Re: re: Guai - Amy - correction

[Guest guest]

I made a mistake in the first post so please ignore it and use this one.

Ora

I found the posts and thanks very much for your help.

's post did mention that 40% of his patients had vulvodynia however she

stated that she did not break that down into the various kinds of vulvodynia

which according to St. Amands includes the following:

)burning on urination

Vulvar Pain )Vulval chafing, rawness, burning

Syndrome )excessive vaginal mucus

(vulvodynia) )yeast infection

)frequent bladder infections

)interstitial cystitis

=========================

http://www.guaidoc.com/Research_Genito.htm

In addition to the above, women will often note burning on urination, persistent

or fleeting, and vaginal irritation or discharge. If pelvic pain level allows

intercourse, vulval or introital chafing, rawness or burning follows. Excessive

vaginal mucus often follows and may permit a medium for frequent yeast

infections. Others may suffer repeated bladder infections. At other times,

similar symptoms arise but urinalyses are clear and no bacteria can be cultured.

These people are often told they have " interstitial cystitis. " This cluster of

symptoms is now known as " Vulvar Pain Syndrome (VPS) " or Vulvodynia. A subset of

these women have a more specialized complaint called Vestibulitis, or vulvar

vestibulitis- which refers to pain and irritation in the area of the entrance to

the vagina. In my experience, all the women I have examined with the Vulvar Pain

Syndrome have had Fibromyalgia.

====================================

Now it seems to me that if he asks his patients if they have ever had a bladder

or yeast infection, he would consider that to be under the heading of

Vulvodynia.

I wonder if he knows what Vulvodynia is at all.

But maybe he does because there is an article at:

http://www.drgatell.com/fm-cfids.htm

Dr. St. Amand's discoveries were a result of his specialties of internal

medicine, endocrinology and metabolism. He has successfully treated

thousands of patients with fibromyalgia using Guaifenesin. Similarly,

Drs. and s, have treated patients with vulvodynia

(a painful condition of the female genitals) with a diet to enhance

reduction in the chemical oxalate in

cells. Apparently, oxalate releases histamine and causes serious local

pain.

Dr. St. Amand discovered that at least 11% of his patients who present

with fibromyalgia also have vulvodynia (painful female genitals). His

studies on the urine of patients, before and after Guaifenesin therapy,

showed an increase excretion of not only phosphates, but also enhanced

oxalate crystal excretion which also reduces vulvodynia !

>Dee and Ora,

>The archives at ''Maelstrom'' are the ones that Ora mentioned. I

>don't know anything about them. The ones at

>http://peach.ease.lsoft.com/archives/guaigroup.html do let you search

>within a time frame, so if you search for vulvodynia where author's

>address contains fmsnurse in Nov. 2003, you'll find 2 posts on

>11/14/03 which give the stats. The first one gives more comments but

>the alignment is messed up, so please see both posts. The stats are

>given in tables and the formatting already was having trouble in the

>original message so might become even more unreadable if I pasted it

>here. The number I was citing is that " Based on 1883 consecutive

>patients...40% [of the female patients] have vulvodynia "

>(again, " patients " refers to Dr. St. Amand's FM patients).

>

>Dee, I don't know which group you had trouble joining. If your

>browser won't accept cookies, you might have trouble.

>

>Amy

[Guest guest]

Ora, your info below is not what St. Amands calls vulvodynia. You

have listed various genitourinary symptoms of FM, one of which is

vulvodynia. He lists vulvodynia first, so perhaps you (or someone

else misquoting him) thought that the rest of those symptoms were his

description of VV, rather than a list of genitourinary symptoms. Here

is his definition from his first book (p. 175, you can search inside

it on amazon):

" Vulvodynia or vulvar pain syndrome - Severe pain, burning, and/or

itching in the vulvar (the vulva is the are of the female's external

genitalia) area. This area is extremely sensitive to touch, and may

or may not be red and visibly irritated. Vulvar Vestibulitis Syndrome

(VVS) is less common, and applies to women who have pain only in the

vestibule, a smaller area than the vulva. "

In the statistics post, numbers for these 4 categories of

genitourinary symptoms are listed separately:

Dysuria

Pungent Urine

Bladder Infections (more than 5)

Vulvodynia

When wrote that vulvodynia was not broken down into types,

she meant into vestibulitis, dyspareunia, etc. - but the 40% figure

applies ONLY to VV, not to the urinary symptoms.

Amy

> 's post did mention that 40% of his patients had vulvodynia

however she

> stated that she did not break that down into the various kinds of

vulvodynia

> which according to St. Amands includes the following:

>

>

> )burning on urination

> Vulvar Pain )Vulval chafing, rawness, burning

> Syndrome )excessive vaginal mucus

> (vulvodynia) )yeast infection

> )frequent bladder infections

> )interstitial cystitis

[Guest guest]

I was not misquoting him. Apparently you did not go to the url which I gave

with my post at http://www.guaidoc.com/Research_Genito.htm

That website purportedly was authored by Dr. St. Amand and I think 's

statistics were based on what is contained therein. She is president of the

Fibromyalgia Treatment Center " .

I assume that the definition of Vulvar Pain Syndrome (vulvodynia) mentioned in

that article is Dr. St. Amands conception of the condition and not necessarily

that of other researchers.

Ora

>Ora, your info below is not what St. Amands calls vulvodynia. You

>have listed various genitourinary symptoms of FM, one of which is

>vulvodynia. He lists vulvodynia first, so perhaps you (or someone

>else misquoting him) thought that the rest of those symptoms were his

>description of VV, rather than a list of genitourinary symptoms. Here

>is his definition from his first book (p. 175, you can search inside

>it on amazon):

> " Vulvodynia or vulvar pain syndrome - Severe pain, burning, and/or

>itching in the vulvar (the vulva is the are of the female's external

>genitalia) area. This area is extremely sensitive to touch, and may

>or may not be red and visibly irritated. Vulvar Vestibulitis Syndrome

>(VVS) is less common, and applies to women who have pain only in the

>vestibule, a smaller area than the vulva. "

>

>In the statistics post, numbers for these 4 categories of

>genitourinary symptoms are listed separately:

>

>Dysuria

>Pungent Urine

>Bladder Infections (more than 5)

>Vulvodynia

>

>When wrote that vulvodynia was not broken down into types,

>she meant into vestibulitis, dyspareunia, etc. - but the 40% figure

>applies ONLY to VV, not to the urinary symptoms.

>

>Amy

>

>

>> 's post did mention that 40% of his patients had vulvodynia

>however she

>> stated that she did not break that down into the various kinds of

>vulvodynia

>> which according to St. Amands includes the following:

>>

>>

>> )burning on urination

>> Vulvar Pain )Vulval chafing, rawness, burning

>> Syndrome )excessive vaginal mucus

>> (vulvodynia) )yeast infection

>> )frequent bladder infections

>> )interstitial cystitis

>

>

>

>

>

>*****END OF MESSAGE/REMOVE WHEN REPLYING*****

>http://groups.yahoo.com/group/VulvarDisorders

>to search our archive or view our files.

>

>***

[Guest guest]

I dont deal with numbers or percentages etc, but I do believe that Dr. St Amand has only gone by his own personal patients. had vulvar pain from the time she was a child. It was supposedly very bad. Unfornatuly she didnt really mention it during the months I was in the group.Evenwhen questions were asked and even when Candace and I requested those with VV post their stories so that we could get them into the archives. When I first joined, there werent very many postings on VV and most that were there were from Candace. VVS and VVD can be symptoms of FMS, but that doesnt mean all of us have it. Unfortunately I do and Amy does and CAndace who used to post here does and so on. I hope guai works for Amy like it did for Candace. I was very pro Guai in the beginning as well, but its much harder than those of you who haven been on the protocol realize. Yu cant just take a pill and be done with it. You have to change EVERYTHING> No Sals at all. And

everyone knows I am big on herbs, that was the hardest part, that and giving up mint and even cinnamon toothpaste and all my cosmetics and lotions and so on. Well, basically it was hard period.

taurusrc@... wrote:

I was not misquoting him. Apparently you did not go to the url which I gavewith my post at http://www.guaidoc.com/Research_Genito.htmThat website purportedly was authored by Dr. St. Amand and I think 'sstatistics were based on what is contained therein. She is president of theFibromyalgia Treatment Center". I assume that the definition of Vulvar Pain Syndrome (vulvodynia) mentioned inthat article is Dr. St. Amands conception of the condition and not necessarilythat of other researchers. Ora>Ora, your info below is not what St. Amands calls vulvodynia. You >have listed various genitourinary symptoms of FM, one of which is

>vulvodynia. He lists vulvodynia first, so perhaps you (or someone >else misquoting him) thought that the rest of those symptoms were his >description of VV, rather than a list of genitourinary symptoms. Here >is his definition from his first book (p. 175, you can search inside >it on amazon):>"Vulvodynia or vulvar pain syndrome - Severe pain, burning, and/or >itching in the vulvar (the vulva is the are of the female's external >genitalia) area. This area is extremely sensitive to touch, and may >or may not be red and visibly irritated. Vulvar Vestibulitis Syndrome >(VVS) is less common, and applies to women who have pain only in the >vestibule, a smaller area than the vulva.">>In the statistics post, numbers for these 4 categories of >genitourinary symptoms are listed

separately:>>Dysuria >Pungent Urine >Bladder Infections (more than 5)>Vulvodynia>>When wrote that vulvodynia was not broken down into types, >she meant into vestibulitis, dyspareunia, etc. - but the 40% figure >applies ONLY to VV, not to the urinary symptoms.>>Amy>>>> 's post did mention that 40% of his patients had vulvodynia >however she>> stated that she did not break that down into the various kinds of >vulvodynia>> which according to St. Amands includes

the following:>> >> >> )burning on urination>> Vulvar Pain )Vulval chafing, rawness, burning>> Syndrome )excessive vaginal mucus>> (vulvodynia) )yeast infection>> )frequent bladder infections>> )interstitial cystitis>>>>>>*****END OF MESSAGE/REMOVE WHEN REPLYING*****>http://groups.yahoo.com/group/VulvarDisorders>to search our archive or view our files.>>***