugs have intermeshed. I

> have a dream team of doctors, good insurance as well as VA benefits

> and a supportive husband. I realize how blessed I am, others have

had

> it so hard. Even during my 3 month slug period when I could only

lay

> around with pillows tucked every where to ease the pressure, I was

> cared for by my family. But what I don't have now is contact with

the

> outside world, I am feeling social but not going back out there and

> work with all that stress. I hope I can meet others this way (now

> that I have high speed internet,LOL) and learn and give support as

> well as recieve. Nice to meet you all, Deborah

>

[Guest guest]

Hi

Are you talking about one of those body pillows?

There long and slimmer than a normal pillow or is it able to be molded to your

body ?

*~~~ LadyMoonkist ~~~* wrote:

Hi there!

Has anyone else ever used the " Comfort U " Pillows? I bought one and let me

tell you, I have slept very well since I did...they cuddle right around your

body and the knots/pains seem to ease off a lot. I couldn't do it without my

pillow...and that's the truth!

I also use heated corn sacks at night, made out of flannel material, that

you heat in the microwave.

What else do you all use?

-- Re: Hi, This is my first post

Hi Deb,

You sound like me. I always have to have 4-5 blankets under me at nite

to sleep on. Preferrably very soft ones. Anything rough irritates my

skin. Plus 2 of those mattress pads. Pillows anything like you said to

take any pressure off any part of my body.

I want to be social again. I was let go from my job 3 years ago it was

alla misunderstanding on the companies part . I took them to court and

won my case hands down. But felt so hurt, betrayed, and friendless.

It really took a toll on me.

The third year I had all kinds of job offers, but fell in CO. and

dislocated my shoulder,came home and did it againbut bad this time.

Had a specialest that would not do surgery went to PT for awhile but

even with that arm kept popping out of socket. Went to another

specialist that sayd I needed surgery to fix a Labrum tear. Now why

for the life of me this other so called specialist wouldn't do what I

asked. In may of this year I had the surgery. It has been a year now

with putting up with this and I do not know if I have the confidence to

get back in the work place.

The stress can be horrible but I miss being around people. It scares

me to death as a matter of fact. I have lost my confidence. I just do

not know if I can do it. I am so out of shape but my husband keeps

hounding me to get a job. He says he understands but I don't think he

does. He would like me to apply for disability but I do not even know

where to start. Could someone tell me what I need to do first. But,

deb you are not alone I understand completely.

Lori Hammer

>

> Hi, I am Deborah, I am 48 and I have had FMS since 1994, the first

> time I was diagniosed with FMS. Since then as the disease has

>

1. While it is wonderful to share our experiences with everyone on the list

as to what treatments do and don't work for us, pls always check with your

dr. Some treatments are dangerous when given along with other meds as well

as to certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't

be afraid to ask for help. It is the first step to trying to make that

situation better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at

the same time when it comes to flares and b/c of that potentially take

something another member says the wrong way. And that includes the things

that one member may find funny (even if it's laughing at fibro itself) even

though we who deal with illness whether one such as fibro or multiple

illnesses try to keep a sense of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls

let us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

Hiya ,

They are kinda shaped like a horseshoe, and they do mold around your body.

Well worth every dollar you pay for them, that's for sure. I have had mine

over a week now, and I don't know how I made it without it. You can take the

'limbs' and put them between your legs, or use them to prop up on, they come

with a little picture of different ways to bend them and such.

Here is the website, so you can see a picture of them. I bought mine on Ebay

though, for ALOT cheaper. 56 bucks plus shipping.... http://www

dreamessentials.com/a_relax_comfort_u.aspx

If the URL for the pillow didn't come through, email me, and I can send you

a picture of one, or simply on into search and type in Comfort U Pillow....a

lot of places sell them.

I also have feather pillows I used before I got this one...they helped a lot

but would always slide off the bed, or the feathers would poke me in the

head :-)

-- Re: Hi, This is my first post

Hi Deb,

You sound like me. I always have to have 4-5 blankets under me at nite

to sleep on. Preferrably very soft ones. Anything rough irritates my

skin. Plus 2 of those mattress pads. Pillows anything like you said to

take any pressure off any part of my body.

I want to be social again. I was let go from my job 3 years ago it was

alla misunderstanding on the companies part . I took them to court and

won my case hands down. But felt so hurt, betrayed, and friendless.

It really took a toll on me.

The third year I had all kinds of job offers, but fell in CO. and

dislocated my shoulder,came home and did it againbut bad this time.

Had a specialest that would not do surgery went to PT for awhile but

even with that arm kept popping out of socket. Went to another

specialist that sayd I needed surgery to fix a Labrum tear. Now why

for the life of me this other so called specialist wouldn't do what I

asked. In may of this year I had the surgery. It has been a year now

with putting up with this and I do not know if I have the confidence to

get back in the work place.

The stress can be horrible but I miss being around people. It scares

me to death as a matter of fact. I have lost my confidence. I just do

not know if I can do it. I am so out of shape but my husband keeps

hounding me to get a job. He says he understands but I don't think he

does. He would like me to apply for disability but I do not even know

where to start. Could someone tell me what I need to do first. But,

deb you are not alone I understand completely.

Lori Hammer

>

> Hi, I am Deborah, I am 48 and I have had FMS since 1994, the first

> time I was diagniosed with FMS. Since then as the disease has

>

1. While it is wonderful to share our experiences with everyone on the list

as to what treatments do and don't work for us, pls always check with your

dr. Some treatments are dangerous when given along with other meds as well

as to certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't

be afraid to ask for help. It is the first step to trying to make that

situation better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at

the same time when it comes to flares and b/c of that potentially take

something another member says the wrong way. And that includes the things

that one member may find funny (even if it's laughing at fibro itself) even

though we who deal with illness whether one such as fibro or multiple

illnesses try to keep a sense of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls

let us know so that we can do our best to offer our support.

Have a nice day everyone.