venting

[Guest guest]

>Hi Debbie,

Don't know who did her surgery, but take it from one who knows, if the Dr.

isn't pretty well " versed " on this condition, they know less than we do,

and have no clue ....

I've learned now, and won't make the same mistake -- if my next nsg doesn't

know ACM/SM, he won't be doing anything to me.

Just my opinion, but I would call someone (your/her nsg)

As for her, just hold her -- this is a lonely, painful place, and special

arms (such as this group) do help.

Rainbows to you both,

Grammy

Date: Tue, 16 Jan 2001 11:22:34 -0500 (EST)

>From: Debent49@...

>Subject: venting

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>My daughter had surgery june 00, pressure in head , tightness, feeling like

>she is not here. tingling in her left hand , sometimes vision blurr,

>breathing problems. (not all at once)

>

>went to er sun. they did a ct. nothing showed. they spoke with her nsg

>that night a 3:00 am. they said to call office to see if they could get

>appt moved up.

>

>Just called talked to nurse. she said it sounds like she needs anger

>management. Yea right. If I felt like that i would be mad too. and

>frustrated. she just wants to put a knife to head to relieve pressure. Not

>as bad as before surgery but there on left everything is left. these drs.

>just don't understand. just like before surgery. What about after

>surgery??

>

>she is suppose to get an MRI the 25 too. hope that shows fluid isn't

flowing

>or something. that whats she said feels like there is a glob of something

>stuck there, nowt flowing right . she feels this in her head but no ones

>believes her like last time. she does get very angery, normally not her.

>upset crys can't live like this. she is 23, and not dealing with well.

>but who is, with all these feelings. then they tell you to see a mental

dr.

> i wish all these drs. could be on here and read everything you all deal

>with. This just dosn't seem right.

>

>In my opion. the fluid isn't flowing , and maybe she needs a shunt, thats

>what all of them at the hosp. kept asking, if she had a shunt. How can

these

>drs. see if your having a problem. (like dr frim) ? is it experience.

>

>why dosn't somethng show on the ct's or MRI's ? If not then what when

you

>know something isn't right. she just want s to die.

>sorry for rambling on it was a long night and I'm sure more to come.

>she dosn't even want to stay by herself anymore, very scared.

>Please help, need support.

>Debbie (tiffs mom)

>

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[Guest guest]

Jane,

So sorry to hear about your bad day. My last 2 days have been alot pain in my

legs. So anyway take care and hang in tere ok?

Lori Hammer

Mike & Jane Gagner wrote:

A bad day, not such a great night. I had the weirdest day. Nothing was

particular just very sluggish. Then I got nauseated and a bad stomach ache

and I hadn't eaten anything unusual. Following that I got incredibly dizzy.

I went to bed. Usually if I'm dizzy I am dizzy lying down to but this

wasn't the case and I slept. I had the usual headache along with this all.

I went to bed around 11:30. I didn't sleep well and suddenly woke up at

about 3am. It's now almost 3:40. I'm finally getting tired and will try

the bed thing again. Tomorrow work starts again, or rather the possibility

of work (I'm a sub teacher) and I'm so not ready. A week off you'd think

I'd be raring to go. Sigh. Okay, off to bed.

Good night all,

Jane