Re: MCT Oil

[Guest guest]

I will look into the higher ketones. I don't know. It is possible. Will have

to check. She is continuing to be more alert and happy though.

I have a BHB monitor, but I can't yet justify the cost of the strips. Are you

getting help to pay for them? Prescription? Other?

Bill

heppner1@... wrote:

>

> We have an increase in constipation using the MCT oil as well. Is there

> a posibility that with the increase in seziures later in the day that

> ketones are too high for your child? I have noticed with Mike that when

> ketones are too high he gets " crazy " bouncing off walls and very hyper -

> then when he is made to relax (during meds time when he has to sit down)

> he has an increase in seizures. I am getting a BHB monitor today -

> hopefully I can tell what is what better with that.

>

> Jenn

[Guest guest]

Yes getting prescrip for the bhb strips - not quite sure but I think we

are going to get enough for two tests/day (that was my request) as my

son due to his meds is only voiding once a day and we are trying to fine

tune the diet and finding it difficult when I can only test ketones at

8pm. Also, I am hoping to test ketones after tc seizures (he has these

infrequently now but still around 6am when they do come) and there is no

way I can get him to go to the bathroom after a seizure.

Jenn

Bill Barber wrote:

> I will look into the higher ketones. I don't know. It is possible.

> Will have

> to check. She is continuing to be more alert and happy though.

>

> I have a BHB monitor, but I can't yet justify the cost of the strips.

> Are you

> getting help to pay for them? Prescription? Other?

>

> Bill

>

> heppner1@... wrote:

> >

> > We have an increase in constipation using the MCT oil as well. Is

> there

> > a posibility that with the increase in seziures later in the day

> that

> > ketones are too high for your child? I have noticed with Mike that

> when

> > ketones are too high he gets " crazy " bouncing off walls and very

> hyper -

> > then when he is made to relax (during meds time when he has to sit

> down)

> > he has an increase in seizures. I am getting a BHB monitor today -

> > hopefully I can tell what is what better with that.

> >

> > Jenn

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

[Guest guest]

I am going to ask my neuro for a prescription then. What exactly do you ask

for? The strips by manufacturer? Who helps you with this? Nurse, doctor,

dietician? Other?

Thanks,

Bill

heppner1@... wrote:

>

> Yes getting prescrip for the bhb strips - not quite sure but I think we

> are going to get enough for two tests/day (that was my request) as my

> son due to his meds is only voiding once a day and we are trying to fine

> tune the diet and finding it difficult when I can only test ketones at

> 8pm. Also, I am hoping to test ketones after tc seizures (he has these

> infrequently now but still around 6am when they do come) and there is no

> way I can get him to go to the bathroom after a seizure.

>

> Jenn

>

[Guest guest]

I asked for precision blood ketone testing strips. (For the precision

xtra machine) I havent checked to see if it went thru or not tho - will

check with the pharmacy tomorrow.

HTH

Jenn

P.S. do you have a prescrip for the MCT oil as well?

Jenn

Bill Barber wrote:

> I am going to ask my neuro for a prescription then. What exactly do

> you ask

> for? The strips by manufacturer? Who helps you with this? Nurse,

> doctor,

> dietician? Other?

>

> Thanks,

> Bill

>

> heppner1@... wrote:

> >

> > Yes getting prescrip for the bhb strips - not quite sure but I think

> we

> > are going to get enough for two tests/day (that was my request) as

> my

> > son due to his meds is only voiding once a day and we are trying to

> fine

> > tune the diet and finding it difficult when I can only test ketones

> at

> > 8pm. Also, I am hoping to test ketones after tc seizures (he has

> these

> > infrequently now but still around 6am when they do come) and there

> is no

> > way I can get him to go to the bathroom after a seizure.

> >

> > Jenn

> >

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

[Guest guest]

Oops forgot to answer - I talked to the neurology nurse clinician who

passed the request on to the neuro who called in the prescrip.

Jenn

Bill Barber wrote:

> I am going to ask my neuro for a prescription then. What exactly do

> you ask

> for? The strips by manufacturer? Who helps you with this? Nurse,

> doctor,

> dietician? Other?

>

> Thanks,

> Bill

>

[Guest guest]

<PRE>what is a BHB monitor???

[Guest guest]

Oh yes, I have a prescription for MCT as it is very expensive.

Bill

heppner1@... wrote:

>

> I asked for precision blood ketone testing strips. (For the precision

> xtra machine) I havent checked to see if it went thru or not tho - will

> check with the pharmacy tomorrow.

>

> HTH

>

> Jenn

>

> P.S. do you have a prescrip for the MCT oil as well?

>

[Guest guest]

A BHB monitor tests for beta hydroxybuterate - or blood ketones. Mine

tests both blood ketones and blood glucose but you need to calibrate it

for either and use different strips for the different tests.

HTH

Jenn

SJVC5@... wrote:

> <PRE>what is a BHB monitor???

[Guest guest]

> We have been experimenting with MCT oil the past couple of months.

We are

> finding the opposite of published reports. We are getting more

constipation,

> not less. And we are getting more seizures, especially later in the

day. We

> plan to stick with it for another month, then switch back to non-

MCT, if there

> is no improvement.

>

> Bill

Dear Bill,

We have a great book... " Fats That Heal, Fats That Kill...

MCTs (medium chain triglycerides)...are usedfor patients with liver

damage because, unlike long-chain fatty acids, they require little

liver involvement for their metabolism. During digestion, they are

absorbed directly into the bloodstream rather than into lymphatics,

and go directly to our cells rather than first to our liver. They

lower cholesterol slightly. They are more water soluable than long

chain saturated fatty acids.They require less lecithin and bile salts

for digestion. MCTs are useful in conditions where fat malabsorption

is a problem, or in conditions where liver function is impaired.

Athletes use MCTs- about one tbsp - as a source of energy before a

workout. The oil has a light coconut flavor, but can produce a

scratchy sensation at the back of the throat. More than 2 tbsp may

produce stomach discomfort. An excess can cause ketosis. An excess

ties up albumin protein that is necessary for other transport

functions in our blood, such as carrying vit E, amino acids, and

other substances. They carry neither EFAs nor other essential

nutrients.

Flaxseed oil is the richest source of alpha-linolenic acid, which is

rare in our foods. It also contains protein, minerals, and

vitamins. It is a rich source of mucilage and fiber, which helps the

body eliminate cholesterol, and help prevent reabsorption oftoxic

wastes from the large intestine. Flax is also the richest known

source of lignans, which have anti-viral, anti-fungal, anti-bacterial

and anti-cancer properties.Its oil is used in natural programs for

the reversal of cardiovascular disease, cancer, diabetes,premenstrual

syundrome, inflammatory conditions, arthritis , etc. (caution...oil

and seeds should be fresh as is possible...and refrigerated..tasting

will tell...rancid tastes are obvious.

We buy seeds from tha health food store and grind them up in a spice

grinder...they are sort of nutty flavored...can be put in

anything...we also use the organic oil. These oils spoil in a short

time...they can be frozen. It must be fresh, not be exposed to

light,oxygen,and heat...fresh unrefined flax oil contains lecithin

and other phospholipids that help emulsify fats and oils...the diet

should include vit B3,B6,and C and the minerals magnesium and zinc..

The seed is better than the oil, and the seed is enriched with

antioxidants, vitamins and minerals.

Magnesium-rich chlorophyll is found in unrefined green oils such as

olive, hemp,pumpkin, and avacado. Olive oil (unrefined, virgin)

protects the arteries rather than damaging them. " Extra virgin "

means the highest quality. It improves brain function and

maturation. It can reduce bad " LDL " cholesterol. It favors bile

secretion, which improves the elimination of toxic end products of

liver detoxification and improves digestion of fat. It increases good

cholesterol (HDL). There is much more positive info about unrefined

olive oil...

but I have gone on too long.

I would be happy to look up anything I can for you...or anyone...it

helps me help my wonderful daughter and her wonderful daughter.

With hope,

diane ake, grandmother to Kiara,2, IS, CPI, EP, CP, dev del soon to

be a keto kid.

so vit and min supplements are so important...

[Guest guest]

> We have been experimenting with MCT oil the past couple of months.

We are

> finding the opposite of published reports. We are getting more

constipation,

> not less. And we are getting more seizures, especially later in the

day. We

> plan to stick with it for another month, then switch back to non-

MCT, if there

> is no improvement.

>

> Bill

Dear Bill,

Forgot about re:constipation

Fiber...keeps our digestive tract from getting clogged with mucus,

toxic materials, and metabolic wastes. It keeps out colon swept and

moving. It is necessary for intestine and colon healthl It feeds and

maintains a healthy intestinal flora make up of friendly little

bacteria and yeasts that make some of our vitamins and protect us

from unfriendly intestinal bugs. A healthy colon minimizes release

of toxins back into our blood. It also lowers blood cholesterol,

because it prevents cholesterol and bile acids from being reabsorbed

into our body from our intestine. Cholesterol and bile acids attacjh

to fiber, and are carried out of our body into the toilet with solid

wastes. Fiber softens stools, prevents constipation, and maintains

regularity. Flax is an excellent source of fiber..(need fluids

tho...with). Flax is 12% mucilage and makes flax seeds the best

natural laxative available. This soft, water- soluable kind of fiber

soothes and protects delicate stomach and intestinal lining, prevents

irritation, and keeps the contents moving smoothly along. It absorbs

water and swells to about 20 times its dry volume ...( therefore, 5

times the volume of the flas being eaten, as fluid, should accompany

its consumption). It has no side effects. Flax mucilage also has

the ability to buffer excess acid. This makes it ideal for people

with acid or sensitive stomachs, ulcers, and inflammmatory conditions

fo any part of the intestine.

It lowers elevated cholesterol by preventing reabsorption of bile

acids, and decreases absorption of cholesterol from foods, increasing

the amount of cholesterol excreted.

Mucilage helps stabilize and modulate blood glucose, which is useful

in diabetes and hypoglycemia....Mucilage is perfect food for

beneficial bacteria in our colon, helping them keep bad

intestinal 'bugs' under control.

Flas has minerals and vits and lignans.

Kiara has digestive problems anyway so we use flax oil and ground

seeds.

I hope this is of some help.

Many people on high protein diets have constipation.

Okra is a good source of fiber..(1/2 cup = 80mg) ...carbs= 5.768...

oils soften protein hardened foods...

Too little water...body drags the water it needs out of our

intestinal tract.

see:

www.florainc.com