Thanks

[Guest guest]

In a message dated 7/29/01 2:06:16 AM Pacific Daylight Time,

abbey@... writes:

<< Reading some of the posts for the last few days has made me think about

just what I owe and what we all owe those who care for us. I met Chris

when I was 15 >> I met my husband when I was in the 8th grade and we

are together now for 19 years. He knew that I had problems when he married me

and he has always taken care of me in every way. I have been sick for the

past few years, bipolar and depression don't make for much fun for me or him.

But he tells me that he is my biggest fan and he gives me all the support he

can give me. I know every single day that I am loved and appreciated and I

hope he knows the same from me. Sorry just my mushy story.......lori Jo

[Guest guest]

DITTO GEORGIA!!!!!

Carol

C & G son wrote:Since my surgery

he has been invaluable. Never has he said anything to make me feel

bad or guilty about the burdens and frustrations of having Nf2 - I do a

good job of that myself! He cares for me physically, he does most

of the housework and lots of the cooking, he makes sure I take my pills,

He drives us everywhere, gets up early every morning to get the girls off

to school, does all he can to make life easy for me.

[Guest guest]

In a message dated 8/16/01 6:44:30 PM Pacific Daylight Time,

marcusmc@... writes:

<< When I joined the crew my eyes were shut I could not see your pain.

Now they are so wide I need to run and hide.

This is for my friend Don,

Big Log >>

(((((((((((Marcus)))))))))))) You are the best friend a person could ever ask

for. I mean that from the heart. Lori Jo

[Guest guest]

I can believe it Marie, nothing wrong with trying to preserve our self

image. Self image is very important, especially since you are a very PUBLIC

person.

Mikey

thanks

> thanks for the crew card; I did not expect that; I don't put my surgery in

> the class of " surgery " that goes on in the Crew; this was elective--can

you

> believe I would be dumb enough to do elective surgery??? Marie

> Marie Drew

>

>

>

>

>

[Guest guest]

Thanks, Dawn, , Tonia, etc. for your sympathies.. I was, indeed, looking

forward to this treatment and the block, and am very disappointed.

I did have my grandson here with me today to make me feel better though. He is,

certainly, the joy in my life these days.

Hugs,

Jo

[Guest guest]

Tim

The lost thoughts are a combo of rsd and meds for me.

Good luck at your appt.

In a message dated 4/4/2004 12:49:17 PM Eastern Standard Time, RSD-CRPSofAmerica writes:

Message: 15 Date: Sun, 04 Apr 2004 16:19:29 -0000 Subject: Thanks!First off yesterday was a mixed bag of emotion. For the last year I have been giving the same complaints to my Doctor and the Company Doctor even after the surgeries and treatments and when they both believed that I had RSD/CRPS it was kind of a relief. I did not know anything about RSD and when I began researching it I have to tell ya I am scared to death of what it could progress to. It is such a relief that there are others going through it and that all this time I wasn't going crazy, but what a crappy payoff to feel sane.My wife read some of the information I printed out regarding RSD and I think she now understands why I have been so irritable and snap at her, usually it is when she asks me to explain myself or questions me about things I don't remember, I just can't articulate my feelings like I use to and I get very frustrated and angry.I have a Dr. appointment tomorrow and my wife is going to go with me so hopefully we will both have a better understanding. I just hope I can control my irritability because she is the last person I want to hurt or drive away. I am never physically abusive, its not in my nature but I have been yelling quit a bit so much so she stays away from the house as long as possible. Just feel like a complete failure.I take 2400 mg of Ibuprofen a day for the headaches and it takes the sharpness out of them but the dull ache that remains wears on you.Anyway thanks for all the replies and advice, I think this is the first time in a year that I have really opened up and explained my feelings, I don't feel as isolated or crazy...thanks again!Tim

[Guest guest]

Tim - I wish that you weren't having such a rough time of it. I think it's a great idea to include your wife when you go to your appointments....both in terms of helping to increase her understanding and in terms of her providing information of how uncomfortable you are. Have you thought about talking to your doc and explaining that you're not getting adequate pain relief? Barbara

[Guest guest]

Barbara,

Actually this will be the first time I will speak with him regarding

RSD, he has sent me to pian management for asympathetic nerve block

but the pain management Doctor said my problem was with root nerves

in my C5...the treatments haven't worked and he suggest I think about

surgery. I did not know about RDS untill my attorney sent me the

medical evaluations from my surgeon and the companies IME Doctor who

both indicate RSD related to my ulner nerve transposition. I guess in

one sense I am lucky that the IME Doctor agress and attributes it to

the surgery related to my injury. Something has to give, I am a

hermit driving is really painfull and by the time I get to where I am

going I am so crabby no one really wants to see me any way . Big

problem with work is that I drive a 25 thousand pound forklift

handeling 30 to 40 thousand pound bars of metal in a confined plant

the pain gets so bad I can't keep focus and I don't want to hurt

anyone.

She really feels bad, she feels guilty because she didn't undrstand

how I was feeling and now how scared I am of this, but heck I don't

blame her for anything I am not so pleasant to be around and I

understand this. Again you all are very kind and it is a shame that

circumstances like these bring such good people together!

Will try and post what happens tomorrow.

Thanks again everyone!

Tim

> Tim - I wish that you weren't having such a rough time of it. I

think it's a great idea to include your wife when you go to your

appointments....both in terms of helping to increase her

understanding and in terms of her providing information of how

uncomfortable you are. Have you thought about talking to your doc

and explaining that you're not getting adequate pain relief? Barbara

[Guest guest]

so sick that I had to rush him to the hospital and he is now in intensive care with every organ infected and he is on life support

Tom and Barbara,

We are sorry your son is sick and have you all in our thoughts and prayers.

Take care,

Sandi

[Guest guest]

Laurie - Glad to hear that you been able to get up and around a bit. A SCS (spinal cord stimulator...also known as a dorsal column stimulator) is a surgically implanted system. They implant either electrodes or a panel of electrodes into the epidural space that surrounds the spiinal cord. The electrodes are attached to leads that are fed under your skin to a battery pack that is also inplanted under the skin. Via a transmitter, that is operated by remote control, electrical signals are sent via the spinal cord to the areas of your body that are effected. It scrambles the pain signals and replaces them with a pins and needles sensation (paresthesia). You still have pain, but to a lesser degree. Barbara lroepke2004 wrote:

I haven't had blocks for my feet. I have had so many needles stuck in me I feel like a pin cushion. Having a relativly good day. Up and standing for short periods. Gave my service dog a bath. Now that is a chore. Sparky sound interesting. Is it any thing like a tens unit?laurie

[Guest guest]

Thanks Jeanne...sorry for being so long winded, lol. Ahng

[sPAM] Welcome Ahngela

Nice to have you in the group. Yours is a long story, but so are most of ours.

Getting this diagnosis is usually after years of not finding anything else

wrong. Sounds like you are settled now after a traumatic couple of years. Hope

things stay that way for you now so you can catch a break. Take care.

Jeanne in WI